Does anybody know a great RH or revision specialist?!

ashleyyy
on 11/17/16 6:53 am
with

does anybody know of a great, well educated, experienced reactive hypo specialist? Every specialist, endo I see that is coming with high recommendations doesn't have experience with how severe my RH is and doesn't know what to do.

im only able to eat literally 28 different things, It impacts my life so severely that I'm at the point where I need my surgery reversed, and/or part of my pancrease removed.

Does anybody know of a great endo who specializes in severe RH OR a great BS who is well versed in revision surgeries.. preferably in the Pa/Nj/va/DC/md area.

thank you!

* Nicole *
on 11/21/16 9:23 am, edited 11/21/16 1:26 am

I do not know the doctors name but if you go to caresfoundation.org and contact them they can help. As there is a Dr in NJ who is an endo but deals in far more difficult cases, such as Congenital Adrenal Hyperplaysia. Hypoglycemia is a major player in CAH, and while yours is RH that dr should have a better grasp on how to help, than most typical endos as they deal.more with hyperglycemia.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

ashleyyy
on 11/21/16 6:19 pm
with

thank you SO much! According to recent blood tests results my dr believes I might be going thru adrenal system fatigue, so this might be beyond helpful! I appreciate it! 

* Nicole *
on 11/22/16 9:46 am

Glad it may help. For the longest time it was thought I had PCOS but looks like I have CAH and its taking my adrenals diving to the point of non existant in some to now find out. Finding a good endo that can deal in adrenal issues not just weight, diabetic, and usual thyroid issues is very tough. Ive got 2 weeks to go till I finally get to see a complex case endo. Its been a 2 month wait.

DS Aug 15th,2005 @ goal, living life and loving it.

"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."

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