Post Date: 11/15/08 10:05 am Many of you know that I've been struggling with my Vitamin D levels from about nine months out. When a recent Dexascan came back as showing me to be osteopenic, my ob-gyn decided the best course of action was to send me to an endocrinologist. I saw him a month ago, and he gave me the pretty encouraging news that he figured most of this was reversible and correctable. He ordered a bunch of lab tests and told me he'd personally take a look at the Dexa and the lab results and give me a call. He called yesterday to inform me that my results were "striking." I do not have osteopenia, I have full-blown osteoporosis in my hips. My 24-hour urine clearance indicated that I am excreting zero calcium, and that I have hyperoxaluria - excessive oxalate in the urine. He told me that can not just lead to kidney stone formation, but kidney failure as well. Also, two months after increasing my dry D from 50 k IU to 100 k iu, my D levels went from a 24 to a 25, and my PTH levels have not gone down at all. This is the part that has me so disappointed - I really thought I had this matter taken care of.
Now for the confusing part. He told me he wants me to increase my calcium from 2,400 mg to 5,000 mg, or more, and that I should take it with my meals to increase my absorption. That means I'm taking 1,950 mg with my meals.....and this doesn't make sense after reading that one only absorbs 500 mg at a time. My thoughts are that I'm going to take less, every time I eat, as I eat all the time anyway. I am concerned about getting constipated with that much calcium, but he said to add magnesium. So.....mag oxide or citrate?? He also told me he wanted to up my D to 150,000 k iu a day, and would call in a prescription. I told him the prescription kind was packed in oil, and he seemed unconcerned. I explained my situation to the pharmacist, and she reiterated what I knew - that if you only absorb 20% of fats, you're only going to absorb 20% of the D. I was hoping to get the D by prescription because of the expense....I'd be able to get it for $5 if I had a script for it. I am going to be retested in one month and again in two months. He also told me that at this time it could be dangerous for me to begin on any of the osteoporosis drugs like Boniva.
I think that I need to find an endocrinologist that specializes more in vitamin and mineral deficiencies. I know that there is one down in Detroit that is a vitamin D deficiency specialist. I'm very worried about this. At 47, I am far too young to have osteoporosis and I'm really concerned about the long-term ramifications. If anybody has faced a similar situation, please help me out here!
Julie R - Ludington, Michigan
Duodenal Switch 08/09/06 - Dr. Paul Kemmeter, Grand Rapids, Michigan
HW: 282 - 5'4"
SW: 268
GW: 135
CW: 125