Oh man, Allie...I was really hoping that things had turned around for you. I know you had a very rough start and I was praying it was just that, a rough start. Did anyone ever narrow down why you became so ill, or did they just start slicing, dicing, and testing you to rule stuff in or out? I really hate this for you, I hate this for anyone. I think I would feel some comfort if after all this you were fixed, but you're not! I wish I knew the answer...did you ever get a 2nd opinion or did your original surgeon do all of this? I would still get another set of eyes on this, even if it's the 3rd set, you need the right doctor to help you, one that sees these problems everyday. I'm trying to remember where you live, but I would find the largest tertiary (teaching/research/university hospital) hospital that you can get to...it's great if it's close, but in my opinion the 450 miles I travel one way to get to Cleveland has been worth every mile. There are some bariatric surgeons that won't want to help you because they did not do your surgery...what a culture, right? I would be happy to give you the name of my surgeon at Cleveland Clinic, and/or help you find someplace where your problems aren't so rare & bizarre. Here is my email address (I check that more frequently than I am on here, firstname.lastname@example.org)
Don't give up, you're strong, and they won't break you! prayers and hugs to you!
Jules RNY 10/30/2007