I have been researching this to finding out I have a candy cane roux limb of 5 cm. I am two and a half years out. A year ago December, I got really sick and had to be hospitalized...they had no idea what was wrong and sent me home...it has happened a few more times since...and I've had one exploratory surgery (after not eating for a few days). So they found nothing.
I just had a scope done at Mass General in Boston and she found the candy cane limb.
There is only one article out there (one study) that I can find, and one person's story if you google it. I am looking for info as well. I am so sick of being sick all the time and vomiting after eating. I'm anemic all the time, constipated all the time...and my pain goes up to a level 10 at times but no one will treat me because they don't know "for sure" what is causing the pain and because i'm a former "fat" person with food addiction issues, they think automatically I'm an addict and can't have meds. I have wished that i would fall and BREAK something so that they would have to give me something for pain...how sad is that????????
I am hoping now that I have these reports that my original surgeon will help me. Other than that...I'm not sure what to do. I don't want a reversal...I just want to be well. I feel like I"m going to pass out all the time. And yes, I dump VERY badly after certain foods...so I know the difference. I actually appreciate my dumping syndrome because if I could eat ice cream, I'd be in big trouble :)
So if anyone has any information, please please please share. I'm in New Hampshire and it's only been an active weight loss hospital for five years.
It was found during an endoscopy...there are ulcers at the junction of the curve...i am going today to follow up with my gastric bypass surgeon and ask that he schedule surgery to remove it and if not then to find me someone who will. i cannot live like this any longer...
thank you for this post...it gave me motivation to go there with a more demanding tone.