* Nicole *’s Posts

* Nicole *
on 11/24/21 5:29 am
Topic: RE: How Pushy is Pushy

I would ask what codes are they using for the lab work. Alot of ins likes to push back on anything WLS but usually if the codes are vitamin deficency and malabsorption its not so much of an issue.

But in short Kaiser just sucks in more ways than one.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 7/20/21 4:19 pm
Topic: RE: Old timers ?

Aug 2005 here. I stop in now and then.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 10/23/20 4:28 pm
Topic: RE: 15....15 years and a little...Long term vets a tad of input may be needed

Yeah most bariatric folk round my area dont have a clue about the DS. Even new dr didnt know but was so open to learning and listening. Including what labs I really needed.

But as for fat, Im full fat everything. I drown eggs in butter when I cook them, which I eat 4 each morning. I add butter to steaks, everything. I do not limit myself with fats at all. Maybe I need to eat more taco bell again, lmao.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 10/16/20 9:59 am
Topic: RE: 15....15 years and a little...Long term vets a tad of input may be needed

Im glad to chat a bit with the info I know and my experiences. But all in all the choice is yours. But glad to chat

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 10/16/20 6:51 am
Topic: RE: 15....15 years and a little...Long term vets a tad of input may be needed

Hey DSrs

Im around but quiet, dealing with alot craziness but nothing bad(none of it Covid). I have no regrets and truthfully most days my DS isnt even on my mind. Cause well life is "normal".

Now for my long term vets lets talk labs. I FINALLY found a family dr that listens. So I got indepth labs done for the first time in sorry to say 10 years. Ive had basic pulls and random checks but not a really deep pull.

For the most part everything is good. Yes even my D (103), yeah its a smidge over the high end of normal. So I take 1 D less a week now (50,000 iu 6 days a week instead of everyday). My labs truthfully are great besides 3 of them which all are a hair below low end normal. Thoes being my E, K and LDL (and total cholesterol in general). My diet is mainly meat and veggies. Some fruits. I do have to watch potassium levels of foods I eat, as I sodium waste and cannot let things get out of balance. But hey add more salt.

With the E, my alpha is 5.1 (according to my lab 5.5 is low normal) my gamma is 0.2 (0.0 is low normal so its a hair above). I never really supplemented it before but have started to. Even though I do eat many things rich in it (veggie wise).

My K is 0.15 nmol\L (.22 is low normal) again I eat plenty of veggies ri***** Ive started supplementing. I get retested on thoes in a few months.

Now Im actually more concerned about my cholesterol being so brutally low. Our body and brain does need cholesterol, its just in excess its not good. So my total is 104 , yeah I said it my total is 104. My LDL is a measly 38, which everything Ive read below 40 isnt too ideal but so few people deal with low cholesterol there isnt much info out there.

Opinions vets?

The kicker with this....and I point blank looked at my dr and said at the follow up. Look at thoes labs and look at me....dont match do they. And she agreed that you wouldnt think they were right. Im 5'9" and 228lbs(dont look it) in a size 12 jean but cant wear normal jeans as they arent big enough for my legs now, lol, damn weight lifting. So Im finally going to get testing done for the multiple connective tissue disorders that we think are at play.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 10/16/20 6:11 am
Topic: RE: Blank Slate Here, is there rapid weight loss with the DS procedure?

I was a young spry 22 years old when I had my DS. 15 years later I regret NOTHING. Yes there is a rapid weightloss period. The DS provides the ability to have the most "normal" way of life. My inlaws had no clue I had surgery till I told them about 2 years ago. And only reason I spoke up was because the hubbys cousin was having surgery and sadly they only knew misinormation about WLS in general.

While bathroom habits change at first, years out usually its 1-2 times a day. The number of being unable to work or afraid to go out is so small. And usually this can be corrected by diet (the usual culprit for bathroom trouble) or surgically if a common channel is too short.

And supplementation is not an option. Everyone is different in their needs and a close eye on labs is a must.

But each persons experience is different.

As for your friend, he is way early out. Fat stores estrogen so when losing early in the game for men they tend to lose drive as estrogen dump is real and basically "dillutes" testosterone levels. It will blance backout.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 8/24/20 5:53 am
Topic: RE: Would you do it again

Absolutely and only the DS. Im 15 years post DS no regrets.

And knowing what I know now about my crazy wacked out body, the DS was the only way to go. Im where I need to be trust me your body tells you, learn to really listen to it.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 8/24/20 5:38 am, edited 8/23/20 10:38 pm
Topic: RE: Anyone NOT have issues with vitamin?

Vitamin D is a battle for most everyone even non WLS folk just with the DS it can be a hair of a struggle more because D is usually absorbed in the duodenum.

But me personally my vites havent ever been an issue lab wise. I take 1 multi a day and 1-50,000 iu D3 as related to my DS (Im 15 years post op and no exactly DS related issues). Now I take a handful of other things but thoes are related to my multiple connective tissue issues. I have certain things that are more effected by the connnective tissue disorders more than my DS. But my Drs and me have found a "happy zone" that has been superb in my health. I cant take calcium, magnesium etc because my body is actually excessive on them. But I eat salt like its no ones buisness (usually 4-5,000 mg a day...no exaggeration, because I sodium waste something fierce. Which also means I have to be careful with my water intake or I flush to much out. Its a PITA, lol.

But like everything YMMV. No one person is the same as the other. Some have to heavily supplement, others are mid range, and then the rare that need little compared to others. You will find the right balance for you and soon its just 2nd nature on taking it.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 6/16/20 4:59 pm, edited 6/16/20 10:00 am
Topic: RE: Acid reflux burning near duodenum

While Im no dr but...

Reflux is usually because you are reacting to something you ate. Almost like an allergic reaction. (Not always the case but a usual culprit). I would never take PPI inhibitor but I have taken H2 inhibitors (zantac etc). But once I just stepped back and listened to my body about foods and what and I can cant eat, Ive minimized any reflux and just take licorice root (capsules) to keep the acid reflux down and GI tract happy. Its gotten rid of the bloating. So Im happy as can be and not pumping pharmacuticals down my throat anymore. Which some actually made things worse because Id react to fillers in the pills.

But if I want to stray from my safe foods, Ill take an extra licorice root for good measure.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 6/16/20 6:01 am
Topic: RE: What about exercise?

Patty pretty much said it.

The only thing that will hinder you is you. I powerlift and do HIIT. My surgery makes no difference other than must eat more protein.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 11/2/18 5:45 pm
Topic: RE: 13 years Surgiversary

Congrats Val!

Most days I forget I had surgery myself, including my own 13 year mark in Aug, lol.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 8/7/18 6:26 pm
Topic: RE: Any weightloss surgery grads from 2004?

13 years post op here.

And fighting the ******* that caused all my weight problems to begin with. My weight roller coasters 30lbs. But more than thrilled with my DS as it atleast helps keep things in check.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 8/19/17 3:51 am
Topic: RE: Anti anxiety drugs?

Out of curiosity have you tried the antihistamines? Any luck?

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 8/15/17 10:03 pm
Topic: RE: Anti anxiety drugs?

Truely it is kinda facinating. Just like Zantac, prevcid etc are not antiacids, they are H2 receptor blockers, H2s are mainly involved in the gastric system.

Ive had to really learn this stuff, and all the little known hormones that create and cause all the major known ones. Yay for autoimmune issues that cause over and under reactions.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 8/14/17 2:31 pm
Topic: RE: Anti anxiety drugs?

I know it sounds odd but if thoes types of meds in the past have not worked try claretin, zyrtec, zyzal etc. More of the new antihistamines. They really are not antihistamines, they are receptor blockers. The same cells that have histamine release also cause anxiety and depression from improper "hormone" balances. So the antihistamines actually help block thoes hormones from affecting you by blocking the hormone receptors.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 8/12/17 2:50 am, edited 8/11/17 7:54 pm
Topic: RE: Need to vent a small bit

The irony of MCAS is it itsnt just a histamine issue that it tends to be made out to be and is a bit deeper than the mast cell itself. And lucky are thoes who can use food to control it. But problem is its immunology based, and they have yet to find/separate the causes so it is lumped in MCAS. As there are many "lesser" known hormones that come into play that cause mast cell release. The human body isnt as easy as many try to portray it as. Esp this syndrome. And to be frank.... it ****** me off especially as an engineer, my life is knowing how things work separate and together for an efficent harmonie.

Small example is my current stomach issues. An example of histamine/excessive mast cell release driven is acid reflux. Which is an over production of acid caused by H2 receptors being told by histamine to attack. Yup I get it at times so I take H2 blockers when I have that. But the motility isnt driven by histamine, my acid production has been drastically reduced and slowed my motility by a failure of "lesser knowns" to make it to or effect the cells in my stomach to produce. So currently my cells refuse to act appropriately.

I cant do a heavy veggie diet...not even because of my DS. Heck my vites are vegitarian capsules and they can cause me GI distress. I take them till I start showing warning signs, I come off them for a couple weeks and slowly reintroduce. I stay on top of my labs big time. At times a low histamine diet actually causes me problems, because of low motility. Ive had life long gut issues, and many foods that most eat that cause weight gain, I can eat very little of. Been that way all my life.

Heck one high histamine food is actually more a help than a hinderance for me. That being pickles. Pickles and cucumbers are like mainstays in my daily food. Beef jerky is another. For me my body.tends to tolerate beef and chicken the best. Pork is a problem, when Im in the middle of a wane cycle is usually when Ill indulge in food that usually cause issue as I know they wont at that time.

Finally my stomach is comming alive...actually woke me up at 4 am growling. Cause yesterday I couldnt take it any more, my blood sugar was not staying as stable as I try to keep during this and my POTS was really starting to give me fits. I ate eggs yesterday, I am allergic to them. Want my body to react eat straight eggs or get a non egg-free flu shot....Ill be out for days. Mixed in foods in small quantities not to bad as it has to do with egg protiens so many are cooked to where they dont effect me. As protiens change/breakdown when cooked.

But my DS is going no where as a reversal wont fix the issue. Actually my DS helps to minimize reaction since I no longer really use my whole GI track. But now 11 years later we understand why I had a blockage in my bypassed loop. Surprise surprise 1-5% of thoes with severe MCAS have unexplained blockages. No cause was ever found all thoes years ago, it perplexed my surgeon. Its stupid how everything adds up from infancy till now. My GI track is the most heavily effected part for me but I have it severe with excessive cell production with standard shed, my sisters also have it (hereditary and all) with one having more in neurological/arthric effect, the other more neuro/GI.

I actually in my research think there is something more linked in this. And fully believe it has more to do with incompatible genes/mutated genes than simple triggers. Studies are actually starting to notice a pattern of the same. Im a grade A Heinez 57 american mutt, and thoes mutt genes of mine I think hold the key to my issues.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 8/11/17 3:47 am, edited 8/11/17 3:49 am
Topic: RE: Need to vent a small bit

Yay wooohoo Im a DSer I can eat food and plenty of it.

Yeah till I cant....the last 4 days have been horribly frustrating for me. Ill be 12 years out on Tuesday. When your a DSer with MCAS...which carries all the same symptoms and effects as mastocytosis, just waxes and wanes and is not a constant state, lets just say it sucks.

MCAS gives me low blood sugar swings if I dont eat every couple hours. So when it also decides to give you low stomach motility, it seriously sucks. My intestines are growling but my stomach is like one bite love and its a bathroom run. Truely i have to force myself to eat some, usually with something of high acidity. Im gonna say this.... I HATE how much I have to eat in a day. I didnt eat like this pre-op. Yeah yeah calorie in calorie out can bite me at this point, thats out the window if your body is in a constant in flamed state of an autoimmune problem that whacks the starting standard hormones that set the stage for all the others we are more aware of off kilter. When the bodys reaction to food is not what it should be.

Ive been reacting to my vites lately so I am very careful with how many and much I take, yes I can react to things Ive taken and done for years. Only my Vit D holds steady.... well cause D helps in mast cell stabalization. Honestly folks learning the life of a DSer is a damn cake walk to MCAS, let alone a MCAS DSer. There has been only a small handful of studies with MCAS and WLS...all of them were band and RNY. The intricate details I have to know now, how they effect each body system and what I have to do to combat it, can be exhausting at the least. Luckily I enjoy learn such things.

So really what it comes down to Im hating food right now. Tastes great in my mouth, my stomach is telling me to go to hell, and my intestines & body are saying FEED ME.

UGH thanks for letting me rant. Im HANGRY as one can be and my body is calling me every name in the book for the last 4 days of maybe 500 calories a day. And my stomach is complaining of food being put in it.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 6/5/17 8:56 pm
Topic: RE: Returning oldie

Wow lots of oldies comming out of the woodwork, lol. Im around just dont post much.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 6/4/17 7:58 am
Topic: RE: How many years experience should Dr have?

Jim,

I know you are happy with your SADi and Im glad you are and it has worked well for you. But your still very new into yours also.

At the end of the day Its still an investigational procedure, with no real stats yet. And surgeons who get it covered by insurance are commiting fraud as they may be putting it down as multiple separate procedures, so not cool there. If self pay folks should be aware that many insurance wont cover problems from investigational procedures. Is what it is.

I do think it is a far smarter surgery than the RNY for a host of reasons. And maybe one day will replace it.

But I highly doubt it will ever surpase the true DS in results, esp thoes done with the Hess method.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 6/4/17 7:46 am
Topic: RE: 2 years post DS needing help

I like your primary Dr. I would agree with him. If you are struggling that bad your common channel could be too long or you werent given a true DS. In this case Id do what he is saying (its rare to have a good PCP like that, which understands the DS).

In the mean time get back to the nitty gritty, so Drs have few excuses to help.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 5/17/17 9:16 am
Topic: RE: Dating after weight loss

Well here it is for me. I was 22 when I had my DS. Im nearly 12 years post op now.

I didnt tell anyone I was dating. To me, Ill tell you if things get really serious as the choice to have surgery was not something I took easily. Truthfully I hated to have to have it but there was no stopping my body (mine was not a food problem, mine is autoimmune). And one of the big things for me with the DS was that I could eat like a normal person, with albeit smaller portions at first.

I have now been with the same guy for 5+ years. I didnt tell him about surgery till 2 years ago. So yeah I went 3 years without a word and he couldnt tell because my food types wetent restricted beyond my own food allergies.

So it is a choice of your own how soon or how long you wait to bring it up.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 5/2/17 10:34 am
Topic: RE: How many of you have ever experienced a bowel obstruction

I had an obstruction a year post op....so 2006....had ds in 2005. But mine was from my small intestine twisting..had to have 18 inches removed as it was nearly dead. And it caused me other problems.... severe pancreantitis and I cant remember what all else. I was in the hospital for near a month, ICU for 7 days of that.

We still dont know why it happened As #1 I barely scar, there was no scar tissue to cause it. #2 I didnt have "extra space" or voids in my abdominal cavity from weight loss. #3 no hiatal hernia or hernias (but got inscional hernias in 2007, but that is because of lack of enough scar tissue and not enough new tissue to support what I was doing), I have a large chunk of mesh on my abdomen wall now. Yet not a problem since.

I still dont regret my DS in the slightest

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 5/2/17 10:04 am
Topic: RE: Doctor has proposed Duodenal Switch

Ah the ole **** yourself stories....yeah Im calling it that. Thoes people need to question what they are eating if its that bad (usually carbs).

To be honest only people Ive ever know having such bathroom problems usually were not eating right. You may have looser stool but not omg im not gonna make it to the restroom, but I hear more complain of the opposite, lol.

Im shy of 12 years post DS and I wouldnt change it for nothing. Havent had any such issues with bowel movement. I go once maybe twice a day (morning/evening).

Eating....here is today so far

2x greek yogurts, 2 string cheese sticks, handful baked cheddar and sour cream chips (I have to have some starch or bread carb in the morning my stomach gets angry otherwise....long story as to why, and its not a mental issue)

Lunch

4 chicken fingers, 1/2 cucumber sliced with ranch to dip, black olives, 2 oreo cookies. Yup just admitted to eating 2 oreos....funny I bought a 4 pack.....its called moderation. But Ive already made it to 85grams of protein for the day.

Ans dinner is always protein and veggie

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 4/13/17 9:29 am
Topic: RE: When you still dont fit in.....

No need for sorry, if folks can learn from it I am good with it.

Yeah my POTS is more from the MCAS, and it cycles. As it doesnt always happen during a MCAS flare.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

* Nicole *
on 4/13/17 6:09 am
Topic: RE: When you still dont fit in.....

I know many could get confused by or misunderstand my original post. Cause as you see to even begin going into the hell that can be MCAS is insane.

I actually allowed myself to gain back to 220 from the 207 I was because I felt better at a heavier weight. Now that I know why that was the case I am carefully working my way back down to 210. I was much happier with my physical body there but I would live with the 10lbs if it helped me feel better. Its a give and take.

Worst thing is most all of what I listed really started to appear post DS. My fat controlled it prior, thus why I could gain so easily it was my bodies coping mechinism. So in a way I did have a coping mechinism just it was driven by my body not me. And it sure never drove me to eat, food has always been nothing more than fuel for my body to me, especially when you never knew what was going to give you the 3hr stomach aches from hell from eating. That is what makes it so hard to relate to people, most no one (drs included) would believe anyone in my family that eating wasnt my issue. Drs blowing your mother off as a "first time mother" when her child is cronically colicky for 10 months, crying 13-14 hrs a day unless when being fed (no she didnt over feed me either). I put family members in tears when they would try to baby sit to give my parents a little break cause I didnt stop crying. My parents were afraid for years to even think about another kid. My sisters are affected a bit different than me (not as severe thank god) but they are starting to show more issues than before and I fear for my nieces as its hereditary. Or a crazy thing when I had my DS, my surgeon was floored that 99% of my fat was skin deep. My abdominal wall was more that of a "normal" person I didnt have the fat around the organs like many do. I was litterally in a fat suit. I didnt need a full tummy tuck, just skin removal. My abdominal wall wasnt stretched. *sigh* to get into all the off the wall things my body does.

So yes it can make me hot under the collar when people "blow it off" like Im lying about my eating and how I got fat. So I do my best to understand that things have been so engrained by society and doctors as to why things happen like its a for sure thing. Medicine is a practice, that constantly is evolving. And there will be cases that dont fit the standard molds.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

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