Chronic Pancreatitis and Gastric Bypass
I'm in some desparate need of help. I had my gastric bypass in 2006, now I'm having chronic pancreatitis and my doctors don't know why. Has anyone else had this happen to them? If so, did your doctor ever find the cause?
Thank you so very much,
I do hope you feel better soon. Losing weight is great, but not like this.
6 years out and maintaining 190 pounds lost!
“You don't drown by falling in the water. You drown by staying there.”
Feel free to email me!
I have the feeling that's what wrong with me, too. But no one want to do the ERCP because of the gastric bypass. They think it's not possible with my insides moved around. So glad your doctor was willing to try it. Are you able to eat normally or are you on a special diet still?
Was the surgery painful? How long did it take to recover from the spinchter of oddi surgery?
Lastly, thank you so very much for messaging me. It's terrible to feel all along. I appreciate you reaching out.
Google EPISOD. There are about 10 places across the country that are doing studies on patients that still have pains after having gall bladder removed. Because of the RNY, you wouldnt be qualified for the study, however, it would give you the best list of docs that do it. It just so happens there was one out here where I live, recommended by my regular GI.
Once the GI gets in, they do a pressure test on the sphincter muscle, place stents in the bile ducts for 2 days. Its about a 3-4 day stay in the hospital and once they remove the stents and you can handle food, they release you. The feeding tube cause alot of abnormal stomach spasms, especially after the procedure. It reminded me of being pregnant with my son and he was up and moving around inside. Recovery is about 3-4 weeks, but the worst is over in the first week.
Keep your chin up! Ask your GI for a referral to someone who is willing to do the ERCP. Maybe there will be someone in your area that has this special study going on. Their equipment is more technologically advanced then the average GI.
I have to follow an extremely low low low fat diet. No eggs, nuts.. (of course my major source of protein) but it has helped.
Prior to the procedure, the only way I could eat is if I took narcotics 1/2 hour first. The pain from the attacks was just too overwhelming. Now it only happens about 1/4 of the time..
Be persistent and dont stop until you find someone who is willing to do it!
Keep me posted on whats happening!!! *hugs*
Still waiting to see the specialist. My doctor wants me in the ER today, but I can't stand the thought of being in the hospital. I'd rather be in pain than face being inpatient.
Can you tell me more about the feeding tube? Was it through your nose? I'm wondering why they had to do that if it didn't serve any purpose.
Thank you so much for sharing everything with me.
Ok lets try this again.. lol.. without pictures.. I will post them on my website.
I dont know why your doc wants you to go to the ER unless your lab work is off the charts or for pain management.
The tube went into the front part of my abdomen (looking down at my wrinkly belly) to the left. It did nothing but hang out about 6 inches. I didnt have to drain it, feed thru it. It just kind of hung there.
It went into the bypassed part of my stomach, the old, unused part. It has to stay in place for about 6 weeks prior to the ERCP. This allows for a tunnel to form. Then the GI goes in thru that tunnel for shorter access to the pancreas, liver, bile ducts and sphincter. If we werent so rearranged, the non-WLS person gets the ERCP down the throat. However, with us, they would need at least a 7ft scope and they just dont make those.
After the procedure, the tube stays in for about another 3-4 weeks in case they have to go back in for anything. (comforting, isnt that.. LOL) It was very simple to take out, and I didnt have to be put out. The GI took it out, but the bariatric surgeon could have also.
I will post some of the pics on my website under my bariatric journey. the website is www.showmetheskinny.weebly.com
Hope that helps, good luck and keep me posted!
I dont know why, I thought you were on the west coast. Look into Hackensack Univ Hospital in NJ. My sis in law works in the endoscopy unit there. Two of the docs that she works for understood the procedure I was going thru and why the feeding tube was placed.
Hackensack would be about an hour and a half drive from you if you are near Albany. We spent 2 months up at Camp Schodack a few summers ago.
I can also get the names of the docs from her. They may also work in NYC. Either way, I know that they have the knowledge and technology to do what you need to have done.
I think one of the docs my sis in law works with is also from Beth Isreal.. that seems to ring a bell.
When did you have labs done last? my liver panel went skyrocketing prior to the procedure then came down instantly afterwards. If the pain level gets too much, go to the ER!
Glad to hear that the appt is coming up soon. Hopefully since they are a new place, they will have their act together!
Send me an email (firstname.lastname@example.org) I have the sheet from the GI with a diagram explaing the procedure.. maybe that would help the doc next week. I dont know that I would be able to put that on my website.. I scanned it and emailed it to my sis in law so she could figure out what they were doing to me.. lol!
Two gastroenterolgist can't seem to find a good way to get down through my stomach to do the procedure they need to do. (Endoscopic Retrograde Cholangiopancreatography).
There seems to be no other way for them to get biopsies, but they're worried about doing the actual procedure on me. In the meantime I'm in so much discomfort and pain. I'm losing more weight than I need to and am very concerned that it's pancreatic cancer.
Drs. offices aren't in any big hurry to get you in, the waiting of first this new specialist and then another is taking up what seems to be extremely important time.
They say this condition is NOT pancreatitis yet to have gotten this way I should have had it at least one time. Not to my knowldege and I really think I'd have remembered something so painful.
So very frightening and frustrating!
I'm two years out and had right side pain. After a week...it woke me in the night. I spent a night in the hospital for pancreatitis.
They don't know why it happened. I spoke with my surgeon and was told that it can happen and is usually brought on by poor diet.
I'm worried it may be chronic.
hope you're better.