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Latest Surgery Support Comments
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Allie, my thoughts
and prayers are with
you for a speedy
recovery. Get well
soon,
-
Allie, I'm lifting
you in prayer right
now. May the PEACE
of God be with you.
May He guide the
hands of your
surgeon so that you
will have COMPLETE
HEALING. In the
name of Jesus we
claim RELIEF from
all of the suffering
that you have
endured.
Blessings!
-
Allie, I'm praying
for you! This is the
end of all the pain.
You're going to live
the life you so
deserve, pain free.
Please keep us
posted. I'll
continue to pray for
you. Leave a number
if you can so I may
call and check on
ya. Love and
prayers, ~Diane
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What Harry Potter character are you? 5 days ago
As Minerva McGonagall, your strict facade is complimented by a warm heart, and you always do what is for the greater good.
Ravenclaw
As a member of Ravenclaw House, you are diligent, intelligent and resourceful.
Click on the picture to find out what Harry Potter character YOU are!
Pain Dr. Update 5 days ago
So I went and saw my Pain Dr. on June 20th and told him how much they had increased my pain meds to and he said that we needed to try me on a longer acting medication. So he left my other stuff the way it was and I'm just to take it for breakthrough pain and he added Methadone to the mix for me to take. It seems to be working alright. I can eat a little better now, but I REALLY don't have any type of appetite. I eat only because I know my body needs the fuel or else I probably wouldn't eat. I don't know what it is, it's weird.......I can tolerate things better now, but have ZERO appetite. Before it was I'd be somewhat hungry, but not be able to tolerate anything! Bizarre. One new thing I "made up" that I really like is I take some Muenster cheese and 2 pieces of either chicken, turkey or black forest ham and roll it up and make like a cheese and meat 'roll up'. My pouch tolerates it and I really like it, plus it's pretty good protein! Other than that, the fridge is bare where I'm concerned. No more protein friendly things in there that I can eat and we're broke for a while. The kids still have plenty of food I'm thankful for that, but food that I can eat is GONE. Having to go back and forth to the hospital and the Dr. that is an hour and a half away is HARD with these gas prices and hit our pocketbook HARD this month!
Noah's birthday was June 26th. He turned 2!! I can't believe how big he is getting. He said his first FUNNY sentence that night too. He farted and then he said, "Eww, that's nasty" How funny is that?!?!? He had a nice, sweet little party here at home with just his family. We had a good time!
Well, that's all the update I have right now. Hopefully I'll stay out of the hospital for a while!
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Got out of the hospital again on June 18, 2008 7:32 am
Well, I got out of the hospital from the last time on Saturday June 14th. I wanted to be out in time for father's day! They pulled my PICC line although I wished they hadn't. I'm already declining again! I'm so freaking frustrated. I was getting almost 3,000 calories a day with my TPN. That's a lot of calories! They also almost doubled my pain meds because my pain is just out of control!
Father's Day was nice. My hubby got 3 collectible toys from the kids, we made him a neat little picture frame that will have a picture of the kids in it after we get our pictures done, and he got a new video game for his Xbox 360. LOL Then we put up the kiddie pool on the back deck and the kids went for a dip. My oldest put the slip and slide up too and they did that and the pool. They were all back and forth. So then I made some sandwiches for dinner......3 different kinds and cut them up into mini sandwiches and we had that for dinner. Daddy and I went and put our suits on and I sat out there with a drink and took pictures and then put my feet in the pool and swung the kids around in the water. Then we started pouring water on everyone's heads! Except mine!! he he We all got Daddy really good. It was funny. It was a good time. Got lots of pictures and some videos!
My "twin" is STILL in the hospital after having her reversal surgery on June 5th. She did NOT get any better as we had hoped. She's actually worse. She's requiring a LOT of pain meds as well as a ton of nausea meds that is not helping her much at all. She's not leaving the hospital until she has some answers, but she's probably going to get sent home on June 19th and she will have to go home doing TPN again. It's really sad that we're both in this shape. I know we're both massively frustrated.
Well, that's all the update I have for now. I'm going to see the pain Dr. on Friday. Let's hope to God he agrees with the increase of meds they gave me in the hospital or I'll end up right back there! 
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What's been going on in the past month on June 11, 2008 3:16 pm
Well, I did go home from the hospital the last time on May 20th. My TPN did NOT get approved. I was so mad. Even though I was requiring FULL calories, Medicare said I had to be missing part of my digestive system or not be able to eat AT ALL. Well big whoop. What if I can't eat ENOUGH to sustain myself? Just too dang bad??? LORD! Insurance companies are so dumb. My surgeon tried and tried and tried to get it approved bless his heart, but they didn't even listen to him. UGH! Frustrating.
So I still had the PICC line and I took care of it. Flushed it everyday and changed the dressings several times to keep it clean. I had a feeling it would come in handy soon. And OH how right I was!!!
On June 6th, I was back in the hospital AGAIN and that is STILL where I sit. I'm getting TPN 24 hours a day, plus I'm getting better pain control thank God because I started having a horrible fibro flare on May 31st and I thought I was going to come unglued with all the pain.
So tomorrow I'm going to be getting another scope. They are going to take some biopsies to see if I have an virus action going on down there. Lord let's hope not. I don't need anything ELSE going on that's funky!
I do feel a lot better today than I have in a LONG time. My meds got increased because every 6 hours was not cutting it so now it's every 4 hours. MUCH better pain control. AND since all of this TPN has been going in my system, I actually feel more energized!! Gee it's only taken 5 days of it! I am glad I came in though. I REALLY needed the nutrition and I'm starting to feel a whole lot better. A couple days of this and I'll be good to go I think. Now if only I could eat more!!!! Gosh I would've never said that before surgery huh?? LOL
In other news, my surgery 'twin' that had surgery 4 months after me but had the exact same symptoms as I did (just 4 months behind.....well kinda! LOL), she had a major procedure done. A last ditch effort so to speak. She had her surgery REVERSED!! It was supposed to be reversed and then revised into a sleeve but that didn't happen. She had had a g-tube in for a long time and apparently the place where the g-tube was made a natural anastomosis so it looks like she has 2 stomachs almost! She's got her pouch and it was hooked back up to the spot where her g-tube was and then her old stomach is below it. So it's KIND of like a baseball sitting on top of a small cylinder leading into a large rounded banana. It's basically like she has a naturally made lapband because of the anastomosis from the old patch to the old stomach. Weird, but cool.
She's still having problems with a lot of pain and nausea and that makes me sad. We visit each other and take walks together while we're here, which makes it easier to get through this ordeal, but I wish neither one of us had to go through what we are. I'm worried for her because this was basically her last ditch effort to be 'normal' again. She's on 3 different pain killers and 3 different nausea meds. It's just not slicing the bacon for her. I feel so sad for her because I KNOW how much she wants to be well and it definitely hurts my heart SO MUCH to watch her talk about the misery she is in! Sometimes I don't know what to say. I just sit and listen because sometimes we just NEED somebody to listen. Other times I wish I could just reach through the phone and hug her or something. It's like I personally want to make her feel better so she can have her life back. I hope and pray to GOD that this surgery fixes my dear, sweet friend that I've grown to love SO much over the past few months. She's a true blessing and I KNOW that she will use this experience for good, but I wish that her suffering would stop so she could enjoy life more and not have to deal with the constant struggles of eating, staying hydrated, fighting pain and nausea. If anyone is reading this, PLEASE say a prayer for my sweet friend to get BETTER! I hate seeing her like this almost as bad as I hate being like I am!.
So after her surgical experience, which I must admit I was eagerly anticipating because my 'twin' was yet again the guinea pig, I was hoping that there would be better results. I can understand the post operative pain but I TRULY think her pain is more. And her nausea is almost unrelenting, something that I dont quite have so much of, but it's there sometimes. I guess what I'm trying to say is that I had a lot riding on her surgery too. I mean, we have the exact same problems so if reversing and revising the surgery worked on her, then there is a greater chance that it would've worked for me too! But since it's looking like this was not successful, I don't know what I'm going to do or what hope I have of getting myself fixed! Scary!
Thanks to all of you who have stuck in here with me. I really appreciate it!!
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Small Hospital Update on May 19, 2008 11:48 pm
Well I THOUGHT I was going to get to go home today. Nope. Still sitting here. Guess this will be an 11 day hospital trip! lol Apparently they didn't all the arrangements for home health yet.
I did finally get my PICC line on Saturday morning and they started my 12 HOUR  feeding in it that night. So now I'm on night 3 of the TPN feeding and so far I feel pretty ok. They have to check my blood sugar every 6 hours and gosh I hate getting my finger pricked! And doing this at home means dragging around a pump for 12 hours OR staying in bed for 12 hours. Lordy, gotta love it.
I think I just have to be on it for 2 weeks and then we'll reevaluate from there. So I hope it does what it's supposed to and that I don't have to be on it for a long time or else I'm REALLY going to just ask him to convert me to the Sleeve!
So I think I am most likely going home tomorrow, God I hope I am anyway. They should definitely have my home health set up and worked out by then, hopefully. Well, that's just my lovely update for what it's worth. Have a good week!
P.S. Forgot to mention that in the past couple of days since starting my TPN, I have not been bradycardic ONCE!!!! That is really awesome news!! I KNEW that just had to have been all about diet!
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