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    marissa1987
    Member Since: 07/01/09
    [Latest Posts]

    i was Dx with diabetes at age 9, im now 24 i wiegh 256lbs im 5'6'' i have out of control diabete, i take 70 units of one insulin twice a day and 50 of anouther twice a day. my sugars are staying at 500+  my legs hurt and im depressed. i had been banded 2 time i lost 100lbs the 1st time. it had slipped and it was removed. few months later i was rebanded and that one slipped a month later, i cant lose the wieght by myself and i dont know what to do now. i suffer every day with sleep apeana, high blood pressure, neuropathy, chronich back pain and leg pain, i was in the hospital this past week with pancrititis and no i dont drink, and the endocrin in the hospital told me either i need wieght lose surg or a insulin pump, and that because im taking so much insulin im going to gain wieght, i feel like im stuck in a hole and cant get out. if you have diabetes and had a high blood sugar then you know how i am feelling, 569 is my sugar right now, i go to the hospital to get help getting it down and they are like you agian and i feel horrible i feel ashamed some time i wish that the sugar gose up so high i die... well i feel like  am die slowly..... i woulod try the band one last time but i dont know if i can get it agian so so so so sad
    o yah metformin makes me real sick
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    funkyphillygirl
    Member Since: 09/06/10
    [Latest Posts]

    I'm very sorry to hear this and I know you feel stuck in a loop that you can't get out of right now!  It's awful when you don't feel well and then feel so out of control. 

    The first priority, in my opinion, is to try and get better control of your blood sugars.  Most surgeons won't do surgery on you, I would thin****il that is better under control.  Do you have an endocrinologist that you work with on a regular basis or is most of your care coming from the ER when in crisis?  If it's the ER, you are only going to get emergency, not long-term, care.  And that is going to keep you stuck in this cycle you are in.

    You need a good endocrinologist to start working on this issue with you right away, and you need to commit yourself to working at this in a very focused and deliberate way.  It's probably going to take a while to bring everything down and under control and you might need to try a number of different medicines and methodologies (perhaps the pump) to get you there.  You will likely remain frustrated for a while, but your efforts will pay off if you and your doctor can work together.  Small steps matter and can lead to big things, but you need to sustain the effort, be honest with yourself and your doctor, and listen to direction and feedback from your healthcare team.

    Yes, your weight will continue to go up with lots of insulin.  Believe me, I know that cycle well myself.  But, right now, you need to improve your control first.  Once that happens, then you can begin thinking about WLS surgery.  Perhaps you need to consider something more than the band?  I think it's probably too early to even go there.

    Please find an endocrinologist.  And keep us posted. 
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    jillybean720
    Woodbridge, VA
    Other (03/27/09)
    Member Since: 07/08/08
    [Latest Posts]

    How's your diet? I'm assuming based on your age at diagnosis that you're a type 1 (possibly with also some insulin resistance now, so possibly essentially both type 1 and type 2). Most diabetics, even many type 1s I know, find a diet low in carbs to be VERY helpful in controlling glucose levels.
    *Jill*...not quite a DS, not just a VSG - stuck somewhere in my own little hybrid world... 
    www.dsfacts.com

    Check out my profile for info on WLS for Type 2 Diabetes.
    Highest Known Weight: 324  -  Weight on Morning of Surgery: 308.5
    Lowest Post-op Weight: 180 (weight loss currently on hiatus due to pregnancy)

    Post-WLS baby "Jiffy" currently baking!
    Lilypie Maternity tickers
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    LosingSally
    Member Since: 11/25/07
    [Latest Posts]

    Get WLS. DS would have better long term control, but even RNY would immediately improve your levels.
    Another band would slip too, since the last 2 did. Don't be afraid, jump in there and make a decision to live longer and healthier.
    As for your levels now, I always cut out all carbs except in a low carb salad dressing and eat salads twice a day, and for breakfast eggbeaters with cheese. After about the third day, my fasting glucose level would be below 150, sometimes as low as 110. Then I would   add low carb vaggies back in with any meat, chicken or fish. All carbs are the devil for diabetics.
    My A1c was around 11 before weight loss surgery. I did the salad and eggbeater thing to get below 10 for surgery.
    Best wishes.
    ETA: before surgery I took 90 units of Lantus once a day, 45 reg for  breakfast, 35 for lunch and 45 for dinner. Didn't help much without letting go of the carbs.
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    jvan71
    TN
    Member Since: 11/16/11
    [Latest Posts]

    I agree.  I was originally planning on getting the VSG, but my surgeon's office explained to me that the RNY has almost a 90% chance of "curing" my diabetes where the VSG was only about 55%.  I know there's not real "cure", but that's the word they used. :)

    My A1C usually runs around 10-11, so I can somewhat relate, though I was in my late 30's when I started having problems with not being able to control my blood sugar.

    A low carb or "smart" carb diet would be a great idea also.  I went on South Beach last year and was able to get off my insulin until I started giving in to my cravings again and went off the diet.  Sugarbusters is another good one to try.  You'll want one that uses the Glycemic Index since that determines how fast or slow your body turns food into sugars.

    I definitely think you should consider one of the other WLS, though.  RNY is the one I chose (DS sounds great, but just not for me) but it sounds like DS has a good chance of fixing the diabetes as well.

    Good luck!
    Jen
    HW: 330   SW 307.5   CW 288   GW 130      
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    funkyphillygirl
    Member Since: 09/06/10
    [Latest Posts]

    Jen: Do you know what diabetes type you have?  About 10% of those diagnosed with Type 2 are NOT Type 2 - they are what the literature and docs call Type 1.5 (or LADAs - latent autoimmune diabetes in adults).  The age of onset is usually around 30 and there are blood tests you can have to determine whether this is you or not.

    The reason I mention this is that WLS surgery can greatly improve your overall control, but you will still function like a Type 1 diabetic and likely need insulin, albeit in smaller doses with better results.

    I was diagnosed at 29 and have had diabetes for 25 years now.  I just had RNY in September and found out just about a year ago that I had LADA, not type 2.  I have gone off a lot of my oral meds and reduced my insulin.  But, I still need it.  My endocrinologists always thought that I didn't quite "fit" the Type 2 diagnosis, and frankly, I never really did.  I initially hoped that WLS would take this all away, but once I learned that I truly was a Type 1.5, I had to readjust my expectations for outcomes.  I'm glad I knew it before the surgery.

    Totally agree with your statements that WLS is the only way to go for any type of metabolic intervention that can impact diabetes.  I never even considered Band surgery - it does nothing to change the way the body metabolizes food/calories.  

    Best of luck to you!
     
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    jvan71
    TN
    Member Since: 11/16/11
    [Latest Posts]

    I've always believed I was Type 2 along with insulin resistance.  I was also diagnosed in my early 30's, though, and I do have diabetes on both sides of my family.

    I haven't heard of latent autoimmune diabetes before.  I'm going to go do some research on it now so I can see what tests I need to have done!

    Thanks for the information!!
    Jen
    HW: 330   SW 307.5   CW 288   GW 130      
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    funkyphillygirl
    Member Since: 09/06/10
    [Latest Posts]

    Hey Jen:
    I didn't mean to cause you to question your type.  It's just that there is so little out there about the type 1.5's (LADAs), especially regarding the connection with WLS.  When I found out that for certain that I had type 1.5, it stopped me for a few months and made me realign my expectations for the surgery. 

    I did the surgery for one reason - to improve my health and diabetes control.  The weight loss is an added benefit that it more visible to me and to others.  But the numbers that matter most to me are the ones on my glucose monitor! 

    Good luck - sounds like your surgery is coming up soon.  You will feel SO relieved when you are on the other side of it. 
    Best to you!
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    jillybean720
    Woodbridge, VA
    Other (03/27/09)
    Member Since: 07/08/08
    [Latest Posts]

    For most type 2s, "smart carb" diets are not enough. I was actually on South Beach when I was diagnosed with my type 2 - my fasting was in the 200s and A1C was 9.5. Those "smart carbs" were just as bad for me as a candy bar! The body will convert whole wheat bread to glucose just as it will a cup of apple juice or a handful of jellybeans.

    I'm assuming you're a type 2 since no WLS will "cure" type 1...

    And just as a point of information, the DS has the best long-term resolution rate for type 2 diabetes (approximately 98%), followed by the RNY (about 85-90% short-term, but about 10-20% of those resolved see their diabetes return at 3+ year after surgery). The VSG long-term stats are still up in the air since there aren't any long-term VSG stats available.
    *Jill*...not quite a DS, not just a VSG - stuck somewhere in my own little hybrid world... 
    www.dsfacts.com

    Check out my profile for info on WLS for Type 2 Diabetes.
    Highest Known Weight: 324  -  Weight on Morning of Surgery: 308.5
    Lowest Post-op Weight: 180 (weight loss currently on hiatus due to pregnancy)

    Post-WLS baby "Jiffy" currently baking!
    Lilypie Maternity tickers
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    BiscuitNYC
    NYC, NY
    Member Since: 12/03/11
    [Latest Posts]

     My PCP was just telling me about intestinal sleeves.  While they are still in the early research stages, the results have been very good:  resolution of DM2, weight loss not quite on par with bypass, but better than the band.  Oh, and it's non-surgical, done endoscopically.     Not sure where you are located, but were I you I would not only speak with an endocrinologist, but seek out a bariatric program at a teaching/research hospital.  They would probably be best to inform you of procedures or trials that could be helpful considering the inability to control your diabetes with meds and other comorbidities.


    http://articles.latimes.com/2011/apr/05/news/la-heb-diabetes-bariatric-sleeve-20110401

    "...In the meantime, Kaplan suggested a one-year respite from diabetes could be valuable for obese diabetic patients who need to improve their metabolic function before they can undergo needed surgery or radiation therapy."

    also see
    http://www.weightlosstriumph.com/endoluminal-sleeve-non-inva sive-alternative-to-gastric-bypass-to-treat-obesity-and-diab etes.html
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    ktbaker77
    Gainesville, FL
    Member Since: 09/03/11
    [Latest Posts]

    You do realize that with 500 + blood sugers you should be in the Hospital right?
    you WILL destroy your body in a year or two with sugers like that.  you need alot more insulin.  
    You  are commiting Sucide with your mouth right now.  If that is what you want then continue what you are doing.  If you want to live you must change.  
    it is that simple.  there are no other ways to look at this. 
    I was taking 100 units of Lantus twice a day and 80 Units of Humalog with meals and had an A1C of 7.6
    after VSG and loosing 86 LBS I now take 70 Units of Lantus once a day and no Humalog at all.
    A1C is now 7.0 and Dropping. 
    I also found that going Low Carb helps too.

    Your Choice
    eat what you want when you want and DIE
    take control and LIVE.
            
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    LosingSally
    Member Since: 11/25/07
    [Latest Posts]

    I would ask for DS weight loss surgery. And fight to get it.
    When I was on 2 types of insulin and couldn't get the sugar level down, I would cut all carbs for 2-3 days, and eat salads with SF dressings, and proteins like fish, chicken or beef. No fruit, milk, bread, rice, cereal, grits, potatoes of any kind, corn, dry peas or beans.
    This usually would allow me to wake up with a lower fasting glucose level, and easier to maintain throughout the day.Shooting for anything below 200 would be a good first target.
    Then add veggies back in slowly ( other than salad greens etc). This isn't a long term solution, but a quick way to lower the too high sugars.
    MY A1c was above 11 before surgery, and I used this plan to get it a little lower for surgery.
    Best wishes!
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    vkhill22
    Duluth, MN
    Member Since: 06/16/10
    [Latest Posts]

    I can relate. I've had type 1 for 23 years now. My A1C hovered around 10 for years. I even seizure with extreme lows. I wasn't living--I was dying slowly. I finally agreed to the insulin pump about 7 years ago. It truly saved my life!! I was so tired of being sick. I had to try something different. Please, please consider the pump. Its scary, I know, but can life-saving. I was not a good compliant diabetic patient so I got lots of lectures from doctors, but nowadays I think they are listening to their patients more. We are not perfect. We all eat differently and some of us have issues with food. Thats the reality. Before I had my gastric bypass last June, I had to work on getting my A1C down to 8. It took about 9 months of working closely with the diabetes nurses, but I wanted to lose weight so bad that I did it. I couldn't lose weight on my own and in fact gained 30 pounds without doing anything. Please look at your options in life and not give-up!! With my surgery, I've lost over 100 pounds within 9 months!! I still eat whatever I want, just smaller portions. If you need to talk more, my e-mail is vkhill22@live.com. Please take care-there is hope!!
        
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    BWB
    Member Since: 04/27/08
    [Latest Posts]

     You can add me to the list of diabetics that was not in control of my sugar level.  The preop diet helped tremendously and now 5 months out, I still have to take some insulin but not nearly what it used to be.  Metformin gave me  uncontrollable diahrea so that is out of the question.  Right now my fasting sugar is 130 to 150ish.  

    I agree with the other comments:  you need an endocrinoligist and I do too.  They are so booked up and so few and far between.  You will feel so much better when you get everything under control.
             
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