Iron infusions and side effects
on 6/2/12 10:04 pm
Getting your iron level up should help your energy level but it may take more than two infusions to get your level up enough. Did you have those side effects after your first infusion? How many infusions are they planning to do?
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as far as the fatigure - fatigue is a side effect of iron deficiency and we take the IV iron to stop the fatigue but it doesnt happen overnight. most people go for 8 or 10 treatments and sometimes more depending on how low the levels are and how you respond = so you cant expect the fatigue to go away after 1 or 2 treatments. You are probably just experiencing the fatigue from your iron deficiency.
are you still taking oral iron? if so, that could be causing the GI problems.
on 8/3/14 7:45 pm
I have experienced the fatigue for every infusion. I am so discouraged to go back every time because I feel worse than I started out and something is wrong. My doctor continues to tell me I will fell better. I hve had the infusion prior and I stopped for one year because I could not take it. The key is to eat right. I have to get 15 infusion to get at a normal level and the infusions are done 2 times a wee****il I get to the normal level.
on 6/2/12 10:53 pm
I hope you feel better soon - I know the series infusions you are having are supposed to have less allergic reactions but they don't seem to have the immediate effects the one-off infusions have and they certainly cost a lot more in co-pays!
I hope you feel better soon ...
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Now after 3 1/2 years of absorbing iron great, I stopped. My hematologist didnt want to give me the IV iron because of what happened all those years ago. We talked about it and I explained that when I got it back then that I got 1 gram at a time and I was also highly asthmatic at the time which I am no longer. So, he decided to give it a try but at a tiny dose -
So, the usual dose they do now is 200mg at a time - 8 to 10 infusions (he said they dont do the large ones anymore because so many people had reactions like I did) - so I started with 50mg with major pre meds the first week and we did it in the hospital outpatient infusion center in case of a reaction, , then the second week I did 100mg, and last week I did 150mg. This week I will do 200mg which hopefully will be fine also. So, far all has been great. If all is okay this week at 200mg, I can start getting them at my hematologsts office in his infusions center rather than being in the hospital - it is still attached to the hospital but still easier.
I can say that I felt so much better after the 3rd one which was equivalent to the first one for the average person.
You are very lucky that you didnt have a reaction but it is a much more dangerous way to do it. If you search the internet, they dont even list it as an option.
Ask for Benadryl (spelling). I always got a bit of it right into my IV before the medication.
What med do are they giving you? I got Infed and it made me flush, made my nose itch and sometimes gave me a HUGE head ache. Getting the Benadryl stopped all that. You can also buy it yourself and just take if after the infusion.
I was 147 when I started infusions, now I am 150-155 depending on the day. I asked my doctor if it was the infusions, he said maybe since we have NO iron when we begin which decreases our blood volume and muscle mass. In any case, I did gain but it did not effect my cloths or anything, I think it was a good gain.
I feel 1 million times better now that I am normal again. Just has my last infusion last week. Side effects or not, it is the best thing EVER to feel good again.
I have never heard of them injecting the benedryl into the IV - premedications are supposed to be taken ahead of time so they are in your system and have a time to kick in before the IV iron gets into your system.
I take major premeds because of allergic reactions I had years ago - I take the follow meds at 24 hours prior, 13 hours prior and 1 hour prior
40mg prednsone, 50mg atarax (like benedryl) 300mg zantac
I would never take prednosone! OMG! That stuff makes me gain weight as well as boost my appetite feel like eating my arm off. I would rather suffer the side effects then take that drug.
The Infed worked wonders for me. WONDERS! I am back to normal and my infusion are over...for now at least!
When I took IV iron 10 years ago, I had such trouble breathing, I almost stopped breathing - I had to be admitted and was hospitalized for 3 days and ended up on high dose IV steroids, breathing treatments and IV benedryl and who knows what else. It was terrible. I was so iron deficient that I had to do it 3 times over the next 6 months anyway (They gave it in much higher doses then - 1 gram and now they only give 200mg at a time - so 5 times the dose) even though I was so allergic. They gave me the same premeds as I take now but the same thing happened but they did it in the hospital and it was done with my allergist and my pulmonary doctor present so they could treat me as the problems arose.
Then I didnt need it until now, 10 years later but my current hematologist was so affraid to do it that he started me on a miniscule dose of 50mg first and then 100mg, then 150mg. I was okay with those so this Thursday I get to have a normal dose of 200mg for the first time but the premeds are absolutely necessary. It is worth some prednisone to avoid 3 days in hospital.
I was also told that when people are allergic to one brand, they are supposed to be switched to the other brand. Years ago, I reacted to both Infed (iron dextran) and Venofer (iron sucrose). This time, they are using venofer since it causes much less allergic reactions. They have actually considered taking Infed off the market since it causes so many severe reactions.
on 8/3/14 7:40 pm
This has happened to me many times that I do not want to go back to the doctor to get the infusions. The doctor cannot explain why I am so tired at a greater level than when my iron is at a low level. I become so tired like kryptonite is holding me down that I have to go to sleep where ever I am.