•  
Share |
Post Reply
Author Message


Melly6950
Revision (04/25/12)
Member Since: 10/20/07
[Latest Posts]

i was told today that after 4 years there is a leakage (which is why im gaining weight back) in my Fobi pouch and i'll need a revision. Is there anyone else that falls into that 5-6% of patients that has had a revision and can tell me how they are doing afterwards?? thnks :)
Reply to This Post Quote Post


Lorrainecma
Member Since: 11/07/10
[Latest Posts]

Wish I could help, but keep us updated. There are so few ppl that post on this board. I would really love to hear from others who have had Fobi pouch.

I am so sorry that you have a leakage. Hope that it all works out.

Lora
    
Back to the top Reply to This Post Quote Post


Sheilatholland
Member Since: 11/30/11
[Latest Posts]

I had my Fobi Pouch surgery nine years ago and now have a leak.  Also, my ring is enbeded into my pouch/small intestine.  I am in the process of scheduling surgery.  I hope I can afford it. 
Back to the top Reply to This Post Quote Post


Melly6950
Revision (04/25/12)
Member Since: 10/20/07
[Latest Posts]

I am trying to get my insurance to cover this as a 'revision'. The revision is basically the intial surgery done all over again, so i'm really pretty bummed. I should hear back from my insurance by Dec 15. The weight just keeps on creeping back on and it's really depressing. I hope things work out for you too!
Back to the top Reply to This Post Quote Post


quilter.teri
VA
Member Since: 01/28/12
[Latest Posts]

Thank you for your post, I had my surgery done in 1998 by Dr Fobi and have just developed a sharp pain near original drainage incision. I have moved to VA since my surgery and I am in the process of finding a surgeon familiar wih the pouch. I have a gut feel (no pun intended) this is going to bring on a revision for me. I've lost 190# and have kept 150 off. So I am ok with that. Please let us know how you are doing.  
Back to the top Reply to This Post Quote Post


EileenAZatgoal
Anthem, AZ
Member Since: 05/03/06
[Latest Posts]

I am glad that you found about about the fistula.  I had the same procedure in 2001 and have been afraid to have anything done,  I have noticed that my stools are thinner though, whhich I hiope is not from a stricure in my intestines.  Did you have the siastic ring repaired.?  Or did you have one to begine with?  I had that put in as it was what my sureon was doing at the time.  He has retired, so I have to find another surgeon who will do a revision.  Not many will, unless they were your original surgeon, I am finding out here in AZ. 
Back to the top Reply to This Post Quote Post


ItsJustBeachie
Middle River, MD
Member Since: 04/17/10
[Latest Posts]

Hi, I'm seven days post-op from what was to have been a "revision" to my Fobi Pouch which was performed by Dr. Fobi in 1992.  Although the whole weight gain, etc. was NOT due to the Fobi procedure (Bless Dr. Fobi!) but due to a fistula forming that reconnected the pouch to my former stomach and caused the  hunger hormones to be released (I consider that a matter of sh*t just happens and get over it), I am walking your path. 

Kuldeep Singh, MD did my procedure and was the only one of three with any "familiarity" of the Fobi pouch in the mid-Atlantic *****turned my calls. He'd never "revised" a Fobi and just flew by his brilliance and the seat of his pants, CT scans, an Upper GI, and my complete faith in him.

My procedure ultimately involved the repair of a huge hiatal hernia (undiagnosed by Kaiser), the removal of my gall bladder (there was sludge and surgery would eventually become necessary), and the disconnection of the tissue.

I have about six incisions, it only looks like stitches were required in one but the steri strips still cover all but one.  The drain came out on day 3 and I was sent home sans drain (thank God).  On Day 1, post op, I felt like I'd been hit by a car, Day 2, a Mack truck, Day 3, car, by Day 4, smaller moving vehicle.  The worst of the pain seems to come from my lower right abdomen and happens depending upon how I move which makes rolling over in bed something awful.

Diet wise, I am NOT hungry and the cravings are gone - hurray for the hormones being gone.  I'm being kept on liquids for two weeks to be on the safe side but I really don't miss much.  I've got my supply of Whole Foods 365 protein powder, soy milk, and Naked Protein Zone or whatever it is called.  I've learned how to make refried bean soup (little beef bouillion, taco bell hot sauce).  I am sticking to the same things I am sure of and adding little by little.  I would like some Whole Foods Tomato Bisque - maybe I can get my son to go pick up some tomorrow.  If I feel up to it, I may venture outside the house and take a walk down the block to the store tomorrow. 

The pain is the hindrance to the physical activity but I am home alone so I do have to do much on my own.  I've gone downstairs to visit my neighbors a couple of times.  I've done some minor household chores according to how I feel.  My biggest frustration is related to the pain and the limitations that come from it.  I'm on morphine which limits my ability to think which means I can't THINK. If I can't THINK, I can't RESEARCH, I can't WRITE.  So my "real" life is put on hold.  But thank God for morphine.   

I am still quite swollen although nothing like when I came out of surgery.  I know I've lost weight but the weight loss doesn't show in my mid section where I needed to lose it yet. 

I'm using myfitnesspal.com to log my food which is a requirement prior to my follow up with Dr. Singh next week.  I haven't had any dumping, no nausea. I will give you one very useful bit of advice. You can have STOMACH FREEZE.  It's akin to BRAIN FREEZE over cold? LMAO.  Since I can only drink down so much which makes the protein requirement had to do, I've been using less liquid in the shakes but really really wanted lots of ice yesterday.  I took a blessful swig and just wanted to cry.  Oh well, trial and error. Ha Ha  It could be worse. I AM laughing.

Kate

Back to the top Reply to This Post Quote Post


Melly6950
Revision (04/25/12)
Member Since: 10/20/07
[Latest Posts]

i appreciate all the support from my fellow bypassers! after longer than expected and having to find an alternate but also wonderfully qualified dr, i am scheduled for a revision on 4/25! i realize how blessed i am to be able to do this for a second time around with hopefully a much better outcome. only time will tell. thanks guys. i will keep you all posted! :)
Back to the top Reply to This Post Quote Post


EileenAZatgoal
Anthem, AZ
Member Since: 05/03/06
[Latest Posts]

You are welcome.  Is Dr. Fobi still practicing?
If he is, could you please give me the information needed to contact him for an appointment.  The surgeon I had has retired.  He had studied with Dr. Fobi and Dr. Rouex in France.
Back to the top Reply to This Post Quote Post


Fobi052000
Member Since: 05/02/12
[Latest Posts]

Hi,  do know that Dr. Fobi is still in practice.  My son just had surgery by him in Dec 2011.
He is located at Hawiian Gardens, Ca.. at Tri Cities Hospital.  I also had surgery with Dr. Fobi in May, 2000 and am now gaining weight.  I am wondering what options I have and is a revision something to consider.  I live in Upstate NY, and traveled to California for my surgery but would like to fine a surgeon here in NY.  Any help would be appreciated.
Back to the top Reply to This Post Quote Post


EileenAZatgoal
Anthem, AZ
Member Since: 05/03/06
[Latest Posts]

I had the fobi pouch surgery done in 2001.  I have heard that the silastic ring needs to be removed.  I am afraid to even have tests done to see what is going on inside.  I have good and bad days with foods.  Some days I can eat a small meal, and then some I can only eat soft foods.  I still vomit up mucus at the end of a meal and some foods that do agree with me one day, don't the next.  Can you tell me what tests need to be redone to check out the status of my pouch?

Back to the top Reply to This Post Quote Post


Melly6950
Revision (04/25/12)
Member Since: 10/20/07
[Latest Posts]

Sure. I had two procedures done. The endoscopy which is with the camera down your throat and an upper GI which is the barium swallow. The upper GI is the actual procedure where Dr Fobi saw my gastro fistual. Those would be the two procedures to tell if there could possibly be a problem. You may want to find out, in case it leads to something more serious. Please keep me updated and I'll do the same. Good luck :)
Back to the top Reply to This Post Quote Post


Skuldaki
Member Since: 03/29/12
[Latest Posts]

 I had the fobi pouch done seven years ago and have run into problem this year. I constantly through ump I'm underweight have lost 15 pllus pounds this year. I saw a gastroenterologist he is concerned about my ring. I'm going to dr fobi on Monday. My gastroenterologist believes the ring is responsible for my stricture and I won't be able to eat gastric bypass normal until after it is removed. I pray insurance covers this I am also worried about missing work.
Back to the top Reply to This Post Quote Post


Melly6950
Revision (04/25/12)
Member Since: 10/20/07
[Latest Posts]

sorry about the late response. did you end up going to see dr fobi? hope all went well :)
Back to the top Reply to This Post Quote Post


Skuldaki
Member Since: 03/29/12
[Latest Posts]

 I saw dr fobi. I had an obstruction caused by the ring. They removed it. Now I'm paranoid I'm going I gain weight back. I am still in flux and have a hematoma but I am strictly watching what I eat. I weigh 135 now and I'm hoping to balance out at 130 to 125. Thanks!
Back to the top Reply to This Post Quote Post


Fobi052000
Member Since: 05/02/12
[Latest Posts]

How did you know that you had a leakage?  I had the Fobi pouch in 2000 and have gained about 60 pounds and am so upset.  Seems I am hungry all the time.  I am very interested in getting a revision and was looking on some information of Drs. that will do one on the original Fobi Pouch?  I traveled out to California for my original operation but live on the East Coast in Upstate NY and am hoping to find someone closer that will help me.
Any suggestions/ thoughts would be appreciated.
Back to the top Reply to This Post Quote Post


Melly6950
Revision (04/25/12)
Member Since: 10/20/07
[Latest Posts]

Actually i was gaining more weight back then i should have been and i was only 4 years into the surgery. That was the main reason i decided to see if that was normal, which it wasnt. dr fobi did tests and sure enough they saw my fistula, basically my stomach was separating into 2 pouches causing me to have 2 stomachs. Unfortunately due to insurance issues dr fobi was not able to do my revision (thats a whole other story). i did have a wonderful dr (DR Leport) here in Fountain Valley, CA perfrom my revision just over a week ago 4/25. There were more risks involved in this surgery, as after surgery the dr told me, he performed the correction of the fistual, removed a small part of my stomach and also removed scar tissue lesions..3 procedures in all. If you are planning to go through your insurance i will say it was a small battle to find someone that is able to revise a fobi procedure since it is a bit different than normal bypass. If you dont have a leakage most doctors will point you toward the band over bypass and it seems insurance is less likely to approve those these days. I am now 7 days into my revision and have lost nearly 10 pounds. Hopefully progress will continue and i can get to where i need to be. I hope this information helps. Let me know if you have any other questions..and good luck! :)
Back to the top Reply to This Post Quote Post


Fobi052000
Member Since: 05/02/12
[Latest Posts]

I was out to see Dr. Fobi and had the endoscopy to see if my stommach had stretched and it hadn't..   They didn't see anything about any fistulas?  Is that the test they did on  you?  I have a feeling because no one here on the East Coast knows of Dr. Fobi that I will have a hard time finding a Dr. that will do anything?  I am not familiar with the band over bypass?  Is that dangerous. 

How are you feeling after your surgery?  I'm scared but hate the thought of being FAT again.  Seems like I have fought this all my life.

Thanks for replying it means a lot to me.

Back to the top Reply to This Post Quote Post


Melly6950
Revision (04/25/12)
Member Since: 10/20/07
[Latest Posts]

No problem. Yes, they did an endoscopy which showed the fistula. But the fistula is very very rare and only happens to a small percentage of patients..i just happened to be one of those people. Band over bypass is actually a much less invasive procedure and requires less time for recovery. They actually do the lap band over your already bypassed stomach, making it even smaller. Carnie Wilson recently had this done and documents it on her new tv show. This was something i would have considered if i didn't have the leakage.

I am feeling pretty good so far and moving around as much as possible. The pain and discomfort is no worse than the first time so at least i knew what to expect. Right now the mental part seems to be getting to me..what i wouldnt give for a cheeseburger or some pizza right now. I have also fought this as a life long battle and i know its not going to be easy. I'll continue to stay positive and hopefully rech my goal soon! I hope the same for you as well :)
Back to the top Reply to This Post Quote Post
Share |
Post Reply