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Allie's Blog
What's been going on in the past month
Well, I did go home from the hospital the last time on May 20th. My TPN did NOT get approved. I was so mad. Even though I was requiring FULL calories, Medicare said I had to be missing part of my digestive system or not be able to eat AT ALL. Well big whoop. What if I can't eat ENOUGH to sustain myself? Just too dang bad??? LORD! Insurance companies are so dumb. My surgeon tried and tried and tried to get it approved bless his heart, but they didn't even listen to him. UGH! Frustrating. So I still had the PICC line and I took care of it. Flushed it everyday and changed the dressings several times to keep it clean. I had a feeling it would come in handy soon. And OH how right I was!!! On June 6th, I was back in the hospital AGAIN and that is STILL where I sit. I'm getting TPN 24 hours a day, plus I'm getting better pain control thank God because I started having a horrible fibro flare on May 31st and I thought I was going to come unglued with all the pain. So tomorrow I'm going to be getting another scope. They are going to take some biopsies to see if I have an virus action going on down there. Lord let's hope not. I don't need anything ELSE going on that's funky! I do feel a lot better today than I have in a LONG time. My meds got increased because every 6 hours was not cutting it so now it's every 4 hours. MUCH better pain control. AND since all of this TPN has been going in my system, I actually feel more energized!! Gee it's only taken 5 days of it! I am glad I came in though. I REALLY needed the nutrition and I'm starting to feel a whole lot better. A couple days of this and I'll be good to go I think. Now if only I could eat more!!!! Gosh I would've never said that before surgery huh?? LOL In other news, my surgery 'twin' that had surgery 4 months after me but had the exact same symptoms as I did (just 4 months behind.....well kinda! LOL), she had a major procedure done. A last ditch effort so to speak. She had her surgery REVERSED!! It was supposed to be reversed and then revised into a sleeve but that didn't happen. She had had a g-tube in for a long time and apparently the place where the g-tube was made a natural anastomosis so it looks like she has 2 stomachs almost! She's got her pouch and it was hooked back up to the spot where her g-tube was and then her old stomach is below it. So it's KIND of like a baseball sitting on top of a small cylinder leading into a large rounded banana. It's basically like she has a naturally made lapband because of the anastomosis from the old patch to the old stomach. Weird, but cool. She's still having problems with a lot of pain and nausea and that makes me sad. We visit each other and take walks together while we're here, which makes it easier to get through this ordeal, but I wish neither one of us had to go through what we are. I'm worried for her because this was basically her last ditch effort to be 'normal' again. She's on 3 different pain killers and 3 different nausea meds. It's just not slicing the bacon for her. I feel so sad for her because I KNOW how much she wants to be well and it definitely hurts my heart SO MUCH to watch her talk about the misery she is in! Sometimes I don't know what to say. I just sit and listen because sometimes we just NEED somebody to listen. Other times I wish I could just reach through the phone and hug her or something. It's like I personally want to make her feel better so she can have her life back. I hope and pray to GOD that this surgery fixes my dear, sweet friend that I've grown to love SO much over the past few months. She's a true blessing and I KNOW that she will use this experience for good, but I wish that her suffering would stop so she could enjoy life more and not have to deal with the constant struggles of eating, staying hydrated, fighting pain and nausea. If anyone is reading this, PLEASE say a prayer for my sweet friend to get BETTER! I hate seeing her like this almost as bad as I hate being like I am!. So after her surgical experience, which I must admit I was eagerly anticipating because my 'twin' was yet again the guinea pig, I was hoping that there would be better results. I can understand the post operative pain but I TRULY think her pain is more. And her nausea is almost unrelenting, something that I dont quite have so much of, but it's there sometimes. I guess what I'm trying to say is that I had a lot riding on her surgery too. I mean, we have the exact same problems so if reversing and revising the surgery worked on her, then there is a greater chance that it would've worked for me too! But since it's looking like this was not successful, I don't know what I'm going to do or what hope I have of getting myself fixed! Scary! Thanks to all of you who have stuck in here with me. I really appreciate it!! 1 Comment(s)
Comment by mom2sara on Jun 12, 2008 at 06:49am
You both will remain in my prayers. I've had issues with a VERY small ulcer and that's horrid. I feel more pain than I should (dr's say that) and all my back issues got worse. So I only know a small bit of what you feel but I don't want ANYONE to go through pain. Expecially when it takes you from your family. Sending my love and prayers hun
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