Candy Cane Roux Syndrome

(deactivated member)
on 11/28/08 10:30 am - Toledo, OH
Has anyone heard of or had experience with Candy Cane Roux Syndrome after RNY?
If so, would you mind sharing your experience or any information you have?


Lisa W.
on 11/28/08 11:08 am - Charles Town, WV
RNY on 08/21/07 with
I am pretty sure I had this issue although that's not what my surgeon called it.  If it's what I'm thinking, basically the afferent limb of intestine right off of the pouch is too long and food can get caught, etc...and cause epigastric pain and discomfort.
So, I have had issues non stop with ulcers since surgery and basically what happened was I was still having pain after the ulcers were healed.  So, the surgeon went in to see if this limb was collecting food or something of the like.  Turns out I had a perforated ulcer AND needed to have the limb shortened.  So, he did both....I felt great afterward.  I still have recurring ulcers but have had not further pain from the "limb."
Hope this helps
Lisa W.
RNY 8/21/07
Starting weight 348
Current weight  188
Super Momma to:
Aidan 2/14/02 and
Aimee 2/06/04
First Post-op baby due 9/10!
(deactivated member)
on 11/28/08 11:11 am - Toledo, OH
 It is similar, except the limb gets all twisted.

Sounds like you had some of the same symptoms though.  

Thanks for the information :)
karen's battle
on 3/4/09 12:02 am - Somersworth, NH

I have been researching this to finding out I have a candy cane roux limb of 5 cm.  I am two and a half years out.  A year ago December, I got really sick and had to be hospitalized...they had no idea what was wrong and sent me has happened a few more times since...and I've had one exploratory surgery (after not eating for a few days).  So they found nothing.

I just had a scope done at Mass General in Boston and she found the candy cane limb.

There is only one article out there (one study) that I can find, and one person's story if you google it.  I am looking for info as well.  I am so sick of being sick all the time and vomiting after eating.  I'm anemic all the time, constipated all the time...and my pain goes up to a level 10 at times but no one will treat me because they don't know "for sure" what is causing the pain and because i'm a former "fat" person with food addiction issues, they think automatically I'm an addict and can't have meds.  I have wished that i would fall and BREAK something so that they would have to give me something for sad is that????????

I am hoping now that I have these reports that my original surgeon will help me.  Other than that...I'm not sure what to do.  I don't want a reversal...I just want to be well.  I feel like I"m going to pass out all the time.  And yes, I dump VERY badly after certain I know the difference.  I actually appreciate my dumping syndrome because if I could eat ice cream, I'd be in big trouble :)


So if anyone has any information, please please please share.  I'm in New Hampshire and it's only been an active weight loss hospital for five years.


Thank you!


(deactivated member)
on 3/4/09 1:25 am - Toledo, OH
 If the candy cane limb was found why was it not removed?
If it was not removed you need to call your surgeon and demand that it be removed.  It could be very bad if this is just left there if it is twisted.
karen's battle
on 3/9/09 11:19 pm - Somersworth, NH

It was found during an endoscopy...there are ulcers at the junction of the curve...i am going today to follow up with my gastric bypass surgeon and ask that he schedule surgery to remove it and if not then to find me someone who will.  i cannot live like this any longer...

thank you for this gave me motivation to go there with a more demanding tone.



(deactivated member)
on 3/9/09 11:39 pm - Toledo, OH
You have every right to demand surgery.  
I was not going to leave the hospital until it was resolved.  
Once it was removed, all my pain was gone. 
It is a simple surgery and took only about an hour.  Yours might take a little longer because of the ulcers, but it still needs to be done.  Don't let anyone cheat you out of your health and a pain free life.  
on 11/2/09 8:48 am - CA
RNY on 01/12/05 with
Hi Karen,
It is so odd that many of us are having the same symptons.  I am currently seeing an gastroenterologist and an oncologist for the pain I have been experiencing in the last 6 monts.  I have reflux, pain in my chest and back, bloating, gas, enemic and some nausea.  I had a cat scan of my stomach, and am scheduled for and edoscopy.  I am also hungry all the time.  Let's keep each other posted.
Deborah Nunez
on 5/29/09 12:38 pm - Madisonville, LA
I am currently 4.5 years out from my original RNY surgery. After experiencing 2 years of stomach pain and weight regain, I went to my surgeon a month ago and told him what was going on. He seemed genuinely concerned and ordered a slew of tests, including an Upper GI, Cat Scan, ultrasound, bloodwork, etc. None of the tests showed anything that could be the cause of such severe stomach pain, so he did an exploratory surgery yesterday.

He had said that he was concerned about a possible internal hernia or bowel obstruction, and if nothing else, gallbladder inflammation would result in him removing it.

Instead...I wake up to find him explaining to my mother that he revised my surgery. Basically, I had the candy cane roux limb, which allowed me to eat a normal amount of food. The food then would stay in the roux limb and cause the upper abdominal pain and sometimes vomiting. In addition to that, my stoma was stretched out about 5 times the normal size and my pouch was bulging out in one directio. He fixed up the limb, and the stoma and pouch while he was at it.

In other words, after 4.5 years, I am back to day 1. It's exciting...but not what I was expecting at all. Hell, the night before my surgery I was doing my normal things, even making a casserole so I would have leftovers for when I was recovering. Now I'm on a liquid diet for a month and am pretty much guaranteed to lose all the weight I originally lost and gained back.

It was just supposed to be an exploratory surgery, so I'm hoping the insurance company will cover it, since it was pretty much medically necessary.

Anyway, that's my experience. I was shocked to say the least, and still am. I'm feeling great though, despite just having surgery yesterday. I've been through this before, and the memories make me nervous, but I'm excited to know that I am not fully to blame for my weight regain.

Highest Weight Before Surgery: 360
Weight at Original Surgery, 12-04: 330
Lowest Weight in 2006: 200ish
Current Weight: 305

on 7/27/09 10:00 am
Do you have an update for us?
How are you feeling now?
How much have you lost?
Did your insurance cover it?