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  • Comment by brnsie on 10/6/07 5:32 pm
    Allie, my thoughts and prayers are with you for a speedy recovery. Get well soon,
  • Comment by So Blessed! on 10/5/07 10:09 am
    Allie, I'm lifting you in prayer right now. May the PEACE of God be with you. May He guide the hands of your surgeon so that you will have COMPLETE HEALING. In the name of Jesus we claim RELIEF from all of the suffering that you have endured. Blessings!
  • Comment by D. Watkins on 10/3/07 7:45 pm
    Allie, I'm praying for you! This is the end of all the pain. You're going to live the life you so deserve, pain free. Please keep us posted. I'll continue to pray for you. Leave a number if you can so I may call and check on ya. Love and prayers, ~Diane
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Allie's Blog



Some Good News!! Hospital Update!
on May 16, 2008 8:38 pm
Well hi my friends!

I got a couple pieces of good news today. First off, they did an echo of my heart to check heart function. Some of you may remember that in March of last year right before my surgery, I found out that my heart was failing and that I had cardiomyopathy. Well, he wanted to see if the malnutrition was effecting my heart. I'm happy to report that my heart is no longer enlarged. It is normal sized again. AND it is functioning normally again!! No more heart failure!! Thank you GOD!!!!!! I was SO happy to hear that.

I am suffering from bradycardia. My resting heart rate is sitting in the low 50's - high 40's. Sometimes it dips into the low 40's, but it didn't dip THAT low during my echo but sometimes it does when they take my BP so they have to make me sit up and yada yada yada and take it again. I have a VERY strong feeling that my low heart rate lead to me blacking out behind the wheel and causing my wreck a few weeks ago. When your heart rate gets low like that, it can cause not enough oxygen to get to the brain and thus lead to passing out. I really think that is what happened to me that day. So, I think if I can get the CORRECT nutrition going on in my body, I'll be able to get my heart rate moving back up into the normal range and MAYBE I can start driving again!

How am I going to get the right balance of nutrition though? Well, my other piece of good news is that I *think* my home TPN is going to get approved! My Dr. has ordered it and the dietician is working on the caloric requirements so we'll see what happens tomorrow. They aren't going to come put the PICC line in me until they know for sure if my insurance is going to approve it. My insurance requires you to require a certain amount of calories per kilo, but the dietician thinks that I will meet that with no problem. They have me NPO (nothing by mouth) now, since dinner time and I'll be this way until I go home. Boo! But then my Dr. called and wanted the PICC put in tonight and the tube feeding to start TONIGHT, but the IV team didn't come up tonight to do it, so I guess that's not happening. Maybe tomorrow. I can't wait til they get it all set up so I can go HOME!!

On to another piece of news.....my 'twin' is in the hospital too on the SAME FLOOR with me!! She was admitted three days after I was. Turns out we're both going to be getting TPN. It sucks that she's sick too, but it sure is comforting to have someone that KNOWS exactly what you're going through and can empathize with you and understand what you're feeling. I wish we were both back to normal, but we both have a feeling that all this will end up with us having our surgeries reversed and revised into sleeves. I honestly think it will solve our problems. I'm just not brave enough at this point to go ahead with it. It's a HUGE surgery and he's never done it before. But that's still a ways off yet. Now I just have to worry about getting this PICC and TPN and GO HOME!!!

Thanks for listening and all the continued support!
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God is WAY too confident in my abilities!!
on May 15, 2008 7:43 am
What did Popeye say? "I've had all me's can stand and me's can't stand no more!" ????  Well yep, that just about covers it! Then there's that old saying that 'God will not give you more than you can handle'. Well......I say 'God is WAY too confident in my abilites'!!!

First off, I don't know if ya'll remember me asking for prayers for our baby, Noah. He had the 2 nodules on the back of his head that we were concerned about. Well he had an MRI and Daddy took him yesterday to his appointment. The neurologist said that the 2 nodules ARE indeed lymph nodes like his ped. first suspected. But then he told him that Noah has a cyst on the right side of his brain!!! I'm totally freaked out. The Dr. tells my husband not to worry about it, that it is small and that his brain isn't finished growing yet and most kids he's seen with this it goes away on its own. Well how the heck can I not worry!! This is our BABY!! I'm so scared for our little man. I just want him to be ok!

Second thing. I've neglected posting about this because I'm sure that everyone is really sick and tired of hearing about it, but it's serious and what if it was happening to you and you didn't really have anyone to go to about it ya know? Well, I'm back in the hospital. I was admitted last Friday evening. I am suffering from malnutrition.....go figure at 240+ pounds. My eating has just went on a personal vacation and my hydration is not any better. My prealbumin was low, which is what indicates nutrition level and protein and what not. And my period is gone. Last time I had it, it was 2 weeks late. Now it is almost 3 weeks late and no I'm not pregnant. My surgeon said it was from the malnutrition.

There are also several of these factors that may have led to the blackout that caused my wreck. I'm sure we'll never know for sure. My Dr. has ordered an echo of my heart to check on the function. I found out my heart was bad right before I had surgery last year. I'm just wondering what all this has done to my heart though. I'm afraid my body is eating up its muscle.......and the heart is a muscle. Freaks me out.

We also discussed TPN again. My surgeon wants to put me on it to get some nutrition in my body. I'm afraid with what I do eat and the TPN that I will gain weight, but my Dr. is not concerned that that will be a problem. Now I guess it's just up to my insurance company to approve! Yikes! I'm worried about that because I know what happened LAST time we tried to get this approved. Back then I wasn't requiring enough calories to be approved. Maybe this time. Lord. My surgeon isn't trying to fatten me up or trying to get me to gain weight or anything, he's just trying to get the right balance of nutrients into me because apparently that isn't happening with the food I eat. 

So, add all that to the heaping pile I've already got....the wreck, the constant pain and pain meds and everything else and I'm getting quite set up for a huge meltdown. If I sit and think about this crap long enough it just bamfoozles my mind!! I just have to stop thinking for a while to make it all stop. 

Anyway, I just had to blow off steam. I know ya'll are just about as sick of hearing this stuff as I am sick of going through it so I'm sorry for posting, posting, posting about it, but it's just HARD and my support system seems to grow shorter by the day so I'm running out of places to turn for someone that actually cares. Lord knows my own family doesn't. None of them had called once through this whole long almost 11 month ordeal. Anyway, thanks for listening.

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Well I went home!!
on March 27, 2008 5:14 am
Sorry I haven't updated my blog in a while. I went home on March 12th from the hospital FINALLY after being there forever. I lost 22 pounds while I was there!!!!!! Quite amazing. I didn't really eat so much because the food was just something I couldn't tolerate. Anyway, I'm SO glad to be home!! Pain management appointment was March 25th. I'll update about that soon!
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Day 15 and..........
on March 8, 2008 6:57 am
              I'M GOING HOME!!!!!

I was going to get to go home yesterday but we got something like 9-10 inches of snow up at home and my husband couldn't get out and didn't want to risk getting in a wreck with all of our babies in the van. There's NO snow at all down here where I am. It's funny what a difference an hour and a half drive makes!! So anyway, he's coming to get me this morning or early afternoon!! 

Just wanted to let everyone know! I may not be on the boards for a while. Just depends on how I'm doing once I get home. I want to spend time with my family really bad, but if I'm laid up in the bed not feeling good or something, I might be able to get online. I just REALLY need to be with them right now. The kids get SO torn up when I'm gone and I want to spend every moment I can with them. 

The plan when I go home is just to get ahold of pain management and then see how my friend does after her celiac nerve block. That might be the road I'm going down next! Please keep me in your prayers for a solution to this nightmare!

Thanks for all the support! I appreciate it SO much! You all have been a big help to me!

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Update - Day 12
on March 5, 2008 8:17 pm
Well hello again everyone. Just wanted to give ya'll an update. So I've been in the hospital for 12 days now. I FINALLY got moved to another room this morning. Thank God!!! That room down there had a busted air conditioner and I was trying to survive with just a box fan........omg, it was SO HOT!

So, in the morning I'm getting another endoscopy done. I don't know what makes them think they'll find anything the 4th time around, but I guess it's worth a shot. Then they can see if that staple or whatever suture material was still in my pouch the last time has worked it's way out of there and passed through my system. That's the only thing that was found the last time they looked.

If everything looks ok tomorrow, I get to go home Friday evening!!!!!!! I'm SO totally excited! Apparently the pain management doctor that my surgeon wants me to see doesn't see patients in the hospital, but he didn't know that until a few days back, so all of that was a just a big waste of time. So I get to go home and wait on the pain management clinic to call me and set up an appointment for me to see them. I'm FAIRLY sure that he's going to suggest getting this celiac nerve block that my "TWIN" is getting. Well, she is getting hers done next thursday and she'll know almost immediately if it's going to work. I wish I could be here with her when she has it done because she's been SO supportive to me, but I don't think it's going to happen. So, if her block doesn't work, I'm NOT going to get one. Too many bad side effects. If hers DOES work, then I'll give it a try. 

As we've been talking more and more between ourselves and our surgeon, we've found out that there are other people dealing with this EXACT same issue that are patients of another surgeon in the WLS practice. I find it quite amazing and I REALLY think some more research needs to be done on why there are several of us like this..........with no explanation and no solution for a cure. I don't know how the other surgeon is treating his few that have the issue, I'd be curious to know though. I guess we're just writing another chapter in the medical books for "problems after WLS". It's really insane!

So please say a prayer for me that tomorrow's scope goes well and that there are no complications. I would GREATLY appreciate it!!
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