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Butterfly Reborn’s Posts

Butterfly Reborn
on 1/21/12 7:16 am
Topic: RE: Happy Thanksgiving everyone!
Hi!  LTNS!

I was just reading all of your updates!  I'm so sorry you're still suffering.  How are you doing?

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 3/12/10 12:39 pm
Topic: RE: Pain...Plz Help!!!

I'm sorry you're hurting.  Been there and done that!

Can you go see your WL surgeon?  Perhaps he'd see you at a reduced rate since you are his patient?  Otherwise, a gastrointerologist is in order.  It could be numerous things -- one of them being a bowel obstruction (yes -- even though you are passing gas and having diarrhea.  Google "bowel obstruction" and read up a bit.  A BO could become fatal and you should see a doctor as soon as possible. 

I'm not saying that you have that but you do have symptoms.  It could be IBS, a bacterial imbalance, and a plethora of other possibilities.  Pain is a sign that something is wrong.  You should see a doctor as soon as possible.

I hope you feel better soon!  

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 11/18/09 7:58 pm
Topic: RE: Exploratory surgery?

Katrina,

How are you doing now?  Did you have the exploratory surgery?  What did they find?

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 11/18/09 7:55 pm
Topic: RE: Update on job/health

Julie,

What is going on with you?

I am very curious as I am seriously considering a reversal.  I just don't know that it will help.  *sigh*

I know you have been through a lot like me.  Thank you for answering.

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 11/18/09 7:48 pm
Topic: RE: REVERSAL OF RNY

I'm leaning towards a reversal too.

Julie had a reversal.  I was watching her journey b/c she had many problems like I did. I was hoping the reversal would "fix" her but it didn't.  She was having more problems and was in the hospital the last time I checked in on her.  You can follow my latests posts to find her or go back a couple of pages.  She is on other threads that relate to reversals.

I wish you good health! 

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 9/9/09 9:03 pm
Topic: RE: Exploratory surgery?

Katrina,

From our dialouges and all of the information you have provided to me after I asked you 183 questions, it's my personal unqualified opinion that this is the reasonable next step for you.

If your doctor is trained is laparscopic surgery, he/she will go in laparscopically and look around for any problems and if a problem is found correct it.  There will always be the possibility that what starts off as laparscopic could turn into an open surgery.

The recovery time for me was similiar to the original RNY but a bit worse.

I've had several exploratory surgeries and I had severe problems (significant bowel obstructions caused by adhesions and one internal hernia) that did not show any ANY X-Ray, CT Scan, Barium Swallow, Endoscope, Colonoscopy, etc.   I have been in ICU twice fighting for my life.

Pain is a signal that there is something wrong with the body. 

Surgery is surgery and all the risks go along as with any abdominal surgery.

In one of my exploratory surgeries, I went to LA to see my surgeon at a noon appointment and he said, "See you in the OR at 5pm."  He told me thank God I flew over to see him because if he had not opened me, I was 24 hours from a severe perforation that I would have likely died from back home in Houston were no one would touch me with a 1000 foot pole.  I'd have probably died in the ER after perforation b/c no one would open me.  I really believe that.

At any rate, I have plenty of stories, experience, and research under my belt and if your doctor is recommending exploratory surgery at this point, I believe, from the information you have provided to me (though I am not qualified to say so), it is reasonable and the next step for you.  There really isn't anything else to do at this point -- unless you want to hold off and see how you do -- for me, I'd fear waiting and then end up in an ER situation where perforation, infections, septis, etc. become more likely and would include a more complicated, detailed surgery with a much longer recovery period.

All of this is just my unqualified opinion.

Do your own research and talk with all of your doctors to develop a treatment plan that you all agree on to be the best next step for YOU.

I hope you feel better soon!


I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 8/1/09 11:55 pm
Topic: RE: 4 Years Out 11-2 Feeling Crappy...LONG POST!!!

You may have C-Diff or a bad bacteria in your intestinal tract.  That is the reason for the stool sample and I think you are fortunate that they are doing that immediately.  If you have c-Diff, it will take a prescription of Flagyl and you'll be feeling so much better!  If it's another bacteria, they will know which antibiotic will be effective in treating the overgrowth.

In the meantime, you can begin PROBIOTICS.  These are capsules filled with billions of several different kinds of the GOOD bacteria we all need in our gastrointestinal tract.  They canNOT hurt you so there is no reason not to begin them.

It is also recommended that you take probiotics whenever you are taking an antibiotic as antibiotics can disrupt the balance of the good and bad bacteria in your intestines.  When taking probiotics while on an antibiotic, space the probiotics in between the time the antibiotic is taken. 
You can find a good probiotic at a health food store like GNC.  Get a brand that has bacteria not just for the small intestine but for the colon as well.  There are some capsules that contain as many as 11 - 13 strains of good bacteria. 

If you can't get to the health store soon, eat more yogurt (bu****ch the sugar content and consumption amount if you are lactose intolerant). 

If you find that you have very good results with the probiotics do NOT cancel your testing and/or appointments.  While they may be highly beneficial to you and you may notice a difference relatively quickly (2 weeks), that doesn't mean that any condition yo u may have has been discovered so that there is no need to continue with testing.  I don't think you'd do that but I have seen people do that and while the probiotics helped tremendously, it wasn't their primary problem and treatment was delayed.

I hope you are feeling betters soon!


Good luck!

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 5/31/09 7:03 pm
Topic: RE: Adhesions Causing Pain on both sides of Abdomen??

Many things can go "wrong" and even after recently having surgery.

Surgery isn't something one should rush ino; however, It may finally repair whatever it is going forward.

I'm to trying to promote or convince you to have more surgery; however, it is easier on the body, pain will decrease, and I'd think the last thing you'd want to is to have some kind of "episode" the causes chaoc and you are rushed to a hospital by ambulance. It's happens.

Get a second opinion and/or meet with surgeon again to disccuss all of your possibilities.

I hope you better soon!!!!

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 5/22/09 8:29 am
Topic: RE: Hypoglycemia/Low blood sugars-sorry Long

You should visit with your doctor to get a real diagnosis.  We shouldn't be guessing about what we're experiencing and how to correct it.  What if it's something else?

That said, for me, after a diagnosis, the best way to handle it is to PREVENT it.  Eating every 2-3 hours keeps the crashing at bay.  I keep peanut butter crackers around -- at home, in my night table, in my purse, in the car, etc., places where I can grab a packet and get relief!  That way, if you feel something coming on, you can thwart it.  Again, the best is to prevent it.

Talk with your doctor(s).

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 4/1/09 8:10 am
Topic: RE: Pain "doctor" experience

I think I've had 12 surgeries in 4.5 years (starting with my RNY). I believe we have communicated before.  There is a doctor our there that will treat you for your pain!  If you decided to go for another pain management consult, let the office staff know that you'd like to meet with the doctor (actually HAVE a consult) to see if the two of you can work together and THEN if you and the doctor come to an agreement to treat, you'll sign the contract.  About the ER, I had heard what you were told about not being able to get narcotic medication at the ER even if you've had something happen not related to your treatment for pain such as a broken leg or a car accident (G-d forbid); however, I have found that is NOT true.  I have been to the ER several times (unfortunately) for abdominal pain WHILE in pain management and I tell them that I am in pain management with Dr. Good Relief and I've still been able to receive the big guns such as Dilaudid (which is the only thing that relieves episodes of pain).  Dr. Good Relief is notified but I always check in with him myself.  Pain is pain and it's a signal that something is wrong with your body OR it's phantom pain where the brain refuses the signals of pain and decides on the pain itself.  You should research that because it CAN be treated but you are NOT helping yourself by allowing the pain all day and "only" wanting to sleep at night.  The pain has to be controlled around the clock so that if this is acute pain that has become chronic, it can eventually be cured. 

The abdominal nervous system is very closely tied to the central nervous system and is called the Enteric Nervous System.  Look it up.  It's amazing.  It may help you understand some of what is going on.  Also, it would be helpful to research acute pain versus chronic pain and how one can turn into the other.

If you have any more specific questions for me, please feel free to PM me.  I hope that you are pain free soon! 

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 2/18/09 10:57 pm
Topic: RE: Reversal Questions

Hello!  I have a myraid of complications and "reversal" has been mentioned for me to consider.  I am over 4 years out.

You are only 7 months out.  What complications are you having that a reversal would be considered?

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 12/21/08 4:52 pm
Topic: RE: Hello, I'm having bad complications, need advice.

Please see my previous post answers and my original post on this forum.

I hope you are all better soon!

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 12/21/08 12:20 pm
Topic: RE: I had my RNY reversed, anyone else out there?

Thank you.

Dr. Davis isn't famous, he's just on TV.

IMO, a good sugeon doesn't mangle up his practice with TV cameras.  Their practice has grown because people assume that because they are on TV, they are famous or good.

I saw Dr. Garth Davis in April of 2006.  He is the bariatric surgeon I mentioned met with me after a phone call from my WLS in Louisiana, and not only misdiagnosed me which could have led to my death but literally, when I asked about how we would control pain until we found an answer, said to me,
 
"Mrs. X, there is nothing wrong with you.  You need to go home and get over yourself." 

Good thing I didn't listen to him.  I'd be dead.

Thank you for your kind words.



I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 12/20/08 9:09 pm
Topic: RE: Severe Complications / Consideration of Reversals / Etc.


With all the recent posts on severe complications and even reversals, I thought I should post this as a new thread even though I have shared it as a reply in a post below.


Here is a synopsis of my history:

Starting weight 252 /   Current  140

RNY 11/03/04;

GB removal 12/04/04;

Plastic Surgery  06/14/05;

Internal Hernia/Adhesions 06/06/06; (exploratory surgery / eating very little / mostly liquids)

Plastic Surgery 07/15/06;

Partial Bowel Obstruction 11/12/06; (exploratory surgery - had been unable to eat)

Full Obstruction/Kink - complication from surgery 2 days prior / ICU blood transfusions and to stabilize 11/14/06;   (I was in New Orleans for this surgery and not allowed to return home to Texas for a month to ensure blood loss had stopped and I was stable.)

Emergency Surgery for Obstruction 100% Shut down/ 24 hours from perforation/ Adhesions/Vertical Open 9 in. 07/19/07;

Infection from above surgery / ER Admit/Unstable/Erratic HR & BP/Ambulatory transfer / inpatient ICU until stable/ 07/30/07;

SBBO 08/27/07;

Hernia Repair (3) and Lysis Adhesions that had been causing significant pain, unable to eat, and partial obstruction as well 04/01/08;

Wound infection in patient ICU to clear and stabilize/ admitted 04/22/08;

Hernia Repair with Mesh 09/19/2008 / stayed in New Orleans for 5 days after discharge.

ER admission for Infection & Internal Bleeding/ICU with transfusion 09/30/2008 (had I gone to sleep that night, I would not have survived).

Additional complications:  numerous emergency room visits for pain, nausea, vomiting, dehydration, etc. with no resolution, peripheral neuropathy, pernicious anemia, severe dehydration, severe constipation, reactive hypoglycemia, only able to consume liquid food sources, severe IBS, parasites, confusion, loss of memory - short and long tern, loss of balance, loss of vocabulary, tingling in extremities resulting in partial paralysis which was related to malnutrition  and difficulty keeping vitamins levels in normal ranges, lost too much weight and struggled to gain to healthy weight, ............and who else knows what I can't remember......

Notes for those suffering from "unexplained pain:"

Only ONE (1) time did a bowel obstruction appear on a CT Scan -- that was in November of 2006 after I had surgery for a partial bowel obstruction -- it was a complication to a partial bowel obstruction repair found through exploratory surgery. 

It's simply not true that an obstruction (particularly partial) will show up on a CT scan or any other testing for that matter.  I am proof.

I don't know what advice to give anyone other than to be your own very strong and determined advocate.  No one knows your body like you do.  If any pain worsens, go to the ER.  Demand a consult with a bariatric surgeon.  I have, however, done all of these things where I live (had to relocate to Houston after Hurricane Katrina) and *I* have had to educate the doctors such as PCPs, Gastros, etc. in bariatrics. 

I am so sorry you have had to deal with all of these complications.  I understand that pain and complications such as this is debilitating and affects one's entire life and the lives of those around them. 

My surgeon has now discussed "REVERSAL" with me three times.  I keep holding out hoping that we can find a way to overcome these things (some we have and some are a daily struggle but that are helping with using creative ways to keep vitamin levels within a decent range.  The reversal is not out of question; however, with each surgery, it appears that I develop more complications and the reversal is such a major surgery (more so than the original) that it is highly unchartered waters and does not promise me complete resolution.  In fact, things could get worse.  It's not an easy decision.  As I read your synopsis, I'm not certain how much the reversal has helped you and this is what scares me.  I don't want to get worse and/or subject myself to yet another surgery as I never have time to fully recover from any of them.  I have had 12 surgeries in 4 years (2 plastic which were elective).  That's an average of 3 surgeries a year or every four months.  Between all of the anesthesia and medication I have been on, my body has never had to time to purge of medication and properly heal.  I keep hoping I can get through 18 months to fully recover from a surgery but I can't seem to make it.    I'm now 3 months from my last surgery and I am having a very difficult time adjusting to the mesh and still have extreme abdominal pain.  It takes pain medication in extremely high dosages to even take the edge off of the pain and it has been very difficult if not impossible to find a pain management specialist who understands and will prescribe what it takes to make my life more normal.   I was on the Fentanyl Patch for a while and it was a God-send but my current PMS has stopped prescribing this altogether -- what I am taking now is not helping.  I am trying to find a new PMS but this has not been easy.  No one wants to take me in.  I'm like the rat specimen/study that has gone totally wrong and no one wants the liability. 

To make the entire situation worse, as I briefly mentioned earlier, I moved to Houston just over three years ago and none of the bariatric surgeons here will take me on as a patient.  I have contacted them ALL including the teaching institutes.  I was able to see one bariatric surgeon early on (well after nearly 7 months of pain, 5 doctors, and over $100,000.00 in testing) as my WLS from LA made a personal phone call to a bariatric surgeon with whom he attended medical school and agreed to see me as a favor.  I went down with all my labs and films and he told me it was all in my head.  His misdiagnosis nearly killed me.  I live in the medical Mecca of the south and I can't find adequate care.  Unbelievable!!!!!

I don't know how much this has helped you.  I will send you a friends request so that you can read additional information on what I have been through. 

I have tried to keep the main points and thoughts in order but I haven't been able to give my FULL, UNDIVIDED attention to typing this so I don't know how well I did.  I am, of course, happy to continue communicating with you in the future.  Perhaps we can help and support one another.

I am so sorry that all of you have had so many complications.  I wish and pray for all of us to have health and happiness.

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 12/20/08 9:01 pm
Topic: RE: I had my RNY reversed, anyone else out there?

Here is a synopsis of my history:

Starting weight 252 /   Current  140

RNY 11/03/04;

GB removal 12/04/04;

Plastic Surgery  06/14/05;

Internal Hernia/Adhesions 06/06/06; (exploratory surgery / eating very little / mostly liquids)

Plastic Surgery 07/15/06;

Partial Bowel Obstruction 11/12/06; (exploratory surgery - had been unable to eat)

Full Obstruction/Kink - complication from surgery 2 days prior / ICU blood transfusions and to stabilize 11/14/06;   (I was in New Orleans for this surgery and not allowed to return home to Texas for a month to ensure blood loss had stopped and I was stable.)

Emergency Surgery for Obstruction 100% Shut down/ 24 hours from perforation/ Adhesions/Vertical Open 9 in. 07/19/07;

Infection from above surgery / ER Admit/Unstable/Erratic HR & BP/Ambulatory transfer / inpatient ICU until stable/ 07/30/07;

SBBO 08/27/07;

Hernia Repair (3) and Lysis Adhesions that had been causing significant pain, unable to eat, and partial obstruction as well 04/01/08;

Wound infection in patient ICU to clear and stabilize/ admitted 04/22/08;

Hernia Repair with Mesh 09/19/2008 / stayed in New Orleans for 5 days after discharge.

ER admission for Infection & Internal Bleeding/ICU with transfusion 09/30/2008 (had I gone to sleep that night, I would not have survived).

Additional complications:  numerous emergency room visits for pain, nausea, vomiting, dehydration, etc. with no resolution, peripheral neuropathy, pernicious anemia, severe dehydration, severe constipation, reactive hypoglycemia, only able to consume liquid food sources, severe IBS, parasites, confusion, loss of memory - short and long tern, loss of balance, loss of vocabulary, tingling in extremities resulting in partial paralysis which was related to malnutrition  and difficulty keeping vitamins levels in normal ranges, lost too much weight and struggled to gain to healthy weight, ............and who else knows what I can't remember......

Notes for those suffering from "unexplained pain:"

Only ONE (1) time did a bowel obstruction appear on a CT Scan -- that was in November of 2006 after I had surgery for a partial bowel obstruction -- it was a complication to a partial bowel obstruction repair found through exploratory surgery. 

It's simply not true that an obstruction (particularly partial) will show up on a CT scan or any other testing for that matter.  I am proof.

I don't know what advice to give anyone other than to be your own very strong and determined advocate.  No one knows your body like you do.  If any pain worsens, go to the ER.  Demand a consult with a bariatric surgeon.  I have, however, done all of these things where I live (had to relocate to Houston after Hurricane Katrina) and *I* have had to educate the doctors such as PCPs, Gastros, etc. in bariatrics. 

I am so sorry you have had to deal with all of these complications.  I understand that pain and complications such as this is debilitating and affects one's entire life and the lives of those around them. 

My surgeon has now discussed "REVERSAL" with me three times.  I keep holding out hoping that we can find a way to overcome these things (some we have and some are a daily struggle but that are helping with using creative ways to keep vitamin levels within a decent range.  The reversal is not out of question; however, with each surgery, it appears that I develop more complications and the reversal is such a major surgery (more so than the original) that it is highly unchartered waters and does not promise me complete resolution.  In fact, things could get worse.  It's not an easy decision.  As I read your synopsis, I'm not certain how much the reversal has helped you and this is what scares me.  I don't want to get worse and/or subject myself to yet another surgery as I never have time to fully recover from any of them.  I have had 12 surgeries in 4 years (2 plastic which were elective).  That's an average of 3 surgeries a year or every four months.  Between all of the anesthesia and medication I have been on, my body has never had to time to purge of medication and properly heal.  I keep hoping I can get through 18 months to fully recover from a surgery but I can't seem to make it.    I'm now 3 months from my last surgery and I am having a very difficult time adjusting to the mesh and still have extreme abdominal pain.  It takes pain medication in extremely high dosages to even take the edge off of the pain and it has been very difficult if not impossible to find a pain management specialist who understands and will prescribe what it takes to make my life more normal.   I was on the Fentanyl Patch for a while and it was a God-send but my current PMS has stopped prescribing this altogether -- what I am taking now is not helping.  I am trying to find a new PMS but this has not been easy.  No one wants to take me in.  I'm like the rat specimen/study that has gone totally wrong and no one wants the liability. 

To make the entire situation worse, as I briefly mentioned earlier, I moved to Houston just over three years ago and none of the bariatric surgeons here will take me on as a patient.  I have contacted them ALL including the teaching institutes.  I was able to see one bariatric surgeon early on (well after nearly 7 months of pain, 5 doctors, and over $100,000.00 in testing) as my WLS from LA made a personal phone call to a bariatric surgeon with whom he attended medical school and agreed to see me as a favor.  I went down with all my labs and films and he told me it was all in my head.  His misdiagnosis nearly killed me.  I live in the medical Mecca of the south and I can't find adequate care.  Unbelievable!!!!!

I don't know how much this has helped you.  I will send you a friends request so that you can read additional information on what I have been through. 

I have tried to keep the main points and thoughts in this post/information in order but I haven't been able to give my FULL, UNDIVIDED attention to typing this so I don't know how well I did.  I am, of course, happy to continue communicating with you in the future.  Perhaps we can help and support one another.

I am so sorry that you have had so many complications.  I wish you health and happiness.

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 10/21/08 9:25 am
Topic: RE: nausea and vomiting 6 years post op rny
 

Your doctor must suspect an internal hernia and/or bowel obstruction in order to do exploratory surgery.  If you do have a bowel obstruction, it can become fatal and quickly.  I'd go ahead with his recommendation especially if having abdominal pain (which you don't mention?) or changes in bowel movements (which you don't mention?)

I hope you feel better ASAP.  Please let us know what you decide.


I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 10/17/08 10:12 am
Topic: RE: Exploratory surgery on Monday - URQ pain
 

Glad to hear you are doing better!


I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 10/17/08 10:11 am
Topic: RE: HELP!! Anyone like me? 20 months post op!
 
Sounds more like ANEMIA than anything to me.  You could have significant blood loss from an ulcer and it could become fatal if you enter into shock.

This is NOT something to play around with at all.  

There is NO SUCH THING as "perfect labs!"  NO SUCH THING!

As specifically about your H&H, your Ferritin level, and iron saturation.  You could have low blood and/or iron because you are having internal bleeding from the ulcer.

I hope you look into this and find your answers ASAP!  Please move on this and become more proactive!

I hope you are 100 percent very soon!


I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 10/17/08 10:08 am
Topic: RE: vOMITING/REGURGITATING NEED EGD WITH DILATION??
 
Because you self-paid for your surgery, you will likely have to self-pay for the EDG and the dilation.  I suspect this is why you are having trouble getting the referral.  The doctor can give a referral but has to code it.  When he codes as related to your surgery, your insurance company MAY or MAY NOT pay for it.  They may be saying that you have to or can TRY to go through your insurance company.  If they get a denial, then you can self-pay.  HOWEVER, you have the right to self-pay and then file a back claim with your insurance company.  If they pay, you will be reimbursed.

There is no reason to not go forward with the dilation (as long as you can pay).

That said, if you go through the ER, they can't turn you away.

I would not wait on this.  You can become dehydrated and find yourself in a real mess sooner rather than later.  If you don't do anything else, call the doctor(S) offices today and discuss these options with them so they can guide you.

Please let us know what happens, OK?


 

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 10/17/08 10:01 am
Topic: RE: HELP!!! FRIEND IN SERIOUS TROUBLE FOLLOWING WLS!!!
 

Thank you!  I've been so concerned for your friend!

She needed blood desperately so I am so glad to hear that the doctor did this immediately.  I'm sure she doesn't have six weeks of blood transfusions ahead of her; rather, they will give her two units of blood and check her levels every 4-12 hours for two days.  Then, she'll go a few more days and test again.  Her bleeding is obviously very slow if she's bleeding at all anymore.  She may have had a low H&H simply from B12 deficiency and no vitamins or she could have had slow bleeding and it has stopped on its own or she could have a slowly bleeding ulcer or some other internal problem.  They will know more as they watch her numbers.  If she recovers and keeps the numbers up without them dropping again, they'll be able to be more conservative on the testing and not waste time and money.  

I am so relieved that she is being treated and approved the transfusion.  She is not going to believe how well she feels in a couple of weeks.  She likely doesn't realize how badly she has been feeling as the change was slow.

Please let me know, if you don't mind, how she is recovering!

Thank you!


I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 10/14/08 1:52 pm
Topic: RE: Help! What's wrong with me? Any suggestions?

Have they considered a CT Scan?

Do you have any abdominal pain with eating?

 

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 10/14/08 1:50 pm
Topic: RE: HELP!!! FRIEND IN SERIOUS TROUBLE FOLLOWING WLS!!!
 
How is your friend doing?


I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 10/10/08 9:09 pm
Topic: RE: Exploratory surgery on Monday - URQ pain
 
So, what happened?  Are you OK?

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 10/10/08 9:04 pm, edited 10/10/08 9:05 pm
Topic: RE: HELP!!! FRIEND IN SERIOUS TROUBLE FOLLOWING WLS!!!
 
I'm sorry for your friend and hope she is well very soon!!! 

She's severely anemic.  Why aren't they transfusing at this point?  Some, if not most, transfuse blood and call it "critical" at 7.O which is where she is right now.

You report that her B VitaminS is 254.  If that is her B12, she has Pernicious Anemia which is low iron and H&H from lack of B12.  I have a long post on PA on my profile along with the treatment plan I used to conquer it.  You can also read about PA on medical websites such as www.webmd.com  

Total iron is her Ferritin level? 13?  Ten (10) should require iron transfusions intravenously!  She needs blood.   What's the problem here?  Iron saturation is 3?  She's obviously without low on iron.

She may be bleeding from somewhere - an ulcer?  They should be looking for the possible source of the bleeding. Have the done an endoscope?  However, it's possible that she has such a low H&H simply from lack of iron especially since she doesn't take her vitamins.  It takes a while but the H&H could become very low simply because it cannot keep up the body's need to produce red blood cells in the bone marrow because of not enough B12.  That said, at this point to recover without intervention (IMO a blood transfusion) would take literally MONTHS of adhering to a strict protocol to get her back on track! 

I can't understand why something isn't being done to help her.  I'm not a doctor or a nurse and obviously, even if I were, I could not diagnose someone over a computer.  That said, I've experienced blood loss, blood transfusions, and pernicious anemia and have done a lot of research on it.  Again, you can find information on my profile and at reputable, medical websites.

Please let me know if this information proves helpful and how your friend is doing!?!?!?!


I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140

Butterfly Reborn
on 9/1/08 3:02 pm
Topic: RE: Anyone had food get into their afferent limb?
Wow   that is a major surgery!  Of course you are still hurting from that!

If your pain medications are not sufficient, please contact your surgeon for affective pain management! 

Please keep us posted on how you are doing!  I will pray for you!

I have to have another surgery and I'm afraid I can't wait much longer as the pain is getting out of control!  :-(   I feel for you!

Julie has been through a lot too!  :-(

I have two sides to my brain - a right side and a left side.  The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252  GW 140 CW 140