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on 12/13/17 5:45 pm
Topic: Lymphedema Mass Removal?

I am currently about 9 months post-op from having a gastric sleeve done. I have been living with lymphedema of the lower extremities since I was 23 (going on 7 years now). At my highest weight I was around 545 lbs and currently I am about 255 lbs.

Along with the extreme weight loss that I have had in the last year or so, my lymphedema has improved dramatically but I still have swelling in my legs, but specifically in my thighs. I wear wraps on my feet and legs but cannot seem to get them to stay on my thighs and they never work on that area of my legs.

I currently have a localized lymphedema mass on my inner right thigh and it was bigger before. With some of the weight loss, it seems to have gotten a bit smaller in size but it is still pretty and now seems to be a pendulous mass that hangs in my inner thigh and gets in the way when I walk. It is not too painful, but basically affects my mobility and I tend to have issues finding pants that will accommodate for room to fit the mass.

I recently went to speak with a plastic and reconstructive surgeon about the possibility of removing this 5-10 pound pendulous mass of lymphedema from my thigh and he seemed to feel that it could be done. At the moment I am still considering going through with this but am taking some time to think about the recovery process and what will happen once I have this done. I am hoping to decide on something after the New Year.

Has anyone had any lymphedema masses removed from any parts of their bodies, either pre- or post-op? What were your experiences like? Any suggestions or advice on this topic? I would appreciate if anyone could share their story.

Thank you! :)

on 3/23/17 5:44 pm
VSG on 10/25/16
Topic: RE: help help help

I didn't notice the date on the OP.

on 3/23/17 5:44 pm
VSG on 10/25/16
Topic: RE: help help help

This is the local number for Toledo Ombudsmen. They help people in LTC faculties access care:

Region 4 - Toledo Area
Serving Defiance, Erie, Fulton, Henry, Lucas, Ottawa, Paulding, Sandusky, Williams & Wood counties
Stacey Premo, Advocates for Basic Legal Equality
525 Jefferson Avenue, Ste 300
Toledo, OH 43604

Also try this:

Lucas County Board of Disabilities 20 N Saint Clair St
Toledo, Ohio 43604

(419) 244-6632

They can direct you to the right resources.

on 3/20/17 10:48 pm
VSG on 10/25/16
Topic: RE: "25-Year-Old Aspiring Model With L/E Speaks Out"

Interesting. I have had never thigh pain when ever I wore anything right for years and now that I've lost some weight I can feel painful lumps in my thighs. Especially the upper thigh. I have lost 1 0" from my waist and almost 5" on my upper arms and almost 4" mid thigh but less than 2" off my upper thigh. I am at a loss about that to do and was considering lymphatic massage.

on 11/20/16 8:07 am - las vegas, nv
VSG on 03/13/13
Topic: RE: Welcome! Introduce Yourself

Hello! My name is Sandra Dee, residing in Las Vegas since December 2013. I had Gastric Sleeve surgery March 2013 and lost 200 pounds after weighing in at over 600! I got formally diagnosed in December 2015 with Lymphedema and two months ago, Lipedema. I was told that Lipedema is hereditary. I had all of this excess skin in my thighs and stomach and my thighs and stomach are now huge...I still have excess skin between my legs slowly filling up! I just cry all the time in pain! I was so happy to be able to go to Kohls and get my Jennifer Lopez dresses off the rack! Now, my clothes are getting tight again due to 75 pounds of fluid buildup!

I am doing treatments finally!

on 8/2/16 1:53 pm
Topic: RE: June is Lipedema Awareness Month

Careful, not alot of doctors can do this. Only a handful world wide. If the doctor performing the procedure messes up you end up getting bigger over time and not having fixed or halted the problem. Due to damaged deeper lymph.


Sometimes, you get what you pay for. And you can fight the insurance for re-imbursement due to medical ness. if you have all the i's dotted and t's crossed.

on 8/2/16 1:49 pm
Topic: RE: "25-Year-Old Aspiring Model With L/E Speaks Out"

on 2/26/16 8:32 pm, edited 2/26/16 8:48 pm - Garland, TX
Topic: "25-Year-Old Aspiring Model With L/E Speaks Out"

 Wow ..  what an inspirational story from Inside Edition for those of us with L/E!:   s-double-the-size-of-the-other-but-her/21318291/?icid=maing- grid7%7Chtmlws-main-bb%7Cdl20%7Csec1_lnk3%26pLid%3D242341076


  She claims in the article that liposuction can help correct her LE condition, if she can ever afford it ..   I have never heard that lipo can help us, though ..   Anyone?    

Frank talk about the DS / "All I ever wanted to be was thin, like that Rolling Stones dude ... " 

 HW/461  LW/251 GW187 CW/315 (yep, a DS semi-failure - it happens  :-(    )

on 12/9/15 8:32 am - Portsmouth, OH
Topic: Contact your Senators to cosponsor Lymphedema Treatment Act!

The Lymphedema Treatment Act has been introduced in the Senate so now is the time to ask your Senators to cosponsor this very important piece of legislation. We have 170 cosponsors in the House of Representatives!

Wonderful news - Senator Maria Cantwell (D-WA) along with Senators Chuck Grassley (R-IA), Mark Kirk (R-IL) and Chuck Schumer (D-NY) have introduced the ?Lymphedema? Treatment Act in the Senate!

It is extremely important that your Senators hear from you. Please contact your Senators to ask them to cosponsor the Lymphedema Treatment Act!

We've made it easy to contact your Senators and Reps:

Step #1 - E-mail your Rep & Senators - template letter provided, just fill in your name and address and personalize the letter if desired.

Step #2 - Call your Senators - talking points, number to call, and staff member to ask for provided - this step is so important!

Step #3 - Call your Rep - talking points, number to call, and staff member to ask for provided - this step is so important!

Step #4 - Contact your Rep & Senators Via Social Media - links for accounts and sample tweets and Facebook posts provided.

*Repeat Steps 1-4 As Needed!

I have Lipedema and Lymphedema. I also have a passion for Obesity and Health Insurance Advocacy

Blog: Facebook: Born2lbFat Twitter: @born2lbfat

on 12/9/15 8:32 am - toledo, OH
Topic: RE: help help help

no this nursing home dont provide that

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