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 Lynn, MA (04/10/03) Member Since: 06/13/07[Latest Posts] | Post Date: 9/11/07 6:52 am Hello, Anyone have this? I was wondering if you've had success if you did. The procedure sounds more intense than the original surgery. I say this because I was up and about the same day after surgery, this procedure requirs sticking a tube down ones throat. I want to have this done but I was just wondering if it's really worh it |
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 Weymouth, MA Member Since: 08/25/03 [Latest Posts] | Post Date: 9/11/07 7:00 am CHECK BACK TO THIS FORUM IN A FEW DAYS; I AM HAVING THAT PROCEDURE DONE TOMORROW WITH DR. THOMPSON AT B&W HOSPITAL. MY ORIGINAL SURGERY WAS RNY GASTRIC BYPASS IN 2003 AND WAS PAINFUL TO RECOVER FROM AND I WAS OUT OF WORK FOR 6 WEEKS. THIS NEW PROCEDURE TAKES ABOUT AN HOUR AND THERE'S NO INCISION; THE STICHES ARE INSIDE YOUR BODY; IT'S SUPPOSED TO BE RELATIVELY PAIN FREE - BUT YOU DO GO UNDER GENERAL ANESTHESIA SO YOU WON'T FEEL ANY TUBE IN YOUR THROAT. ALSO, THEY ARE VERY PICKY ABOUT WHO CAN HAVE THE PROCEDURE - IT ALL DEPENDS ON THE RESULTS OF CERTAIN TESTS. GOOD LUCK! ANN MARIE |
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 Member Since: 08/10/07 [Latest Posts] | Post Date: 9/11/07 7:08 am Ann Marie- I sent you a message!! |
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Lynn, MA (04/10/03) Member Since: 06/13/07[Latest Posts] | Post Date: 9/11/07 7:25 am Thanks for your reply! I too had Gastric Bypass (Lap) in 2003. I felt absolutely no pain, but I'm nervous about that tube going down my throat so I will check back in a few days. How long does it take from your first call to them to get your procedure date? What type of test did yiu have done? How many test? All non invasive? Good Luck tommorow!  |
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 Columbia, SC Member Since: 06/03/03 [Latest Posts] | Post Date: 9/11/07 7:18 am I researched this procedure myself about 1 year ago and it was also on this forum. Some of the people who had this procedure said that it was not all it is cracked up to be. Many of them said that the results were not good. I think if you are looking for something than I have heard good results with the stomaphx procedure. Hopes this helps. |
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Lynn, MA (04/10/03) Member Since: 06/13/07[Latest Posts] | Post Date: 9/11/07 7:26 am Thanks for the inforamtion, do you know what hospitals in Ma do this procedure? |
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Florence, MA Member Since: 02/19/04 [Latest Posts] | Post Date: 9/11/07 8:25 am Hi check my Clinical trial thread. I had or think I had this done 1 week agao today. I feel great had no pain meds and am still on a full Liguid diet. Dr. T at BWC did mine in boston too. I will keep you all posted . I think this procedure is the same as stomaphynx in my opinion and thay are so new and each person is diffrent. WE all had other WLS and some of us had better results then others. I can say whay I know for sure is that both this and stomaphynx are non invasive compared to the other WLS. And I (talking only for myself) feel that alot of the success rate for this will depend on ME. I know that my stoma was enlarged 35MM and my pouch ins 6cm long and 3.5cm wide. the only thing that this trail is doing is my stoma. I have to stick with all the rules of WLS to a "T" and continue to make healthy choices. That is the only thing that will keep the weight off . LONG term success depends on ME. So I feel when people say it didnt work then for THEM it didnt. IT WILL for me. If you think about it not every thing works for everybody. I had Lap RNY 3 years ago Aug. 5th I lost 75 pounds and put 18 pounds back on and Istill need to loose 75 pounds more, That said lots of people had the same surgery and lost more and or all the weight and where very succussful.MY point after all this rambling is that please dont shy away from something that is so new. Look at it and if YOU FEEL IT WILL WORK FOR YOU THEN IT WILL. I was afraid that I would not loose all my weight aftewr lap RNY and guess what Ididnt. ITs all about positive attitude..... ok lemme get of my soap box. take care all |
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Lynn, MA (04/10/03) Member Since: 06/13/07[Latest Posts] | Post Date: 9/11/07 8:42 am Ok, you're right. Cna you direct me to the "clinical thread", it's not "easy" for me to navigate thru this site....Thanks!  |
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Florence, MA Member Since: 02/19/04 [Latest Posts] | Post Date: 9/11/07 6:42 pm HI this is from my post ..... Post Date: 9/8/07 7:59 am Hi all. Just wanted to let you all know I am in a clinical trial for a product called Endocinch (TM.) The Product is uesed approved by the FDA for treating GERD. (gastric reflux) and the company wants FDA approval for revision to gatric bypass pt with regain or inadequet weigtloss after gastric bypass. Dr. Christpher Thompson MD. Is the pioneer for Transoral surgery for things like gall bladder GERD and other GI problems. HE is the Principal investigator for study at Brighams and womens Hosp. in Boston but there are other hosp. that are doing it here is the addy :http://clinicaltrials.gov/ct/show/NCT00394212?order=1 You can call Brigims and talk with Michelle directly the phone is: 617-525-8266 or Kerri 617-525-7213 Good luck! |
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 WA Member Since: 05/05/05 [Latest Posts] | Post Date: 9/12/07 12:14 am As you can see in other threads, I had Stomaphyx. I believe Stomaphyx and this procedure you are talking about are similar, but not exactly the same. When the doctor put the tube down my throat, he made my stoma smaller by pleating it and putting in plastic fasteners to keep it pleated until the scar tissue forms and makes the pleats permanent (in about 1 month) Then he pulled the tube out about 1-2 inches and pleated again. So not only is my stoma smaller, but the pouch is smaller also. The other procedures whose name escape me, just make the stoma smaller. Now, this is not better or worse, just which do you need...smaller stoma (or outlet from pouch)...or smaller pouch and outlet? These are options depending on where your need is, stretched stoma or stretched pouch. My RNY was 15 years old and stretched. Good luck. It is so great to see more options becomin available. |
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Lynn, MA (04/10/03) Member Since: 06/13/07[Latest Posts] | Post Date: 9/12/07 5:13 am Wow, thanks for your posting!! Your posting is very well written and makes it things clearer to ME now. At this point I don't know what has stretched but it sounds like the procedure you had done will be very sucessful for you with regards to weight control. Making the Stoma and the pouch smaller sounds good.............Now I just have one question did you have to pay out of your pocket to have this done? Did you insurance cover this? |
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Bronx, NY Member Since: 12/04/01 [Latest Posts] | Post Date: 9/13/07 6:17 am Last Edit: 9/13/07 6:24 am Sorry, but I have to let you know you are giving mis-information about the "other procedure" which is called the EROS procedure for short. You can look at the photos below so you will know exactly what is happening. In the illustrations below, you will see that first the doctor makes the stoma smaller, and second reduces the pouch with sutures. This is the same technique as the Stomaphyx with using a different tool. I have seen both tools. The Stomaphyx has a straight-edged on the bottom so it cannot take up the stoma like the EROS can. Drs using the Stomaphyx makes the Stoma smaller by putting pleats of tissue over the Stoma to make a smaller canal. The EROS tool has a barrel at the end, and so it is easier to grab the tissue from the Stoma and make pleats around it. You can see from the photos below. My mother is having the StomaPhyx this Tuesday, and Im having the EROS Oct. 1st. I will let you know the difference in results. Thanks. 
EROS Stoma Restoration
  
EROS Pouch Reduction
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Member Since: 08/10/07 [Latest Posts] | lullaby123 has deleted this message. |
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Bronx, NY Member Since: 12/04/01 [Latest Posts] | Post Date: 9/13/07 6:38 am Last Edit: 9/13/07 6:54 am If the 10 hospitals that are doing the study include Dr. Bessler @ NY Presbyterian, Mt. Sinai Hospital in NYC, Brigham by Dr. Thompson in Mass., Dr. Bard who started the study, the Dr. in Chicago (cannot remember his name) etc.....they are supposed to reduce the pouch as well. Please read the info below from one of the links in regards to the study, thanks: "Weight regained after gastric bypass surgery may be caused by an enlarged pouch and/or stretching of the stoma, the opening between the stomach pouch and small intestine. The EROS Procedure is a new surgical option to treat weight regain in post-gastric bypass patients. The procedure uses FDA-cleared endoscopic instruments to decrease pouch and stoma size and recreate a restriction to encourage weight loss. It does not require surgical incisions. In the procedure, an endoscopic suturing device is introduced through the mouth. Sutures are placed in the stomach pouch and stoma to reduce their size which slows the exit of food from the stomach pouch, enabling patients to better restrict food intake and reverse their weight re-gain. The EROS procedure is expected to provide important advantages over surgery, including, minimal post-operative pain, fast recovery time, and no scarring." It does both, it reduces the stoma and the pouch. |
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Member Since: 08/10/07 [Latest Posts] | Post Date: 9/13/07 7:00 am I hope you're right. I'd love to have both the pouch and the stoma done. I was trying to get into the study for EROS being done at NY Presbyterian but I don't think my pouch is long enough. It needs to be at least 4 cm for their tools. When I called the Cleveland Clinic they said that the pouch only needs to be at least 1 cm for their tools. I'm wondering why the discrepancy? The only hospitals I remember that sounded familiar on the list were Vanderbilt in TN, The Cleveland Clinic, and Brigham and Women's. She rattled them off quickly. |
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Bronx, NY Member Since: 12/04/01 [Latest Posts] | Post Date: 9/13/07 7:26 am "When I called the Cleveland Clinic they said that the pouch only needs to be at least 1 cm for their tools." This doesn't make sense for any revision surgery. If your pouch is only 1 cm, you would not need a revision. Are you sure you have the correct information for what they are doing? My pouch is 5cm, and my mother is 6cm which is normal for a stretched pouch. Just a little concerned, thanks! |
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Member Since: 08/10/07 [Latest Posts] | Post Date: 9/13/07 8:16 am I went into see a surgeon for a possible revision because I can eat a lot in one sitting (as much as my husband almost) and then I'm hungry again 2 hours later. I had an upper GI last Friday and according to the doc my pouch is "normal" (I don't have measurements yet) and my stoma is "enlarged." He said my pouch is emptying too quickly and that's why I'm hungry all the time and my pouch won't stay full. That's all I know at this point. Today at 2pm I have an upper endoscopy that will give me specifics and see if I qualify for the study, anatomically at least. The way this study is being presented is for post gastric bypass patients with enlarged stoma, but I'll ask more questions today to see if they reduce the pouch too in some cases and if this is the same study being done at Mt Sinai and Columbia |
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Bronx, NY Member Since: 12/04/01 [Latest Posts] | Post Date: 9/13/07 8:24 am Oh okay. Yes ask if this is the same as the EROS because if it is the pouch is reduced also. I wonder what they meant by "normal" size pouch. My pouch is 5cm long and Dr. Garber said that my previous RNY surgeon is known for doing large pouches and stomas, or large stomas. Dr. Bessler at Columbia reviewed my endoscopy report and said by the looks of it, I am a candidate for the procedure. My pouch is 5cm and my stoma is 4-5cm wide. You will be fine today, take care. |
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Port St. Lucie, FL Member Since: 12/27/04 [Latest Posts] | Post Date: 9/13/07 12:04 pm I had the surgery 1 year ago with Dr. Thompson in Boston, I lost 40 pounds but he also said i needed to have my pouch done, they did not do the pouch then. I am thinking of the stomaphyx now, the Bard Endocinch does not staple like the stomaphyx, it stitches. My stitches only lasted about 7 months, right back to where I started from. He didn't have the clinical trial then, you had to pay. I would say that staples last much longer than stitches. You just need to decide which is best for you and really study everything. If I knew then what I know now I would have had DS |
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Bronx, NY Member Since: 12/04/01 [Latest Posts] | Post Date: 9/13/07 2:15 pm The Bard Endocinch does not sound like the EROS procedure. The EROS procedure is more like the Stomaphyx just using a different tool. The tools are slightly the same, the construction is different on the bottom. And the Stomaphyx uses fasteners and the EROS uses sutures. No one knows which will last the longest. Only time will tell, and it is too soon to speculate. |
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Member Since: 08/10/07 [Latest Posts] | Post Date: 9/13/07 3:47 pm I found out for sure today and It sounds like Donnabug cleared it up, but yes, the Endocinch procedure does JUST the stoma. Mt Sinai and Columbia are not included in this study-their procedure is more like the stomaphyx where they do both the pouch and the stoma. AFter my endoscopy today the doc estimates my stoma to be a little more than 3 cm and my pouch 4-5 cm (I'm pretty sure that's what they said but keep in mind I still had the happy happy drugs in me). They have to get actual measurements after the results are read. As of now I DO qualify for the procedure as long as I pass the next batch of tests next Friday. I THINK they said they reduce the stoma down to single digits...8 mm I think. I'm feeling sleep coming on again. Have a good nite all. |
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Florence, MA Member Since: 02/19/04 [Latest Posts] | Post Date: 9/13/07 7:47 pm Just to cleat it up about the Endo cinch and Dr, Thompson...You CAN have your pouch done too (now) BUT only IF you are In the Clincal trial Then you can ONLY get the stoma done. Dr. Tompson told me he could do that afer the trial if I wanted/ needed it. SO I hope that clarifys it for you cuz I wount want you to Misunderstand and forgo any possible options. I know that i have had to ask these questions also and asked for alot of clarification. |
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Metairie, LA Member Since: 08/23/07 [Latest Posts] | Post Date: 9/13/07 5:56 pm If your pouch was never used, it would not be stretched out, but you might still need a revision if your stoma was stretched out. At 4 months I had a stricture dilated and the doctor overdilated my stoma. Since then I have not lost much weight. I was evaluated for StomaphyX and my pouch is too small. Maybe one of the other devices will work for me. So you can have a small pouch and still need a revision. |
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Lynn, MA (04/10/03) Member Since: 06/13/07[Latest Posts] | Post Date: 9/14/07 4:54 am Hello, I wanted to say Thanks for posting this information, I found it to be very useful!!!! Good luck to you and your mom with your upcoming procedures and be sure to post on this forum you success!!!! You going to have to take some before and after pictures (smile)!!! |
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WA Member Since: 05/05/05 [Latest Posts] | Post Date: 9/12/07 8:52 am I paid out of pocket. My insurance is great about coverage for other things and saves me alot of money a year for various reasons, but it only covers RNY and as of the last few months, lapband. It is still on my credit card and have been approved for a home equity loan already. I will be able to begin my plastics soon, as this will help me get closer to goal. |
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