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Surgeon TestimonialJoao Marchesini, M.D.I'm back to square one. I'm being laid off, which changes everything. Instead of waiting twelve months for insurance approval under COBRA (due to insurance-required diet monitoring), risk battling a NEW insurance company over coverage, or wait a year for FMLA to kick in again, I've decided to go ahead and self-pay while I'm unemployed.
I've decided to go with Dr Marchesini in Brazil. I like him for several reasons - he's very polite in his emails, he answered my questions, and addressed problems he foresaw from my emails, wanting to confirm whether or not I was ready for surgery. He didn't just rush into it, but took the time to make sure I was prepared.
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Cystic Fibrosis Diet
posted on 1/2/07 10:57 pm
Here's some food for thought: The DS creates a condition in the intestines which is very similar to that of Cystic Fibrosis. They have a thick mucus on the walls of their intestines, and don't produce enough pancreatic enzymes. Because of this, they, too, malabsorb fat. Do you know what the recommended diet is for people with CF?? High Fat, High Calorie - Click Here to read about it
In fact, CHEESEBURGERS are a *RECOMMENDED* item.
Here are other recommended items:
"Some people with CF like to keep close tabs on the number of calories they eat in a day. Others find that counting calories is stressful and find it easier to focus on adding calorie boosters with fat in them to the foods they normally eat.
So how can people with CF add calories to meals? In general, they should avoid all diet foods. Whether eating at home or away, here are some simple tips:
Drink whole milk and milk shakes.
Add extra butter or margarine to foods like potatoes or pasta.
Use regular (not diet) dressings on salads or vegetables.
Eat burgers with bacon and cheese.
Eat pizza with extra cheese.
Add cheese to sandwiches.
At breakfast, eat omelets with extra cheese and ham or bacon.
Top salads and sandwiches with avocadoes or guacamole.
Eat calorie-rich desserts such as ice cream, pudding, and cheesecake.
Top hot chocolate, pudding, and other desserts with whipped cream.
Besides eating high-calorie meals, it's a good idea for guys and girls with CF to carry some high-energy snacks with them. Suggestions include trail mix, nuts, packets of cheese crackers or peanut butter crackers, and veggies like carrots or celery with small containers of dressing that don't need to be refrigerated."
Just like DS'ers, they are also recommended to take ADEKs, Calcium and iron. If they can't keep their weight up, then they recommend pancreatic enzymes.
--BT
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