2 1/2 yrs-severe stomach pain

gprc
on 7/1/06 7:07 pm - Leesburg, GA
Hi everyone, I just found this board and thought someone might have some answers. I am 2 1/2 yrs post op lap gastric rny bypass. I have had occassional severe stomach pains that I can't pinpoint any triggering incident or food. My dr has done EGD, gallbladder ultrasound, Hiata (sp?) scan to test gallbladder function and everything has come back normal. The pain is in the pit of my stomach and around to my back. I double over sometimes. It usually only lasts for a few hours, I have thought it may have been gas because I would go to the bathroom I would feel SOME relief.( I know..too much info-TMI). However, this time I went to lunch at Burger King w/ my father in law on Wednesday and had 1/2 hamburger & maybe 5 onion rings (i know... I usually don't eat fried foods) and had a diet coke over the next couple of hours I developed the same pain, but it became more & more severe. I called my dr, he's out til next week, got a "jerk" of a dr that told me to take more pepcid. I went to the drug store and asked the pharmacist. He told me Gaviscon liquid is fast acting, I took that and ALL of the following, Pepcid complete, GasX,Dulcolax (3),Milk of Magnesia, Nexium, then @ 2:00am after pacing the floors and not sleeping because of severe pain, I sent my hubby to Walmart for an enema & suppositories which did not help, then @ 6:00am he went and got Magnesium Citrate (the kind I had to clean myself out before surgery)I couldn't drink but about 2 oz because it burned when it hit my stomach. Anyway, long story short, by the time I took all of that I thought I would explode!!!! But guess what, it only helped a little. I had to get one of the drs I work w/ to give me a prescription for phenergan which did help me sleep the next night but didn't help the pain. I am now feeling about 80% better but had to eat a scrambled egg & piece of cinnamon toast it seemed to help but has started hurting more today. Anyone have any suggestions about what this could possibly be????
ConnienTX
on 7/2/06 8:36 am - Dallas area, TX
I'm not a doctor, but it sounds like it could be an ulcer in your intestine. I'm having this problem now and am taking Carafate, a prescription liquid that helps. Did they rule out an ulcer? Hope you get better. Keep in contact with your doc. Hugs, Connie
Charlie
on 7/2/06 10:10 am - Daytona Beach, FL
I had it also...more than once....felt like the worst gas I've ever had in my entire life....was in the E R with it once...it felt sometimes like it came in spasms. They can't find it..... My Gastric Surgeon says it is adhesions....and the ONLY way to pinpoint it is to have an X-Ray while you are in the worst pain from it...not a scan...not an MRI...but only an X-Ray....so the next time it happens to me...I'm off to the E R for an X-Ray. Phenegren helped me too.......and it also always started hurting the worst after I ate something..... I didn't have any burning though...and if you are...yep..could be an ulcer. Keep going to the Doc...MAKE them figure it out. Hugs Charlie
Butterfly Reborn
on 7/2/06 11:25 am
Hi! Allow me to clarify.......you doctor is telling you that adhesions will only show on an X-Ray when you're pain? I've had lysis of adhesions twice. They have NEVER showed on ANY test of ANY kind. They were only found through exploratory laparscopic surgery. I recently had an internal hernia repaired. I had every test in the book and that didn't ever show on anything either. Though, it was mentioned to me that some internal hernias can only be found on scans or other tests while in pain; however, some will retract once you lie down and they lay you down for all those test -- so then the point becomes mute. At any rate, the internal hernia and adhesions that I had repaired and removed would have NEVER shown on ANY test. I had three doctors pass me along because, "there is nothing wrong with you." I had to fly back home after a relocation to have my original WLS do the exploratory surgery and fix me. What is so scary is that the bowel was being strangulated and was traumatized. It could have died, become gangrene, and yes it could have even been fatal. There is more information on my profile including links to read about internal hernias and adhesions. Please inform and educate yourself as best as you can so that you can discuss all possibilities and options with your doctors. I hope you all feel better soon! Best, Vanessa
Charlie
on 7/2/06 11:34 am - Daytona Beach, FL
Hey Vanessa....all I know is what I was told.....didn't make it up.... I was also referred to a gastroenterologist....he did an endoscopy and HE said I had a slight sticture that was causing it....?....and he opened it up some. Damn. BUT...I have to say that was over a year ago...and I have not had the pain since. So I'm still waiting....I was very very concerned about the bowel kink, thats why I went to the ER...of course they gave me drugs...relaxed everything...and all the pain was gone when I woke up from the 'coma'........ If it EVER happens again though...I will be more pro-active....it is very scary and should not be taken lightly....it can be fatal I know. Thanks for the info.... Hugs Charlie
gprc
on 7/2/06 12:56 pm - Leesburg, GA
Thank you all soooo much, I will be in contact w/ my dr tomorrowand try to be more agressive. The only thing is that I hate, I mean hate to miss work, cause any inconvenience to my husband (his father is ill & he has so much on him already) and drive 3 1/2 hrs to my gastric rny dr for them to find nothing. I was able to have the gallbladder ultrasound & hiata scan done here but the EGD and other visits I had to travel to Birmingham. The dr that did my EGD said my stomach (pouch) looked perfect and no ulcers or even redness. However, I was not hurting by the time the tests were scheduled. So while I am still hurting, I am thinking more and more that it may be a blockage of some sort. I am going to try to get more info on that and suggest something to my dr so he will be more agressive. Thanks again for all the responses.! Georgina
danabky
on 7/2/06 7:54 pm - NC
RNY on 11/10/00 with
This has happened to me so many times and I get tired of it. First it was diagnosed as 'Esophageal Spasms" two years ago. It was higher in my stomach. There was no rhyme or reason to them starting although stress was a little involved. I now have to carry 2 mg of Valium on me for when I feel things getting a little "tight" I pop one and it relaxes everything. Those are the worst pains ever. I am in the fetal position forever and nearly screaming in pain.. then it just goes away. I have to do the valium as needed for preventive measures. I maybe have to take one a month. However... recently there are other problems. When my appendix ruptured and went septic 6 months ago. No regular gastroenterolgist wanted to deal with me so I had to find a bariatric surgeon to take my appendix out. When they were in there, they noticed that I had a lot of "freely moving intestines" so they decided to "tighten everything up." I have been in sporadic pain ever since. I can no longer take my suppliments. My limited menu of food got pared down even more. I can't even do vegetables without severe pain. The worst thing about this is I will never know what will trigger it. My stomach will swell up to at least someone who is 5-6 months pregnant. For someone who has had a tummy tuck.. that skin gets TIGHT! I really think they messed me up or made the intestines too tight. They have run every test on me known to man and cant find anything. I even had a colonoscopy for goodness sakes. I have severely limited myself to activities. It seems the more I do (gardening, housecleaning etc.. ) the more it swells up. I was very upset when after having another "episode" that surgeon said I was pretty much "FOS." I said, "What is FOS?" He said.. "FUll of ****" like fecal matter. I personally think that they sewed me up so tight (the intestines) that I am having partial blockages. I have now changed over to a very sympathetic surgeon group and they pretty much are just going to go in and do exploratory surgery on me on August 2nd. This pain goes from my lower stomach almost to my pubic bone. It is different from the aforementioned "esophageal spasms" which I have kept at bay. I will let you know what I find. Adhesions do not show up on ANY x-rays or CT scans. I just hope and pray I can get back to "normal." Not being able to do my suppliments and vegetables has made me very weak and fatigued. My guess is that you have some adhesions pulling your intestines and they are getting kinked a bit. My question to you is "does your stomach swell up really badly?" when these episodes happen? Esophageal spasms may be what is causing it and you may need a muscle relaxer PRN (as needed) for when you feel one coming on. They are not sure what causes it. like you said.. it can't be pinpointed. A few others have had that same pain. There is no test to find "esophageal spasms," it is just assumed and if valium or some other low dose muscle relaxer helps.. then that seems to be it. (I always get the lowest dose possible because I don't like the feeling of being "loopy.") This last bit of problems I feel are problems related to when they "tightened my intestines up." I understand I may have been a risk for kinked bowel in the future but I feel a little resentful that they just didn't take my appendix out and just left the rest alone. I don't like living like this and especially without my veggies! I had virtually no problems for 5 years exept for the once yearly spasm which is controlled now but since that last surgery in November (ironically 2 days after my 5 year anniversary) I all of a sudden have severe problems.. hmmmmm.. good luck to you hon and I hope they don't keep happening to you. Mention the possiblity of "esophageal spasms." They seem to hit people 2 to 2 1/2 years out. I have only seen 3 or 4 people on the boards out of 6 years have them. I was the first . Hugs, Dana PS.. after a spasm.. the only thing that felt good to my sensitive pouch was SF jello... and sometimes toast. I know.. YUCK... but your pouchie is very sensitive after these episodes. It wouldn't take much to trigger another one. PSS... I am NOT a doctor.. lol. I am just giving you a possibility.. I KNOW your frustrations after every negative test. You almost PRAY that they will find something wrong just so they can FIX IT! I am EXCITED about my exploratory surgery because I want some relief!!!!!!!!!!!!!!!
Charlie
on 7/2/06 8:16 pm - Daytona Beach, FL
Maybe thats what happened to me.....when I got the pain....my belly swelled up so bad.....thats why I thought it might be gas.....and when I went to the ER...they gave me some narcotic that relaxed me and put me out....for hours and hours...and when I work up....it was gone.... Hmmmmmm Thanks Charlie
Charlie
on 7/2/06 8:20 pm - Daytona Beach, FL
One other thing..... My Doc said I DID have adhesions...he said they were from my old Hystericalectomy...and he saw them when he did my bypass....its in my records. So maybe that is it.....hasn't happened in over a year....so I'm keeping my fingers crossed.... Hugs Charlie
danabky
on 7/3/06 7:01 pm - NC
RNY on 11/10/00 with
Hi sweetie! I am hoping you don't get one again... They are awful!!!!! kisses, Dana
lipthorn
on 6/5/08 8:33 pm - akron, OH
this is all new to me  im in the same boat you are in with the adhesions from previouse surgerys was suppose to have a bad gallbladder and gallstone taken out and the doctor canelled the  surgery himself said it would be to dangerous cause of all the adhhhesions im so scared i have went to 3 places to see about the weight lost surgery and all 3 said no cause of the adhesions  im going to try 1 more place in columbus ohio in 2005 i had a hernia hystermony(mispelled) 15 pounds of fat cut off of my belly cut ogg  everything was good 2 weeks later  where the cut me  my opening dies and i had no blood supply so i had to have another surgery   i did have a flat belly but now my adhesions are so bad my belly is getting so big and blotted just wish something could be done   someday are really bad  any suggestion from anyone thank you lipthor
Cha
on 7/2/06 10:06 pm - Ft Laud, FL
Well, I see I'm not the only one who has pain. I'm 2.5 years from WLS..the pain started 4/6/06 after going out to dinner(I ate nothing off our plan)..about 1 hour after we got home. Bad Pain in the belly above my belly button that went around to in my back. I Also couldnt have anything tight around me at all felt like i was blowing up..still have gained inches in waist. I have had a CT scan, MRI, Colonoscopy, Endoscopy all normal with no problems. I had horriable pains when i ate anything for 2 months off and on. Naturally not when I was haveing any of these tests. The Dr. that did the Colon test wanted to do a angeogram..but after talking to my Sergeon who did my bypass...he said it might not show anything if i was laying down. I havent had any real pain for 1 month. I found when I had the bad pains i would take 2 tylonal and lay down in fetal position and in about 10 min the pain would be gone. I thought how is this tylonal working so fast..so i tryed laying down in the fetal position without the tylonal...guess what the pain was gone in 10 min. I talked to my WLS he said it sounds like an internal hernia or Superior Mesontaric Aetery Syndrome(spelling)...which is cause by looseing alot of weight quickly...and an arerty falls down and wraps around the intestine blocking it. He said to diaginosis this ..when in pain stand on knees and hands ..i guess the gravity pulls the artery away. I am waiting to see if I get the pain again...if i do i will go to my WLS dr so he do what he thinks is best. I dont want to go thru a test that might miss it anyway. Heres hopeing we have no more pains and we get this all streighed out. Let me know what you find. Keep posting! Thanks Cha
gprc
on 7/3/06 5:00 am - Leesburg, GA
Thanks alot for the responses, I think that I may have an adhesion or kink in my intestines, the more I research it. I left a msg for my rny dr but haven't heard back yet. Of course GA time is an hour ahead of AL so it was 6am and I guess it wasn't a life or death emergency (at least I hope not). The pain seems to get better for a little while yet it doesn't go completely away. I even layed out by the pool yesterday w/ a little discomfort, washed a load of clothes, but the next minute I thought I was going to die. But being a mom and wife, life must go on. I have still been taking Ducolax because I think I need to try to keep things moving, even thought I haven't had much relief in that area. I'll keep everyone posted. I covet your prayers. Georgina
choirgirl *.
on 7/3/06 10:43 am - somewhere, NY
Hi, just thought I'd give you my 2 cents. I'm almost 2 years out and about a few months ago I started having very severe pains, my family doc said take a laxative and I did and it helped a little, afew days later the pain came back and I had nausa and vomitting along with the pain, went to the ER and they found nothing. Finally went and saw my surgeon and he admitted me into the hospital for further testing. Come to find out I have an ulcer and a hernia. Good luck to you.
psychobabble35
on 7/3/06 5:38 pm - Cape Girardeau, MO
I'm 2 1/2 years out and a friend referred me to your discussion because I'm having the same pains! Right above belly button, around to back...helps to lay in a fetal position on my side. I have less pain if I sit, more if I lay down on my back, and more pain if I stand up. Do these positions agree with the rest of you experiencing pain? Thanks, Dana E.
~ K D in WA
on 7/3/06 10:16 pm - Eastern, WA
I had attacks like yours for 2.5 years. Had every test in the world. Had my gall bladder out. Finally had two confirmed partial bowel obstructions, so my WLS agreed to do an exploratory surgery. He found and repaired an internal hernia at the mesenteric defect. Apparently people who have had "lap RNY" vs open are at much higher risk for them.
psychobabble35
on 7/3/06 11:05 pm - Cape Girardeau, MO
Okay, stupid question. Tomorrow is the 4th of July, obviously my WLS surgeon's office will be closed. I'm flying out early on the 5th for a week's vacation. The more I read, the more I'm thinking I could have an internal hernia. My pain is NOT as bad as many of you describe. Will I be okay to wait a week to see my doctor when I get back? This just started this past weekend. It sounds like several of you have battled this for a few months. I mean, I don't want to drop dead obviously...is it an emergency or can it wait one stinking week? Please advise. Thank you, Dana E.
Cha
on 7/4/06 10:00 pm - Ft Laud, FL
Dana, As i was going thru all my testing with the colon Dr. I mentioned the internal hernia and the Superior Mesanteric Artery Syndrone my WLS Dr. thinks it might be. He said the SMAS you could live with...that he was looking for my serious problems. So, if your not having the pain I would go on the trip. Especially if you have found the way to relieve it in a short time. I had some pain today after eating ..this is the first time in a month..but I layed down in fetal position on my right side and the pain was gone in 2 minutes. If however you are in pain NOW! Its a good idea to see your Dr when in pain. As the testing will show more I'm told. When you take all thest tests you dont eat...so your not usually in pain. Im not a Dr. maybe you should call your Dr and see what he thinks. Best to you. Let me know what you find out. Cha