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zoozie
on 8/13/18 6:34 pm
VSG on 05/23/18
Topic: RE: Help please

I can relate.. I have colitis and I am on a ton of meds. I had major worries about getting surgery on a part of my body that was already in crisis. I have been on prednisone for years and on a 20mg daily dose daily. So I never really lost weight presurgery and had many conversations with my primary, gastro, surgeon, and pharmacist. It's scary, really scary, I worried about what effect the prednisone would have, like would I even lose weight while on it, but the benefits outweighed the risks and I just could not gain anymore. This was an option that could possibly help and I couldn't refuse it. All of that said, I teased all my doctors about me being a train wreck and a challenge. Thankfully they all took me on and I am post op and losing. I say talk to your doctors...ask all the questions and really think about it...but i would guess you will find it will be worth it. best of wishes

zoozie
on 8/13/18 6:33 pm
VSG on 05/23/18
Topic: RE: Help please

I can relate.. I have colitis and I am on a ton of meds. I had major worries about getting surgery on a part of my body that was already in crisis. I have been on prednisone for years and on a 20mg daily dose daily. So I never really lost weight presurgery and had many conversations with my primary, gastro, surgeon, and pharmacist. It's scary, really scary, I worried about what effect the prednisone would have, like would I even lose weight while on it, but the benefits outweighed the risks and I just could not gain anymore. This was an option that could possibly help and I couldn't refuse it. All of that said, I teased all my doctors about me being a train wreck and a challenge. Thankfully they all took me on and I am post op and losing. I say talk to your doctors...ask all the questions and really think about it...but i would guess you will find it will be worth it. best of wishes

spiritwolf32
on 7/15/18 12:36 am
Topic: RE: Help please

I'm sure I will forget some things but my advice is to first make sure you can still take your meds once the weight loss surgery is done. I was told by my doctor that some medication of mine had to be stopped or switched. Of course from the date of your post you may have already done that.

I am not sure about the meds you are taking but you could check to see if there are alternative medications that won't cause all those side-effects. Being on medications that causes weight gain seems hard.

Just keep working closely with the doctors and nutritionists if available. It seems to me that if you lost weight before and were on those same medications, then it could happen again. The main goal will be to maintain the weight loss until you reach your goal and then to keep it off.

I'm sorry if this doesn't help but I think a doctor would be better suited to answer this one. Good luck with everything. I hope it all works out.

spiritwolf32
on 7/15/18 12:28 am
Topic: RE: Lymphedema Mass Removal?

This is several months late but maybe it will help others.

I have Lymphedema, mostly on my thighs. I have large masses hanging on them but my whole left leg is swollen all the time. I had a very large mass on my left side and a small one on my right, both on my abdomen, which I had removed before my weight loss surgery because it was hindering my mobility too much. The mass on my left side weighed 33 pounds and the smaller was 4 pounds. Recovery was hard for the first week, but it was well worth the surgery. It not only removed the pounds but I can now get up and down much easier.

I also have a mass on my left breast which bugs me and I am hoping to have it removed one day.

I am having another mass removed from my upper thigh on July 20th this year. The mass hangs over my knee causing a lot of pressure which is also keeping me from walking much. I am nervous, but looking forward to having it gone. The rest of my Lymphedema will most likely wait until I reach my final weight loss goal, but I don't regret what I have already had taken off and what will be removed later this week. It does help tremendously with mobility. Just make sure to talk to your doctor and together decide if it's the best option at the time.

Ludimay-may
on 5/29/18 10:41 am
VSG on 06/30/18
Topic: RE: Welcome! Introduce Yourself

Hi, i'M Lindsay from Dublin, Ireland.

i have primary Lymphedema, officially diagnosed in 2005, and i'm Awaiting bariatric sleeve surgery

Ludimay-may
on 5/29/18 10:38 am
VSG on 06/30/18
Topic: Help please

I had a benign tumour removed in 1996 and since have had many problem & am on numerous meds which cause weight gain & fluid retention. I fell in 2005 & was diagnosed with primary Lymphedema.

i am due to have the sleeve surgery within the next month or so but I have many questions the doctors have failed to answer.

i have diabetes insipidus so i have to drink at 3 litres per day, i'm on steroids, which are regularly increased when I have infections causing further weight gain. I did lose just under 100lbs by healthy eating but have since put it back on due to illness & meds so i'm hesitant about getting surgery.

can anyone give me advice?

Ludimay-may
on 5/29/18 3:44 am
VSG on 06/30/18
Topic: RE: lymphedema after weight loss surgery

I'm suffering with leaking at the moment, how do you deal with it?

quutgrrl
on 2/23/18 1:08 pm
Topic: RE: ***ACTION ALERT*** Lymphedema Treatment Act Re-introduced

You GO Sarah!! I'm really proud of you for leading this ( necessary) charge ...

quutgrrl
on 2/23/18 6:05 am
Topic: RE: help help help

Yep... years later I hope he's OK. Please if you're around, update us !

Donna L.
on 12/19/17 12:36 pm - Chicago, IL
Revision on 02/19/18
Topic: RE: Lymphedema Mass Removal?

I have lymphedema. I have very few masses which is weird given that I was over 750 myself. Multiple women in my family died from lymphedema and so I am taking it very seriously.

Do you get treatment from a specialist? I would consult a lymph specialist, because often reconstructive surgery can damage the lymph tissue and exacerbate the issue. you may have to have it removed anyway though because over time the lymph transforms into fat deposits.

I use special wraps right now, and just ordered compression garments. They absolutely help and it's ridiculous the degree to which they do. I have lost 11 pounds since starting OT last week. Crazy!

I just got measurements taken for the custom lymphedema garments. Only one or two places in the world makes them and it's located in Germany. They actually aren't elastic, but are inelastic. This means they don't stretch...it sounds weird, however the improvement with the lymphedema is like night and day.

Get evaluated for lipedema too if you can, by a specialist. They have special liposuction they can do for that, which helps both the lipedema and the lymphedema. It uses water rather than the cannulas so it preserves the lymph tissue.

I follow a ketogenic diet post-op. I also have a diagnosis of binge eating disorder. Feel free to ask me about either!

It is not that we have so little time but that we lose so much...the life we receive is not short but we make it so; we are not ill provided but use what we have wastefully. -- Seneca, On the Shortness of Life

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