Before and After pics of legs
I recently got a scanner and am FINALLY able to put a real before picture of my legs online. I only had a photocopy from the doctors office.
Taken December 2001
Taken Feb 2003 before WLS-after Manual lymph drainage and compression wraps
Taken Nov. 2007 (pretty much what they look like now)
I must say that I really admire your courage to post those pics. It gives someone like me hope. My legs are really quite bad and I am having a horrible time trying to find treatment. I have made some strides recently but in Canada we are so limited on treatment for the severe lymphedema.
I just wanted to say thanks for putting yourself out there for others to see.
My own LE is extremely mild in comparison to yours... but it took 3 PCPs before a nurse practitioner at the last doc's practice did more than prescribe diuretics for me... even the Venous specialist I saw knew nothing about LE... just said there was no vascular reason for my leg swelling.
Scary sometimes how much the medical profession doesn't know.
I met a guy at my OT''s office who went undiagnosed for 5 years because he's actually thin and when he complained about the swelling/added weight he was told it's nothing to worry about he was just thin to begin with a little extra weight does him good. Can't win either way I guess...
BUT, I am concerned as I feel I have an addiction to food and do not want to become disabled. I am still quite active and only 37 so am thinking more and more about weight loss surgery.
Thank you so much for responding to my post....it is difficult to locate info on lipedema much less lipedema and weight loss surgery (was your surgeon familiar with lipedema?). neither my PC physician or my gynecologist had a clue.....
p.s. i hate looking at my legs too.....and i used to have such nice legs even when I was chubby!
The first time I heard lymphedema was from my GYN, years ago. My WLS was mildly knowledgeable about it, he was at the same hospital (Ohio State Medical) as the doctor who I finally sought out for help with the lymphedema...a vascular surgeon who got me a pump, and suggested MLD from a physical therapist...he NEVER mentioned lipedema...a friend who I met on here and/or a yahoo group had lipedema and of course it sounded like what I had also. When I moved to Miami 5 years ago I saw a lymph specialist Dr. McDonald and he told me first thing...you have lipedema and lymphedema then asked if my WLS had told me surgery would only help me lose weight above the waist...well of course he didn't tell me that...but honestly the weight loss above the waist has at least reduced the pressure on the lymph system...and the LE is better managed....the lipedema...ah well...who knows.
on 1/16/10 1:56 pm - United Kingdom
Until my doctor noticed my ankles once when visisting her in a dress, then she sent me for tests etc and diagnosed lipodema, ok now we have a name for my large legs and batwing arms.
I had some lyposuction in the buttocks,thighs,stomach and had the fat cut off my arms, but that has all started to return .
Well done for putting the photos on and would be grateful as new member to know how you did it.
Hi Sarah, my name is Sara, too :)
I'm so happy for you that you not only had an amazing result but also finally got the correct diagnosis. I was diagnosed with Stage 3 Lipedema w/ Secondary Lymphedema in August of 2011 and I'm trying to spread the word, too. I had to travel 10 hours to see the right specialist, no local doctors had heard of it. It's very frustrating how few in the medical field have knowledge of it, especially since it was diagnosed at Mayo Clinic in the 40's.
I cried the day I was diagnosed because it was such a relief to learn that it wasn't my fault that my legs were so ugly. It's a heartbreaking, challenging, painful disorder to live with. The physical pain any time I do even a small activity is a nightmare. The mental anguish of not being able to participate in so many of life's pleasures is painful, too. Being misdiagnosed and treated by rude medical staff isn't fun either.
Learning more about this and finding others out in the world who live with it makes us all feel less alone, even though of course I wouldn't wish this on anyone. If any of you have daughters it's important to realize that they don't have to be big to have this. My daughter went with me to my appointment and she (doc) said that my daughter has the very beginning signs of it so hopefully she'll be able to prevent it from getting as bad as mine has. That alone made me cry at the thought of it! My daughter is being diligent about wearing compression garments already in her 20's to prevent worsening.
I can't find any that I can wear, they are way too painful for me to put on and I bruise horribly with each attempt. I have a generalized weakened connective tissue disorder of some kind that complicates it for me (causing a long list of other issues and contributes to the worsening Lipedema). I don't know how anyone could get those stockings on if they have even half the pain I do, it is just impossible....and I"m pretty tough with pain because I have MS and other issues as well. It's frustrating that they don't make them bigger than they do, I've tried to get them at max size which is way bigger than the charts say I should get and I still can't get them on. I've had to start wrapping my entire legs in ace bandages (so hard) if I need to go anywhere.
I'm so scared that this is as good as it will get but I can't give up hope. I am hoping to get better and get back to work as a nurse so I can spread the word in my work, too. Hopefully more education to all will bring more hope and better treatments in the future. Thank you for your posts, I know they are old and not sure if you're still around but I hope you're doing well.
Hugs to all going through this!
Sara you forgot your H.
You touched on two things I relate too very much, the relief of finally knowing it's now our fault, then the realization that if it's not our fault that also means there isn't much we can do to change it. And with that changing it, yes early diagnosis would have made life much easier, instead I was just deemed "fat" for so many years and just gained gained gained to a point with the lymphedema, etc a lot of damage is not reversible at this point. I wish your daughter the best with early maintenance. While I can wear compression, not for very long, I notice the pinching etc makes me not able to wear them as long as I once did.
It is a very gently done special massage technique with bandaging or compression garments afterwards. It may provide some relief to you.
I have a massage therapist friend who has done this for me in the past. Think it is time to start again.
Good luck and I am thinking of you.