Back from Saranac Lake and Dr. Hill's office. have to be on this feeding tube for at least 6 more weeks:( This really sucks! He still can't figure out what is going on and he's been to every advanced conference in the country and is actively still searching for an answer. I know he's not giving up and I know he's really trying to figure this out..... but it is still discouraging to have so much stomach pain and literally not able to get anything down let alone keep it down. I've ner had the dry heaves and vomiting so much in my whole life . I am living on baby food and tube feedings. Not sure what quailty of life this is, but I guess it is what it is.

 im so very sorry for you. I will be praying for you. 

thinking of you. I hope he finds an answer soon!

Hoping this is just a season of trial and praying that you will be better soon.

Are you better now?

It's been 8 months and I still can't keep anything down, vomited so much I now have a dilated stoma. i really wish I never had this surgery.