Hi.  I am not looking for bariatric surgery, as I am about 25 lbs. overweight.  However, I am having a reactive hypoglycemia problem that where I can relate to some of you that developed hyperinsulemia hypoglycemia/nesidioblastosis.

I have had reactive hypo. for about 20 years, no diabetes in my family, and just at 5 times a day.  In the last year I was getting severe hypo symptoms and more frequent, so I bought a glucose monitor.  My lows were getting in the 40s and 50s easily.  I then started eating every 2 waking hours.

I had a GTT(5 hour) a couple of years ago, and these are the results: (going on memory here)

time    glucose    insulin
fast.     99            8.8
30min  140           64
1 hr      175          98
2 hr      124          185
3 hr       57           35

I then, at 3 1/2 hours got all my hypo symptoms, and asked to quit and get juice.  The doctor said yes since I had been at 57 30 minutes earlier.

I would like to know if 185 insulin is abnormally high compared to you that have had the test?

I was tested for an insulinoma, where I fasted in the hospital for 72-hours, but never got below a glucose of 68.  I have since read that in rare cases some insulinomas only react after the introduction of glucose.  That's when I read about adult-onset of nesidioblastosis, but I have not hade any BS, but I guess it can rarely occur out of the blue. 

Anyone have any ideas?  Thanks

185 is a very high insulin number.  When I was tested, my numbers were high but my highest insulin number I believe was in the 90's.

As far as testing goes for an insulinoma, the true test is a nuclear scan called an Octreotide Scan.  It is very expensive, so they dont' always order it but it is the best test for diagnosing an Insulinoma.  They thought I had one many years ago, my blood sugars used to drop into the 30's and 40's.  I had to eat every couple of hours to prevent this.  I had the test and it was negative.  I also had a fasting test - I had to fast from when I woke up in the morning and go to the doctors office.  Then they took my blood sugar and insulin levels every 30  minutes.  It was supposed to last for 6 hours but after 4 hours my glucose was down to 45, so they had to stop the test and they started running around getting me juice and food to eat.  Within a few minutes my glucose was back up to 90.

They never figured out what caused my hypoglycemia but about 6 months later it went away. 

 I didn't drop below 50 - and my endocrinologist quit the test - so I didn't ever find out...