Hi Amanda. I am new to this site and am just learning about the different boards here. I had my RNY in 2007 and I too had problems from the start. I went a whole year basically starving to death because my surgeon didn't figure out what was wrong. The only difference I had was that I had no pain in fact I had no feelings at all from my Molly button down and in my arms and hands. My doctor kept telling my husband and I that if there was something wrong with the surgery I would be in pain. I was in and out of the hospital and to different doctors and they all came to the same conclusion...there must be something wrong with my surgery.
It took a trip out to the Mayo Clinic and they said that I needed to reverse my RNY they would do it but my insurance wasn't accepted there and they also prefer the original surgeon to do the surgery because they know how they performed the surgery and where they put "everything". But they also suggested going on TPN which is nutrition through the vein as opposed to the feeding tube. They said if I gained some weight back or started to feel better in any way that would for sure indicate the need for reversal. Coming back home to mu surgeon with the information he still refused the possibility that the surgery was to blame but reluctantly put me on the TPN. It was like a lightswitch had been turned on. I started to feel a little better and the feelings started to comeback in my legs and abdomen and what did you know I began to feel the pain. Worse pain that I've ever felt from any past surgery or even childbirth. Here was my answer that we were looking for.
I went to the University of Pennsylvania in Philadelphia and found Dr. Raper for a second opinion and he decided that a reversal was needed and usually are able to be performed. However in my case when he went in to do the reversal he saw that my stomach pouch had collapsed in on itself and he had to perform a gastrectomy. It was a long recovery due to the complications of going so long with that and all the malabsorption issues that I had but I'm getting better every day. I don't want to say that I regret my decision to having the RNY because of every horror story you hear there are 5 successful stories even though I secretly suffer to myself why I couldn't be one of those success stories. I do regret not getting a second opinion sooner and I do blame my doctor for the negligence of aftercare for not finding the problem. To me I felt that he dismissed all my symptoms telling me that I maybe suffering from anorexia and pica instead of taking responsibility of thinking that there may be something wrong with his surgery. He didn't want me to be a bad statistic on his record. He actually told a friend of mine that I was looking for attention. My answer to that was why would I go through a surgery and so much pain and distress if I could be anorexic from the beginning and saved myself all this trouble.
But anyway that's my story, sorry it is so long and quite boring but I wanted you to know that you are not the only one out there and you are not a failure. And if there are anyone else out there with similar symptoms just have that avenue explored before you just think you are crazy.
Good luck on the rest of your journey!
Hello there Amanda. It's been over two years now and I was wondering if you were feeling any better. I CERTAINLY hope so.
Looking into a ruin y gastric bypass surgery reversal. Have had many complications. Who do you recommend as a doctor? I've been to Mayo and my original surgeon. Do to insurance and money, they don't want to do it. I am willing to do whatever it takes. It has been a nightmare
How are you doing today?
Have you been able to get a takedown or at least eat semi regularly now?
My name is Christy and I came across your story on one of the weight loss forums. After 11 years of complications from my gastric bypass, I'm scheduled to have my gastric bypass reversed on October 17th at the University of San Francisco. I've been reading everything I can find on the topic but it's such a rare surgery and there's very little information out there. I'd love to hear from you and find out how you're doing now. I'm very concerned about gaining all my weight back and the physical pain I experienced daily from my obesity. Have you been able to maintain a healthy weight? What type of "diet" have you been following to keep the weight off?
Reversing gastric bypass surgery is such a complicated and scary procedure. How do you feel now compared to your pre-reversal days? I'm so sick all of the time and weak from not being able to eat. I hope to regain my health and vitality after my surgery. Have you found this to be true? How is your health now?
I'm really hoping that you haven't changed your email and this letter makes it to you. I really appreciate your feedback and any and all advice and recommendations you give me.