- Name: Amy B.
- Username: bluebutterfly110
- Location: Prairie du Chien, WI, USA
- Member Since: 1/6/2005
- BMI: 27.5
- Post Op
- Surgery Type: RNY (11/16/05)
- Surgeon: Brian S. Boe, M.D.
Photos
I'm Not In Any Photos Yet.
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Goals
No Public Goals Yet.
Surgeon TestimonialBrian S. Boe, M.D.The entire staff at Barix Clinic/Northwestern Suburban Community Hospital in Belvidere, IL was great. Dr. Boe was professional and personable when I talked to him before and after surgery. He made me feel safe and that, to me, was the most important thing. The only negative thing I have to say is that I don't feel like I got a lot of one on one time with him to ask questions, although the nursing staff was there to help with any of those questions I didn't get to ask Dr. Boe. During my two night/three day stay there I came into contact with A LOT of nurses. At first I tried to keep track of all their names but because there were so many wonderful ladies working with me (not to mention I was on a lot of morphine) I was unable to. I didn't see a place to talk about the rest of the hospital staff and I really wanted to stress how great these particular ladies were so here we go. The second night in the hospital I got a fever and was worried that I wouldn't get to go home, or that there was something horribly wrong with me. One of the over-night nurses stayed with me in my room and talked to me to help me relax and feel better when I couldn't find the number to the hotel where my mom was staying. She didn't have to do that, but I was very grateful she did. I highly recomend Barix Clinic, all of the people there were caring and helpful.
Member Interests
- Family & Friends - I am married to a wonderful man & am surrounded by a solid support group at home
- Writing - I blog, write for my college newspaper and give me 5 years and I'll be published
- Scrapbooks - Um...guilty?
- Christianity - God has made WLS possible, and I will succeed by His strength, not mine
- Teachers - Give me 2 more years and I'll be a high school Social Studies Teacher
- Jazz - I was in Vocal Jazz and Jazz Band, I got to perform twice in Carnigie Hall w/ VJ
- Talk Radio Listening - Rush Limbaugh is a genius.
- WLS in your 20's - I was actually 19 when I had my WLS - but I'm 21 now :-)
- Reading - I really enjoy political science type books and series' like Robert Jordan's WoT
Latest Surgery Support Comments
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Amy, sorry this took
so long to thank you
for your support.
I've been doing
great. Had my RNY on
November 14th and
have lost a total of
67 pounds. I feel
wonderful and am
walking about 2
miles (4 miles on
the weekends) every
day. Thank you for
taking the time to
talk to me. I have
been in a stall for
a couple of weeks
now but trust
everything will pick
up again soon. Write
me when you get a
chance. Katie3314
-
Amy,
I will coming to see
you today. I hope
everything gets
figured out and I
pary that you have
finally found the
solution. Please
know you are in my
thoughts everyday
and have become a
very special person
in my life. You are
a true inspiration
for allof us in the
WLS world and I look
up to you.
You have incredible
strength and I am
honored to know
you!
Praying for you!
Katy Buck
Click here for the surgery support page
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Anyway...Almost Through Complication Country on September 27, 2007 4:18 pm
 I am trying not to be too mad about the article thing because I do have good news to report about my prognosis from here on out and I have pulverized about 2 oz of peanut M&M's already. *deep cleansing breaths* SO anyway....
My grandparents drove me to La Crosse this morning for my appointment with Dr. Baker. I think I finally was able to convey the desperation to Dr. Baker. Last night I stayed with my mom (my mom's house is an hour closer to La Crosse and my grandparents live near by - anyway) and we sat and made a list of questions to ask and statements to make sure that Dr. Baker heard. For whatever reason I want to please people most of the time - not the editorial staff or whomever chopped my article or people who don't like my articles, they are allowed their opinion but so am I - anyway - so when I get to Dr. Baker's office I am the picture of health. I hold it together and pretend, well is it pretending when it isn't voluntary? - whatever, but I look like I am happy with where things are when really I AM NOT. It is more like I am getting to the point of being suicidal, which is anti-happy in case you were wondering. Well, today I think he heard that.
While we're talking about being suicidal I just need to make something clear - I AM NOT SUICIDAL. I'm not. In fact I am afraid to die from this complication because I WANT TO LIVE. I have been smacked in the face with my own mortality and it scares me. But for the firs time in my conservative life I could see how someone with a chronic condition would want to end his/her life. In the ugly and desperate hours, late at night and all alone writhing in pain, I completely understand where that hopelessness comes from. But I also know that it might be really bad today, and the prognosis isn't looking too hot for tomorrow - but maybe the day after that there will be a few hours of quiet relief and joy to find. In the muck and mire of medicated fog and disorienting pain there are glimmers of all that is good about life and I would encourage anyone suffering from a chronic condition to cling to those moments and look for them. Recovery is unfortunately only possible for some, but happiness is available to all if you know where to look and are diligent about looking for it.
Anyway, back to today...I met with Dr. Baker and he explained to me a few things. First, he told me what the down sides were to having one's stomach removed. Those down sides are "burning your bridges" in case something goes terribly wrong with my pouch and if the stomach wasn't the problem, removing it could make the actual problem worse. To make sure that the stomach is the problem I headed down to interventional radiology for one final, I hope final anyway, test.
Before the test I got to go over to 3 West to visit Katy B! She had her surgery Tuesday and was still hanging out in the hospital. She was doing well, no pain meds and only a little trouble from vomiting early on but she was better when I saw her. We chatted for a good hour and a half. That was so fun and uplifting. I wish you the best Katy! You are a sweet heart!
At 1 I went down to radiology and Instead of cheerful and compassionate Dr. Fondel I got some other guy who was a little less caring. You want to know his first question to me? "How did you get to be so fat that you needed bypass. Did you just eat a lot?" Yeah, that's it. It is as simple as all that -  . Where do they find these people and why do they become health care professionals?
Now for the test - remove the tube (owe), insert a wire after poking all around and missing several times (double owe) and slip a catheter over it (OWE). The catheter went down through my stomach and out into my intestines. After that contrast was injected to watch how it moves through the intestines. If it didn't get hung up anywhere we could assume that the problem is the stomach. Until now my stomach hasn't emptied enough to see anything in the intestine so this would be THE test to show what is going on. It was really unpleasant. Like REALLY. Before the catheter got through my stomach the anti-caring radiologist injected a lot of contrast in my stomach that doesn't empty itself and I squirmed in discomfort. "Does that hurt?" Ya think? DUH! That is why I'm here - I get fluid build up in my stomach and it makes me feel like I just got shot in the gut! Does it hurt!? Look at my face and feel me jerk and writhe and you'll know. YES - it hurts! Anyway, that was the most unfun part about it. We get done and the radiologist says "That wasn't bad." Whatever. I feel like strapping him down, poking a hole through his abdominal wall and stomach and then sticking wires and tubes and contrast through it mercilessly and then asking him if it hurts. YES IT HURTS. Grow some compassion! I have been pretty enduring for the tests I have been subjected to. I don't complain when something hurts (and they do hurt) because I know that the people doing the tests are just doing their jobs, however, it is only polite to be a little apologetic about stabbing someone's insides repeatedly with a pokey little wire!
Anyway, after the tests I went back up to see Dr. Baker. He had already seen the test images (he was there for part of it) and the solution is pretty clear. Contrast moved through my gut lickety split, no problems, so it is the stomach. That means by the end of October I will be stomach-less. I say farewell and good ridance - or at least I will after the surgery. The surgery will most likely be open (my first open abdominal surgery) and it won't be fun, but neither is un-ending, unexplained pain and tubes. I am re-tubed but I can live with that. I have renewed hope because an end is in sight. Thanks for sticking with me!
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Article 3 - It Got CHOPPED for the paper - here is the REAL THI on September 27, 2007 3:50 pm
Okay, first I'm a little pissed that my article got butchered and the title changed to reflect the LIBERAL BIAS!!!!!!!!!!!!!!!!!!!!!!!!!!!! of my school newspaper. They chopped it to make it not as strongly worded as I wanted it to be and then threw me to the dogs with a STUPID SELF RIGHTEOUS/ LIBERAL TITLE! FORGET YOU EXPONENT EDITORIAL STAFF! Can we say CENSORSHIP all together now? UGH! You all SUCK! I thought MY COLUMN got to be MY OPINION AS I STATE IT! I would quit (not like I'm getting paid) if I didn't really enjoy writing and have important things to say. I will bring balance to this paper whether anyone else on the staff wants it or not. HERE IS THE REAL THING!
I have to get serious. My first articles were mellow because I am mellow. However this past week my mellow was harshed. I don’ know how many of you tune in to the news so I’m not sure if you will be aware of what is going on. Current events are my drug of choice and as long as Top Chef or Family Guy isn’t on I am flipping through CNN, Fox, MSNBC and BBC like they’re going out of style, so allow me to fill you in.
Mahmoud Ahmadinejad, the Iranian President, will be in
New York City for the United Nations’ General Assembly. That’s not a big deal, however while in town he wants to visit Ground Zero to “lay a wreath and pay his respects”. That might not seem like a big deal. A foreign diplomat wants a photo op as he looks, somber and teary eyed, at the construction zone where the
Twin
Towers used to stand. With cameras still rolling he wants to lay a wreath in memorial to the victims of the deadliest terror attack in our nations history, except in Ahmadinejad’s case the memorial might be for the terrorists who killed themselves in the name of Jihad. Ahmadinejad, the anti-Semitic, Holocaust denying, America bashing, United Nations defying, loud mouthed president of a rouge nation that sponsors terrorism and is currently supplying the Iraqi insurgents with weapons they use to kill our troops can take a leap as far as I’m concerned. As long as he is on this “look at me, I care” trip he might as well stop by Auschwitz – oh wait, I forgot, according to Ahmadinejad nothing happened there worth remembering – instead maybe he should stop by the Wailing Wall in Jerusalem, assuming he hasn’t wiped it off the map yet. Oh, and he should bring Bin Laden, they could hold one another while they weep with sadness for America’s loss.
Allow me to introduce to you the Iranian President. He already knows you. He even wrote you a letter in which he bashes US and UN support for and goes on to list the many “crimes” of the US Administration, including the efforts in of which he says, “In Iraq, about 150,000 American soldiers, separated from their families and loved ones, are operating under the command of the current administration. A substantial number of them have been killed or wounded…” Awe I’m touched, he supports our troops just as much as MoveOn.org does. Should we break it to Mahmoud what weapons the insurgents are using to kill Americans and where they got them? They got the weapons from your country, Mahmoud. The distinguished, caring president then notes “As you know very well, many victims of Katrina continue to suffer, and countless Americans continue to live in poverty and homelessness.” Turns out CNN broadcasts make it to Iran. Should we talk about the crimes against humanity that go on inside Iran's Islamist controlled borders? Should we talk about what it is like to be a woman in or what it is like to be a homosexual – oh wait they don’t have those – what about how it is to be oppressed and bullied into compliance with an extremist interpretation of Islam by strict Imams controlling the government? Of course not, those things aren’t nearly as atrocious as American crimes against humanity. At least you might get that impression from the media sometimes.
I’m not saying the is perfect or that I agree 100% with how President Bush and Congress are running things. What I am saying is I think it is complete bull honky to let a terror sponsoring bigot make a spectacle with his empty gesture of phony compassion that hides a dagger of malice and contempt for America. We watched the Towers fall and heard our country wordlessly weep in despair. We felt the shock and then the numbness and “why?”. I have been to
New York to read the cards and memorials left by grieving friends and family of the lost. I have seen the gaping hole in the skyline and felt the gaping hole in my own sense of security. And now some joker wants to stand in the ashes of that tragedy and pretend like he gives a rat’s behind? No way.
I’m talking to YOU Mr. President of Iran. If you really want to show your respect then I have some suggestions the American people might be more receptive to. First, stop acting like a self righteous hypocrite by writing letters in flowery terms about your ideas of “peace” to foreign nations while pointing out all of the problems with their government when your own regime needs to get human rights issues straightened out. Second, shut up about the evil “Zionist regime” and read a legitimate historical account of World War II AND THE HOLOCAUST. Third, stop pretending like we believe in the same things when clearly we do not. America believes in a government that represents the people, you believe in a government that represents an extremist Imams’ interpretation of Islam even if that is not what your people want. The US believes in free elections, you believe in terror tactics and bullying to get re-elected. The US believes in toppling oppressive foreign regimes, by force if necessary, when they are non-compliant with the United Nations and guilty of crimes against their own citizens as well as foreign nationals, and you sir run that kind of a regime. You might want to keep that in mind. You do those things and I will meet you personally in
New York City and pay for the cab ride down to Ground Zero. But until then, keep your empty gestures and phony compassion to yourself. It, and you, are not welcome here.
There. I'm sorry it just pisses me off that I don't get a fair shake. UGH. I edited some from what I gave the editor last week, but only to reflect what Mahmoud has done/said since he's been here. So there - I hope you enjoyed. If the staff had a problem with it they should have come to me (unlike I have sounded now, after they went ahead and screwed me over, I am usually a reasonable person) and we could have compromised but I didn't hear a word - just that it would run.
PS. I came back to check this today and all the times I used "Iran" and "America" were cut out. Please talk to me about THAT. WTH!?
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Article # 2 for my College Newspaper - A Happier Note on September 26, 2007 10:36 am
Hey guys,
I figure I can post these here a week or so after they come out in the paper, so this article was published (I AM PUBLISHED  ) last Thursday. If you want to get them right away visit the paper's website at:
http://www.uwplatt.edu/org/exponent/
and you'll find my articles under "Opinions". I decided to name my column "Berry Opinionated" which was an idea submitted to me by Katy B - who just had her surgery yesterday - thanks Katy and everyone else who gave me ideas. There were a lot of good ones.
So on with it already, geesh
Trips, Slip-ups and Spills: Welcome to College 
My first month at college I dropped three trays of cafeteria food and broke several dishes in the process. One of those times it wasn’t exactly my fault. I was in line behind this massively tall guy, who towered over my 5’ 3” self, as I held my breakfast tray with a heaping bowl of Fruit Loops in front of me. He turned around abruptly and I got an up close encounter with his belly button as he walked right into me. Either I needed to start walking around with an orange flag sticking a couple feet out of my back pack or this guy needed to communicate with ground control more often. My tray folded into me sending silverware and an empty cup to the floor, which signaled every student within a five mile radius that Amy had blown it again. The only thing that didn’t immediately fall to the floor was my bowl of Fruit Loops which landed squarely on my chest so when I folded the tray back down the colorful little rings slithered down my shirt to my shoes where they cemented like little cheap bedazzled jewels.
There are a few ways one can choose to respond when a cafeteria full of people has just witnessed you blunder. You can run crying from the room as applause erupts. You can call down the fires of heaven to disintegrate you on the spot. You can walk away quickly, pretending nothing happened. Or, you can take your bow as you stoop to help in the clean up and then mentally smack yourself in the forehead every time you recall what happened later, which is what I choose to do every time. As lookers on there are also choices in how to react. The slow clap is a popular response to tray dropping as is a moment of stunned silence. But my personal strategy is offering empathy, which is what I’m doing now to all those who have found themselves standing in front of a tray full of fallen cafeteria food. I am with you.
As a clumsy freshman I dreamed of the day that I would be an upper classman, full of grace and dignity, and these unfortunate little slip ups would be funny anecdotes banished to the past. Well, I’m here to testify that though there are lessons learned (like dry your shoes and hold a railing before attempting to descend the stairs in the winter, wear sensible shoes when it rains, carry some kind of portable stain banishing device AT ALL TIMES or at least don’t get the manicotti while wearing a white sweatshirt and no talking on cell phones while carrying your tray – it just doesn’t work) there is no guarantee that with lessons comes mastery of even walking and thinking at the same time. It was the end of last semester. I had just nailed a history final and I was on top of my academic world as I made my way from Boebel to the Student Center for a celebratory Cream Ice. Diana Ross belted “I’m Coming Out” in my MP3 player’s ear buds and the words had new meaning to an overly confident me. “I have arrived” I thought to myself, “after three long years I’ve got this college thing completely under control” but my thoughts were interrupted by a jarring collision with a sapling. Yes folks, in the wide openness of the courtyard between Boebel and the Student Center I found a tree to run my cocky self into. I got a good laugh out of it and so did about 75 others who were traversing the courtyard but had somehow managed to avoid the stationary objects.
Why am I telling you all this? That would be because I witnessed a younger me falling down almost an entire flight of stairs in front of God and everybody during the lunch rush at the Student Center on one of the rainy days last week. Fortunately she managed not to take anybody else with her, but unfortunately she about got trampled by the indifferent crowd who barely managed to step over her before proceeding down the stairs toward lunch. I recognized the mortification in her eyes and the uncertainty of how to react. Honey, wherever and whoever you are, I am with you. It might not get better but it makes a heck of a story. And to the rest of you who stepped over her, I know hunger is a compelling sensation, but the next time the stairs are a little bit wet or your journey with your tray filled with obstacles, don’t fall because I’m just waiting to start the slow clap.
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And the solution to the tube problem is.... on September 25, 2007 9:36 am
A NEW TUBE!
Yes, just what I always wanted - NOT. My surgeon called me this morning (you should all be impressed) as I was still knocked out from hydrocodone and anti-nausea suppositories (when I have really bad pain I get sick to my stomach no matter where the pain is, so a while ago I got a perscription for these suckers and they work really well and they make me really sleepy - so I get to be not sick to my stomach and I get to sleep). He was genuinely concerned about what I told the nurses when I called in (both last night, over the weekend and on Monday). His dilema is when he has talked to other surgeons from around the country, experts he calls them, they don't think he should remove the stomach. They think he should try different meds with me to see if they work. So I start a new med today that is supposed to help my stomach empty. He also called in a perscription for a refill of my hydrocodone (I am down to 3 pills). When I see him on Thursday we'll check on how the new med is working and put in a less invasive tube. I DON'T WANT ANOTHER TUBE. I want a permanent solution! But I suck at telling him that. For whatever reason I just turn into a wuss when I'm on the phone with my surgeon - I'm all "Thanks for trying...I will have to try that....that sounds good...okay....see you Thursday...thanks for calling in the refill for me..." SOMEBODY SLUG ME!
I'm not thinking about killing myself, I'm just wondering how am I supposed to live like this? SERIOUSLY HOW? Please explain to me how I am supposed to go on with the chronic pain and no end in sight and - A TUBE? Really, how does on function under those circumstances? I hate this tube. It is gross, it makes ME gross. And worse than that it HURTS. Dr. Baker thinks the new tube should hurt less because it is less invasive. Talk to me about how a tube that goes in to your stomach through a hole in your abdominal wall can be "less invasive" than another tube that does the same thing. I don't get it.
I am just beyond - way beyond - ready to get back to business as usual. In the meantime I just am going to have these moments. So thanks for being there.
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Complication Country- It just won't go away, :'( on September 25, 2007 1:00 am
THERE IS SOMETHING SERIOUSLY WRONG! It is 3 in the morning here in Wisconsin (seems like that is the only time I update sometimes) and yet again I have been awoken by gut wrenching pain from the stupid tube. It is a new kind of pain, kind of a sharp stabbing pain, as if the inside part of the tube is trying to puncture my vital organs. OWE. I woke up with it around 2 am and 2 hydrocodone and 2 ibuprofen later it is just as bad as when I woke up. I am starting to panic. I am also starting to get depressed. I am also starting to cry. I called the nurse hotline and they said what they always say, "What do YOU think you should do?" which is a big help. *sigh* I have yellow mucosy pus mixed with a little blood soaking through the dressing on the tube site - a little more than usual, but not much. The biggest difference though is the type of pain - sharp and stabbing instead of dull and crampy as usual.
I am contemplating going to the ER now (in La Crosse, so that would be a 2.5 hour drive from here that I would have to wake my husband up to make since I'm doped up on pain meds) or tomorrow morning. Either way I'm going and either way I'm not leaving the hospital with this stupid tube in place. Someone is going to fix me for good, not send me home stiffled with a tube that is about as miserable as the original condition.
I can't go on like this.
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Complication Country - Here I am Again, Late Night Pain Fest on September 21, 2007 12:59 am
Good Morning. It is 3am and I find myself in an all-too familiar situation. I woke up because the pain was too much. The difference between now and two months ago is the pain is caused by the drain in my excluded stomach that pushes against my abdominal wall when I try to recline. The site where the tube comes out of my stomach is also irritated and that was another reason I woke up - when I got up puss and blood had seeped through the thick sterile cotton balls and dressing I tape on every day, causing an itchy and painful mess all over my stomach and shirt.
What is exasperating the situation tonight/this morning is the fact that my toilet chose this very hour to over flow. When I wake up I generally have to use "the little girls' room" so after taking 1 hydrocodone and 2 ibuprofen (I know we're not supposed to have these but what I had was muscle pain and though hydrocodone will make me "not care" about muscle pain ibuprofen will actually do something to relieve the pain) I went into the bathroom to see an empty toilet bowl (no water, nothing). In all the inteligence one posesses when rudely awoken by pain at 2 in the morning I decided to try flushing it to see what would happen. The exciting end of that experiment left me with 1/2 an inch of water on my bathroom floor. We live above an antique store, so as tempting as it was to just leave the great bathroom flood of 2007 alone until a more decent time of day I begrudgingly set to work cleaning it up. I should have called FEMA then I would at least have a usable toilet in one of their trailers. Half an hour later I had 3 soaked towels, a sopping bathroom mat and wet socks not to mention a clogged toilet. A box fan is drying the water I didn't get and after plunging for a while I'm trying a new experiment.
The experiment I'm trying now is "wait and see". While waiting I took off the dressing around the tube site to clean the whole patch of skin and let it air out a little (I washed my hands really well first). It is still pussing a little but at least the bleeding and itching have stopped. I still would like to use the "little girls' room" and am considering walking down to the 24 hour gas station a block away, only a healthy fear of the dark means I would probably wet myself before arriving there.
My hydrocodone has kicked in, but as much as it makes me "not care" it doesn't take away the fact that I have been here before. As of right now I have no follow up treatments, tests or consult appointments scheduled. The last I heard from my surgeon was Monday (after I called him) when he told me to "experiment on my own" to see what helps and what doesn't. When I asked if I needed to schedule any follow-up appointments to check in with him he said "No, I think we can accomplish everything we need to over the phone." I have been released into the world with a tube and a script for medication that makes me as jittery as a heroin addict, to basically treat myself. The medication that makes me nuts was one of the things I was supposed to "experiment" with. Well, I tried it but it makes me crazy so no matter how much it might have helped treat whatever it was supposed to treat in my no-longer-functioning stomach it wasn't worth being loony, or loonier than normal anyway. The few times I took it I found it painful to sit still. It felt like my blood was clotting in my veins and my muscles cramped up from the idleness of sitting in class. Not cool. So I don't take it anymore and that feeling went away - pretty conclusive experiement right there. The other thing I was supposed to "experiment with" was clamping my tube to see if that provokes pain. I did and it does, but we knew that already from when my old tube got clogged and I ended up hospitalized from Sunday until Thursday because of it. Great. Now what? A whole lot of nothing, that's what.
It is flirting with 3:30am over here in Wisconsin and my toilet seems to be unclogged now - or at least the water level is more normal looking. I guess it is time to try flushing again. If I don't post what happens call the Red Cross and other flood relief organizations to alert them to the flood in Cuba City, Wisconsin, but tell them also that at least for myself, I don't need a life boat - I'll just inflate the ball on the end of my tube and use that as a floatation device.
Well that didn't work. It didn't overflow at least but the water just got higher without emptying at all. Okay, new experiment time. My new experiment will be crying in late night frustration and cursing at the broken toilet. Yes, I think that just might do the trick.
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Off Topic - Help me name my column... on September 18, 2007 5:59 pm
Carrie had "Sex and the City" and now I need something to call my weekly column in the newspaper. It is an opinion column where I get to contemplate things of importance to me and hope they make sense in context. Here are my ideas....
"What Harshes My Mellow" (1)
"The Way I See It" (2)
"My Meandering Mind" (3)
"____________" (4)
Basically number 4 would be whatever anyone can suggest. I need something by next Tuesday night so help me out - VOTE.
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Complication Country - The Latest Bump in the Road on September 17, 2007 8:44 pm
The saga continues....
On Saturday I was pretty fed up with this whole mess. I was trying to pack the site where my tube comes out of my stomach (the hole is bigger than the tube so it has to stay packed tightly) and the tape and gauze were not cooperating. I was trying to get old tape off and get new tape to stick but I have a rash from all the tape I have to put on and pull off every day, so Friday night I spread some soothing cream on to help heal the rash so Saturday morning the new tape wasn't sticking because of the cream and the old tape was cemented on. Finally, in a fit of stupidity, I gave one good tug to the tape still stuck and the tape came off alright but it brought with it the tube! That was a little shocking to say the least to see my tube laying there on the floor. I quickly taped a sterile cotton ball over the opening (which was gushing goo and blood) and called my surgeon's hospital. They told me to come right up.
My surgeon was on call but he didn't actually come in - kinda still mad about that - instead he just told them what to do over the phone, which ended up being re-inserting a tube. OWE. That was not fun. The interventional radiologist, Dr. Fondel (I know him personally now, he has done all of my tests up in La Crosse), came in after the ER doc couldn't get my tube back in (he tried but it just wasn't working and I was bawling/gagging because him trying was agonizing). It took about an eternity of fussing around inside my abdomen with instruments of torture (I was shaking, crying and gagging by the time they got it in) to get the tube back in. One of the radiology assistants held my hand and told me what a good job I was doing (I wasn't doing much of anything except trying not to cry). When it was all finished Dr. Fondel told me that the next time I wanted to visit him I should just call ahead and stop by, no need to yank my tube out.
I spent the rest of Saturday choking down pain meds and anti-nausea pills and taking it easy. Dr. Baker still hasn't told me what is going to happen next so I go on living in limbo with a stupid tube in my gut being the only thing keeping me from painful attacks. The problems with the tube being many, at least it does that much. I wish I had something more cheerful to report, but unfortunatley I'm just seeing the emptiness of the glass I have been served at this point. I'm still hanging on and hoping for a solution soon.
THEN - Today (Monday Sept 17th) I heard from Dr. Baker. He heard back from his colleague at Mayo and they decided we shouldn't do anything drastic yet (yet, as if this has only been going on for a few days). Instead I'm supposed to "hang tight" and experiment to see what makes things better and worse. I'm to try stopping up my tube to see if the new medication works on its own. I'm to try not taking the medication to see if the tube works on its own. I'm to try standing on my head in a tub of pickles, gargling club soda while singing the national anthem and spinning around three times...well maybe not that, but you get the idea. I'm a little irritated about that to say the least, but one of these days I'll get around to optimism again. I'm thinking about asking Dr. Baker just to take the tube out so I can feel semi-human again, but then there is the problem of "what if the pain comes back?". I guess we'll cross that road when we come to it but at least I don't end up even pretending that the tube is a permanent solution. The tube makes me feel like I'm sicker than I maybe am, or maybe it makes me realize how sick I really am, but whatever - I just want it out - as childish and short sighted as that might be I want it OUT. All I know is I'm not going to feel whole and healed with it in so take it out and we'll go from there. I plan on calling Dr. Baker with this decision tomorrow (not that anyone asked my opinion) so we'll see what happens.
Thanks for being there one and all. You guys keep me going.
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Complication Country - It Never Ends on September 17, 2007 2:53 pm
I feel like I’m dying and nobody is doing anything to help me. Maybe that is a little over-dramatic but there are many moments it is my reality. I live with a tube running from my stomach through a hole in my abdomen to a suction ball that keeps digestive juices from building up and causing discomfort and pain. That can’t be healthy. I take at least 1-2 pain controlling pills EVERY DAY to keep myself minimally comfortable. I also take 2 multivitamins, 1 B12, 1 iron, 1 calcium and fiber supplements to function. Add to that a pill I take for anxiety attacks on a regular basis and an antidepressant not to mention the pill I take 3 times a day to help make my abdominal muscles work and that is a grand total of 11 pills. And I’m only 21! What am I going to be doing when I’m 30 if I even make it there!? Currently I’m strung out on anti-nausea suppositories mixed with the other pharmaceuticals I am taking. I am restless but exhausted, wired but weary. At this moment I hate my life.
Normally I wouldn’t be so keen on having a major organ removed and in theory waiting to see if this problem goes away on its own sounds great, BUT how long does that mean I have to live like this? I have a painful rash on my belly from removing and re-sticking medical tape every day. I cry myself to sleep and write my last will and testimony as I dream. “Tell Sam about me, okay? Tell him his Aunt Amy loved him and would have done anything for him. Tell him she is sorry she couldn’t play more with him because she had owies on her tummy. Tell him that I loved him – you will tell him, won’t you? Tell my mom I’m so sorry for being so selfish. Tell her I never would have done this if I had only known…I wish I had only known.” And my tombstone will be a cautionary tale of a naïve female Adonis seeking beauty but her quest cost the only life she had, but the people who really paid the price for her selfish quest were her friends and family.
When does WLS go from being the best thing I ever did for myself to the biggest mistake I ever made? I’m thin and don’t have diabetes but I’m also a walking pharmacy and looking at months of uncertainty and a possible major surgery (another major surgery). This could kill me. It really, honestly could kill me.
I’m stressing out myself, my friends and my family not to mention any pre-op who stumbles upon my story. I went from being a WLS poster-child to the nightmare scenarios misinformed jerks tell people to keep them from having WLS. This is a nightmare.
And might I just add because there didn't seem another appropriate place to say it - the last thing I want to do while tubed is have sex. Sorry, that's just how it is. I feel sub-human and I feel guilty for feeling sub-human because I'm not up to performing like a normal wife should. I want to sleep, I want to cry, I want to rest, I want to take walks, I want to vomit, I want to be normal I really, really do but until then I do not want to eat, I do not want to do sit ups and I do not want to have sex. The whole eating thing is unavoidable and I thought the other two would be avoidable for a while but I guess not. I guess that is too much to ask. I guess I get to feel bad about that too. Thanks. Like I didn't have a guilt complex already.
And again, this is a nightmare.
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My First Exponent Article on September 14, 2007 1:40 pm
Here, happier subject. On Thursday (yesterday) my first article came out in the campus newspaper. Yay! That is a huge accomplishment for me and I am very proud. Here is the article...
Scooting Into the Semester
The first week of classes this semester I had a unique opportunity to experience UWP in a new way. Due to some unusual circumstances I found myself scooter-bound. The short version of how I came to find myself cruising into the new semester via electric scooter goes like this: after a long summer of medical complications I had a pretty major abdominal surgery the week before classes. The only way my doctor would give me medical clearance to come back to class was if I would agree to spend at least the first week taking it easy in some kind of electric wheelchair. Before then I had seen students scooting around campus but I hadn’t the foggiest of how they were able to procure such technology. Like any gen-Xer in the age of the internet I did a quick search of the UWP homepage and voila, I stumbled upon the Students with Disabilities office. After a couple more clicks I was in the possession of an e-mail address for Student Health Services (located on the second floor of Royce Hall) and SHS hooked me up with my set of wheels. All I had to do, it turns out, was ask.
In my three years as a student never had I realized how handicap accessible UWP really is and in other ways isn’t. From my comfy scooter seat I gained a whole new perspective on the campus I thought I knew. In all of the academic buildings there is at least one set of doors with an automatic opening door to assist the differently-abled in gaining entry. However the universal access stops upon admission. Russell was the worst from what I experienced because the only door I could find with a handicap button for the doors was not working so I had to do some fancy scooter maneuvering to get myself through the door with a couple wall bumps and failed attempts before finally getting inside. Once inside the wider hallways and simple layout was more than accommodating though. Boebel was slightly better because the automatic door was actually working but once inside there is the problem of getting around. The hallways in Boebel are significantly narrower than the halls in Russell and any other building I have experience with for that matter. I managed not to squish any toes that I know of but I felt like a cause of traffic congestion and that only added to the heightened self consciousness I already was experiencing. Doudna wins the prize for most accessible. The halls are wide, the automatic doors worked automatically, there is an elevator to whisk me and my scooter to the second floor and like all of the other buildings it was full of my helpful colleagues. Glennview, with its locked elevator lost the contest of easiest to get around dining facility to the readily accessible Student Center with its wide corridors and centrally located elevator. But again, the component that made any of the buildings remotely scooter-friendly were the people who wandered their halls.
The overwhelming finding from my adventure in scooting was the willingness to assist and accommodate of my fellow students and of my professors. Doors were opened, hallways were cleared, elevator buttons were pushed, desks were moved, trays were carried, encouraging smiles were given – and I didn’t even have to ask for these special accommodations from people I am only connected to via our mutual admission to UWP. You guys rock.
I have since ditched the scooter in favor of moving a little slower. From my scooting days I have gained a new appreciation and respect for anyone who finds themselves permanently scooter or wheelchair bound. There are hurdles us walking folks can’t even imagine. Though painful and albeit more slowly than usual I could always get out of the scooter to retrieve a runaway pencil or open a closed door when no friendly collegiate was around. What of the folks who are truly handicapped? That is where we come in. A theme constantly repeated to me as a student is “no man is an island” so let’s keep that in mind this school year. Be always on the lookout for ways to lend a hand. Linger a moment longer to keep that door open for your classmate with a full load of books in one arm and a Pioneer Perk cup ‘o joe in the other. Stop to help gather the strewn papers dropped by your colleague in distress. Sign up to be a note taker and when the blood drive comes around be first in line to sign up. Offer encouragement and assistance to one another without ever being asked and with no thought to what you stand to gain. That, my friends, is what being a Pioneer is all about.
I turned in my second article last night and wrote my third one this afternoon . This is a good gig.
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Back from tests - UGH! on September 14, 2007 1:32 pm
 Howdy folks,
This is hard for me again today to report that although my tests Wednesday (all 5 hours of them) were conclusive my surgeon is still hesitant to act. Fluid just sits in my detached stomach like lead, but that isn't enough to move forward. I am frustrated. I know Dr. Baker is trying to do what is best and I have come to realize that he is a conservative medical practitioner and I understand that but this has been going on for a long time now. He is going to call a colleague of his up at Mayo Clinic and ask for suggestions. It seems obvious to me that I just need to have my detached stomach removed, but I guess that is just me.
The radiologist as he is watching the contrast in my detached stomach for 5 HOURS as it barely moved at all (mainly it just emptied as my movements caused my stomach to get squished a little and force some fluid out) said "I have never seen this before" and that is a lot because the radiologist is old and gray!
So I'm back home with my tubing and baggy full of digestive goo pinned under my shirt to stave off painful attacks. A couple of times now I have rolled over on the baggy while sleeping or accidentally popped it open some other way. It is not fun to wake up with digestive goo all over me, my sheets, my PJ's and everywhere. Digestive goo smells bad, just an fyi. It also is funny colors (kinda like snot sometimes, other times it reminds me of a flat beer in color and consistency and now that I think of it - smell). The spilling of digestive juices is only insult to injury because the stinking tube HURTS. It is coiled up (so I'm told) inside my stomach and when I sit or stand or lay the wrong way (the wrong way being 7 out of 10 ways there are) it pushes into something (I imagine my stomach wall but I really don't know) and that is not pleasant. It isn't the crippling pain I started out but the idea was to GET RID of pain all together not trade one in for a different one. I didn't post earlier because I am really depressed about it and have been trying to talk myself off a ledge.
Thanks for being there and for understanding. I am just REALLY ready for this to be over.
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My First Paper of the Year - Thought you might enjoy this... on September 11, 2007 10:30 am
Howdy folks, I just got done putting the finishing touches on my first paper of the year (it is due tomorrow). It is for a class called "Contemporary Social Problems" and the idea was to write a paper about how contemporary social problems have affected your life. I had to tell a story about myself and then identify social problems that have played a role. So I got to rant and rave a little and it was fun. So hear ya go, my Contemporary Social Problems Paper:
Ah, the paper I’ve written a thousand times. The “who are you and why should I care” paper. With every year that goes by different events in my life stand out as significant while others that seemed important fade into “oh yeah, that did happen” moments that only come up on visits to my hometown. No matter the shifting there have been a few under tones that have dominated the landscape of my life. I don’t buy into being a victim of circumstance. Instead I believe circumstance taught me to do better and rise above conditions I couldn’t control. Society has problems, but that doesn’t mean I have to be one of them.
The defining moment of my childhood happened when three days before I turned eight my dad abandoned my sisters, my mother and I. He left us with no money, hundreds of miles away from family and heartbroken. We had to relocate our broken family to live near my grandparents, from North Carolina to Wisconsin. For the first years we survived on my mother’s salary (less than $6,000 a year), food stamps, welfare checks and the charity of others. By the grace of God enough was always provided. My mom pulled herself out of personal tragedy and through watching her I learned the same values. She worked hard, took night classes, spent quality time with her children and did it all with a smile and a “will do” attitude instead of the all too pervasive “poor me” one that infests our current entitlement culture. Within five years we were off assistance, within seven her yearly income more than quadrupled and by the time the tenth anniversary of my dad’s departure came she had purchased our home. Now that isn’t the only thing of significance that ever happened to me, but it would forever change me and shape my outlook.
Needless to say my mom is my hero and a major shaper of my life. Heroes are often born out of necessity, so there definitely were societal problems that made my mom step up. The number one societal problem I see is the marginalization of the family. It is obvious how the marginalization of the family has affected my life. My dad left to be with another woman, forsaking the wife he made vows to and the children he fathered because that was what felt good at the time, no matter how devastating it was to his family. His leaving has affected my relationships and ultimately my marriage, my ability to feel safe and how I learned to think about myself. And in our society he is far from the only husband/father to ever do that. Heck, I should count myself lucky that my dad stuck around at all seeing as according to Dr. Robert Rector of the Heritage Foundation 38% of American children are born into fatherless homes (and just another interesting fact from Dr. Rector, two-thirds of American children living in poverty are being raised in single parent homes). If the nuclear family and family values were important, or at least more important than self indulgence we wouldn’t see numbers like that and we wouldn’t be in the moral decline which we are experiencing. The family is where values are supposed to come from. Parents are to model to their children what is right and wrong, how to form and maintain healthy relationships even in the midst of hardship and how to be productive members of society but that isn’t happening. Children and the family have been abandoned to pander to the reckless and thoughtless behavior of one or both of their parents and society as a whole, which leads me to…
The rise of moral relativism. Moral relativism is a big term meaning “what is pleasurable for me is right for me, what is pleasurable for you is right for you” and it sounds nice in theory. Moral relativism is part of the humanist movement and so I know just where it finds its roots: Evolution. No one is ever going to convince me that the cosmos were formed out of a big bang or that all life evolved from pre-historic goobers no matter how many of my biology, anthropology or history textbooks and lectures “they” insist on cramming it into because I know better. If you think ME gullible for believing a supreme creator made the heavens, the earth and everything in it please explain to me again how against all probability and common sense randomness and nothingness created a universe governed by natural laws. Not only has evolution been debunked (yes folks, evolutionary principles have been disproven in instance after instance – when was the last time you heard THAT in biology?) but there are NO – count them, ZERO cases of a species evolving into a different species in recorded history. But that isn’t my biggest problem with evolution. Evolution, to me, espouses secular humanism which perpetuates moral relativism and moral relativism justifies animal-like behavior (“you and me baby ain’t nothin’ but mammals” – isn’t that how the song goes?) such as procreation without regard or responsibility, thug mentality (if I want it, and I have the means to take it from you, natural selection and survival of the fittest tell me I’m entitled to it), and “what feels good, is good” (“what is right for me is right for me – even if that means I shoot you in the face, abuse substances, sleep around, or live all my days without any responsibility for my actions”). When you take God and a defined version of right and wrong out of the equation all that is left is a bunch of pale, erect and almost hairless primates vying for power, sexual privilege and instant gratification.
Finally I come to the beginnings of persecution against Christianity in America. The church doesn’t have a spotless track record for treating humanity in the way in which it deserves and I’m not squeamish about admitting that and again offering my sincerest regrets that a bunch of dead white men did a bunch of terrible things in the name of religion. But what started out as healthy separation of religion and government has turned into discrete warfare against the Christian faith. We have been kicked out of school (can’t sing Silent Night at the Christmas concert but bring on Oh Hanukkah and Kwanza songs, can’t talk to others about our beliefs without getting thrown off campuses but schools will pay for Muslim foot-washing stations to be installed on campus, can’t pray in school but go ahead and drop that F-bomb because it is free speech, our crosses offend so they can’t be worn but that mini skirt and shorts hanging off your behind are forms of self expression – do you see it yet?), our doctrine is called “hate speech” (yes, Leviticus says homosexuality is abominable but that doesn’t mean the Christian God sees homosexuals as abominable or that Christianity condones hate-motivated killing or harassment of homosexuals. It is quite possible to hate the action but have great compassion and love for the actor) and our values are called “backward” and “oppressive” so we feel like we have to apologize for our beliefs, which doesn’t feel like religious freedom to me. It scares me into thinking that one day in my future it won’t be safe to be a practicing devout Christian. I have written many papers, done several presentations in defense of the Christian faith and on the offense against things like evolution that point out that fake science is put forth by activist educators just for the sake of persuading some “misguided” Christian students away from their faith. We are lied to and it is called fact to make us stop believing and to make us feel guilty about events of 100 years ago. If there is one element that has shaped my life more than my mom it is my relationship with God. He was the provider for my broken family. He is my strength and motivation to keep doing what I’m doing and not fall prey to popular thought. So even though I have the science to dispute things like evolution I don’t need them because I already have enough by way of Godly provisions and faith to know Creation is the only way it could have happened.
There are more societal problems that have affected my life, such as the rise of obesity and unequal access to healthcare but the social problems, and they are social problems, that are currently affecting my life are the marginalization of the family, the rise of moral relativism and be beginning of persecution against Christianity. But like I said at the beginning of this paper, that doesn’t mean I’m going to take these problems lying down. As you can see, I am a force to be reckoned with.
A little gets lots in the formating when I copy it on here, but I think you get the idea. It also kind of stinks because it was only supposed to be 2-3 pages so I had to cut it short. Shorter papers have always been harder for me because obviously I have a lot of words. Anyway, I'm off to class and then tomorrow are my tests Let's all pray they are the last tests I have to have. I am starting to feel like a lab rat. Thanks for everything guys. I hope to be able to post tonight before I leave for my mom's house, but just in case I don't I love you guys and I appreciate all the sweet things you've said and done for me. Don't ask me why I'm feeling...well...to be quite honest I'm feeling like I need to get my things in order just in case. I hope that's just pre-testing jitters. But really now, I'm off to class. I love you!
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Short Update... on September 10, 2007 12:15 pm
Here's the scoop. I was supposed to go for the LAST, absolutely LAST tests on September 17th, but after some calling and whining (I have a love/hate relationship with the new drain they put in my stomach before I left the hospital 2 weeks ago because it really does work to stave off painful attacks, but it is also uncomfortable and unsightly - I carry around a baggie under my shirt that collects digestive goo, not really sexy) to my surgeon I got them moved up to Sept 12th (that'd be this Wednesday). I'm looking at an Endoscopy, Upper GI and CT scan and HOPEFULLY...I'll say it again HOPEFULLY I'll be having surgery close after that.
It seems like my surgeon pretty much knows what he needs to do (remove the detached stomach and bypass the duodenum around the SMA artery) it just feels like feet are getting dragged for the sake of thoroughness - which I'm sure is a good thing, I've just had it with waiting.
In the mean time school is good and getting better now that I have stopped changing my schedule. There were a couple classes that just weren't going to happen with me needing to take a week off for surgery so I dropped them and added 2 new ones. I am happy with my schedule now and after speaking to most of my professors I think they are willing to work with me as long as I do my best to stay caught up. And I absolutely plan on doing everything in my power to stay caught up. I am a freak and I LIKE classes (especially my 3 upper level history classes this semseter - booyah! that is going to rock, and I am absolutely serious when I say that) so I don't like missing them either. My years of being a good student are going to pay off.
But for now I need to grab a yogurt and get to my final class of the day. Wish me luck!
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Complication Country - The Power of Prayer on September 3, 2007 2:27 pm
Pain does funny things – not funny, bad word choice – pain does awful things to people. Chronic pain does even more awful and destructive things. Which is why I have been struggling with depression and anxiety more and more. It is time to put the brakes on that line of thinking and time to start doing the only thing I know can help. It is time to pray. From my last couple entries you might never have guessed that I am a devout Christian who believes in the power of prayer and divine intervention because I was pain-dumb. That is going to stop now. I went to my home church this past Sunday (Sept 2nd) and so many people told me they were praying for me (this is not to mention all the folks on OH who have sent me e-mails and posted replies telling me as much) and it struck me that I haven’t really been praying about this. It is past time to start.
Dear God, I am sorry it has taken this long for me to bring this up. You know what I’m going through. You’ve been with me in the middle of the night, the middle of the day, during every moment of my pain. I’m getting scared. I’m scared that I won’t live through this or that when it is finally over I’m going to be mangled inside. I feel like a failure and a bad example for weight loss surgery because I am having this horrendous complication, but in the same moment I feel like I’m not suffering nearly as much as others like Renee, Val and Becky so where do I get off complaining. If I followed the rules I thought I would be safe and that people who were desperate for a solution to their morbid obesity would look at me and see a way out for them. Now I am a horror story that people tell their friends about to discourage them from having WLS. I don’t want to be a horror story and I don’t want to die from this. I want to be healthy and live a long life. Please give my doctor’s wisdom and urgency to help me. Please guide their research and the technicians doing the tests on me to find the source of my problems and then make the solution obvious. Thank you for Your hand in getting me closer to a solution and I pray for Your peace for myself and my family. Amen.
There, that makes a lot more sense. The past couple of days have been touch and go. On Thursday (my first day home from the hospital) I crashed at about 8:30 and slept until almost 11am Friday. Friday was nap day - well, nap, eat, drink day. Friday night was disrupted at about 3am with my tube getting clogged and pain mounting. I managed to unclog it, though in the process I made myself really sick to my stomach - so I took a lortab and managed to sleep until 7am Saturday. On Saturday I went to "supervise" my little sister moving into her dorm. By the time I got there my mom and Cathy had pretty much everything taken care of so I just helped take things out of packages then I accompanied them to Wal-Mart to pick up essentials like granola bars and a power strip. I am excited to spend more time with Cathy this year since she is going to college in Platteville with me. Sunday was spent the morning in church (Kyle and I did the children's sermon and everyone, young and old, got a kick out of it) then out to a Chinese restaurant for lunch with my grandparents - then back to Platteville so Kyle could go to work. I spent the afternoon attending orientation events with Cathy. We went to a "Block Party" (free snow cones and inflatable games) and then I helped her set up her internet. After that we ran into a good friend (a great friend actually) of mine and we suffered through a meal at the cafeteria together before attending an outdoor movie (Shrek 3) and "pizza sampler" (all the pizza places in town - and Platteville is a college town so there are a lot of them - brought pizza and cut it up into little squares so students could try a couple pieces from everywhere). I over did it I'm afriad. Today I am pooped. I met Cathy for brunch and thought about sticking around to hang out but I decided I needed to relax today so I could be ready for tomorrow. My surgeon still wants me to use the electric wheelchair thingy to get around campus so I don't over do it. That is fine with me, especially seeing how yesterday went. That's all I've got for now. Thanks for being there guys!
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