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on October 26, 2008 1:28 pm
I spent most of September and October vomiting, and was getting nowhere. The diagnosis is still unknown, but they say they found some "contributing factors."
I saw my nutritionist on Oct 14th, and she was stumped as to what was going on with me. Daily vomitting, severe nausea, numbness in my face, hiccups constantly. At that point I was feeling so sick, exhausted, and dehydrated that I had a feeling they'd stick me back in the hospital, again! She spoke with my surgeon, dietitian, and several other doctors in her office. My bloods weren't back yet because of Columbus Day so she said she was going to keep me posted.
The doctor got my 3 month post-op bloods the next morning and called me at 9am. She said that I needed to go directly to the hospital and that one of her partners would be expecting me. My vitamin levels were extremely severe. My thiamine (B1) was the worst- to the point where it was causing nerve problems and numbness in my face.
They hooked me up to IV fluids and stuck thiamine and folic acid in the first bag, and the infusion began. The next morning they took out my IV and put in a pick line. They began TPN (Total parenteral nutrition- basically feeding me through IV). I was in the hospital for 6 days until they were satisfied with my vitamin levels. I was sent home on TPN, for how long, is currently unknown, I am going into day 12.
I was able to go off clear liquids by day 6 in the hospital. I'm able to do mushies now. I do still have mild nausea, but it's tolerable enough that I don't have to take anything for it. The smells are still bothering me, but I have to just go with what appeals to me each day. The doctors are still not sure what caused me to get so sick. I was taking a multivitamin up until the day I went into the hospital it just didn't seem to be absorbing I guess? They let me go home, but wanted me to have a full GI and Cat Scan as an outpatient, but I'm a little hesitant to start drinking things and fooling around more while the nausea seems to have subsided.
So, for now, I have a home health nurse come once a week for dressings and bloodwork, I hook myself up to TPN for 12 hours a night, and I'm able to live more normally during the day. I am able to eat and drink but only about an ounce or two at a time. My stomach is still churning and rumbling like crazy, but one of the GI doctors suggested that giving my stomach the break that it got (while in the hospital) may have been just what it needed.
1 comment | Click here to leave a comment.I saw my nutritionist on Oct 14th, and she was stumped as to what was going on with me. Daily vomitting, severe nausea, numbness in my face, hiccups constantly. At that point I was feeling so sick, exhausted, and dehydrated that I had a feeling they'd stick me back in the hospital, again! She spoke with my surgeon, dietitian, and several other doctors in her office. My bloods weren't back yet because of Columbus Day so she said she was going to keep me posted.
The doctor got my 3 month post-op bloods the next morning and called me at 9am. She said that I needed to go directly to the hospital and that one of her partners would be expecting me. My vitamin levels were extremely severe. My thiamine (B1) was the worst- to the point where it was causing nerve problems and numbness in my face.
They hooked me up to IV fluids and stuck thiamine and folic acid in the first bag, and the infusion began. The next morning they took out my IV and put in a pick line. They began TPN (Total parenteral nutrition- basically feeding me through IV). I was in the hospital for 6 days until they were satisfied with my vitamin levels. I was sent home on TPN, for how long, is currently unknown, I am going into day 12.
I was able to go off clear liquids by day 6 in the hospital. I'm able to do mushies now. I do still have mild nausea, but it's tolerable enough that I don't have to take anything for it. The smells are still bothering me, but I have to just go with what appeals to me each day. The doctors are still not sure what caused me to get so sick. I was taking a multivitamin up until the day I went into the hospital it just didn't seem to be absorbing I guess? They let me go home, but wanted me to have a full GI and Cat Scan as an outpatient, but I'm a little hesitant to start drinking things and fooling around more while the nausea seems to have subsided.
So, for now, I have a home health nurse come once a week for dressings and bloodwork, I hook myself up to TPN for 12 hours a night, and I'm able to live more normally during the day. I am able to eat and drink but only about an ounce or two at a time. My stomach is still churning and rumbling like crazy, but one of the GI doctors suggested that giving my stomach the break that it got (while in the hospital) may have been just what it needed.
