Most Active

Recent Posts

Sans1966
on 11/20/16 8:07 am - las vegas, nv
VSG on 03/13/13
Topic: RE: Welcome! Introduce Yourself

Hello! My name is Sandra Dee, residing in Las Vegas since December 2013. I had Gastric Sleeve surgery March 2013 and lost 200 pounds after weighing in at over 600! I got formally diagnosed in December 2015 with Lymphedema and two months ago, Lipedema. I was told that Lipedema is hereditary. I had all of this excess skin in my thighs and stomach and my thighs and stomach are now huge...I still have excess skin between my legs slowly filling up! I just cry all the time in pain! I was so happy to be able to go to Kohls and get my Jennifer Lopez dresses off the rack! Now, my clothes are getting tight again due to 75 pounds of fluid buildup!

I am doing treatments finally!

tina_renee
on 8/2/16 1:53 pm
Topic: RE: June is Lipedema Awareness Month

Careful, not alot of doctors can do this. Only a handful world wide. If the doctor performing the procedure messes up you end up getting bigger over time and not having fixed or halted the problem. Due to damaged deeper lymph.

 

Sometimes, you get what you pay for. And you can fight the insurance for re-imbursement due to medical ness. if you have all the i's dotted and t's crossed.

tina_renee
on 8/2/16 1:49 pm
Topic: RE: "25-Year-Old Aspiring Model With L/E Speaks Out"

http://lipedema-simplified.org/LipedemaCenterNYC.html

Batwingsman
on 2/26/16 8:32 pm, edited 2/26/16 8:48 pm - Garland, TX
Topic: "25-Year-Old Aspiring Model With L/E Speaks Out"

 Wow ..  what an inspirational story from Inside Edition for those of us with L/E!:    

 

   http://www.aol.com/article/2016/02/24/woman-has-one-leg-that s-double-the-size-of-the-other-but-her/21318291/?icid=maing- grid7%7Chtmlws-main-bb%7Cdl20%7Csec1_lnk3%26pLid%3D242341076

 

  She claims in the article that liposuction can help correct her LE condition, if she can ever afford it ..   I have never heard that lipo can help us, though ..   Anyone?    

Frank talk about the DS / "All I ever wanted to be was thin, like that Rolling Stones dude ... " 

 HW/461  LW/251 GW187 CW/315 (yep, a DS semi-failure - it happens  :-(    )

Sarahlicious
on 12/9/15 8:32 am - Portsmouth, OH
Topic: Contact your Senators to cosponsor Lymphedema Treatment Act!

The Lymphedema Treatment Act has been introduced in the Senate so now is the time to ask your Senators to cosponsor this very important piece of legislation. We have 170 cosponsors in the House of Representatives!

Wonderful news - Senator Maria Cantwell (D-WA) along with Senators Chuck Grassley (R-IA), Mark Kirk (R-IL) and Chuck Schumer (D-NY) have introduced the ‪Lymphedema‬ Treatment Act in the Senate!

It is extremely important that your Senators hear from you. Please contact your Senators to ask them to cosponsor the Lymphedema Treatment Act!

We've made it easy to contact your Senators and Reps:

Step #1 - E-mail your Rep & Senators http://goo.gl/3as5RV - template letter provided, just fill in your name and address and personalize the letter if desired.

Step #2 - Call your Senators http://goo.gl/mYMJMn - talking points, number to call, and staff member to ask for provided - this step is so important!

Step #3 - Call your Rep http://goo.gl/7nlccK - talking points, number to call, and staff member to ask for provided - this step is so important!

Step #4 - Contact your Rep & Senators Via Social Mediahttp://goo.gl/BQf9xs - links for accounts and sample tweets and Facebook posts provided.

*Repeat Steps 1-4 As Needed!

I have Lipedema and Lymphedema. I also have a passion for Obesity and Health Insurance Advocacy

Blog: born2lbfat.com Facebook: Born2lbFat Twitter: @born2lbfat

tynoryno
on 12/9/15 8:32 am - toledo, OH
Topic: RE: help help help

no this nursing home dont provide that

Sarahlicious
on 12/9/15 8:20 am - Portsmouth, OH
Topic: RE: help help help

Is the nursing home providing you treatment for your lymphedema? They should be able to have physical or occupational therapists perform MLD and compression wrapping, or at least get your a compression pump.

I have Lipedema and Lymphedema. I also have a passion for Obesity and Health Insurance Advocacy

Blog: born2lbfat.com Facebook: Born2lbFat Twitter: @born2lbfat

Sarahlicious
on 12/9/15 8:18 am - Portsmouth, OH
Topic: RE: ***ACTION ALERT*** Lymphedema Treatment Act Re-introduced

Dealing with the government is a long process, but at least in the end it will be fixed. Update now is we have 170 cosponsors in the House of Reps and the bill has been introduced into the Senate. So it's time to write your Senators.

https://goo.gl/6DwqQx

I have Lipedema and Lymphedema. I also have a passion for Obesity and Health Insurance Advocacy

Blog: born2lbfat.com Facebook: Born2lbFat Twitter: @born2lbfat

get2goal2
on 11/26/15 4:19 am
Topic: RE: help help help

Ty, I hope you've found support from a local group. Please check the social services and health support groups in your town. You're in my prayers

Tara

tynoryno
on 10/22/15 10:54 am - toledo, OH
Topic: help help help

hi im new to this site and i need help and guidance or an advocate to help me i live in a nursing home and getting out is limited now the lymphedema i have is causing me to do little activities i need help i have no support im far from my home town i just need help please and thank you so much for listening