Honeypugs 11 years, 7 months ago

Hi all. My neurologist has given me diagnosis. He said I have CHRONIC INFLAMMATORY DEMYELINATING POLYNEUROPATHY now thats a mouth full. He is going to try sending me to the cancer center to get IVIg to try and reverse the effect of this disorder. If it doesn't work then I have something else and he would't tell me what but did tell me would have to undergo chemo. I just can't believe my luck that I finaly try to get my life back and here comes this problem 3 months later. This disorder is not caused by the WLS. It is common n young adults and the symptoms are close. The doc said that if it is CIDP than I should walk 3-4 days after receiving the IVIg. I am praying that this is going to work. Thank you all for the support. God Bless!

swangirl 11 years, 8 months ago

Praying for you Amber and you are not alone! Linda~Swangirl

Honeypugs 11 years, 8 months ago

THANK YOU ALL FOR YOUR SUPPORT! Idon't have any new news. I feel so alone here. I have family and one close friend but they are all tired of listening or thinking of my problem. I on the other hand can't stop thinking about this. My immediate family just say don't worry you'll walk soon and dumb things like that. Kinda like if we smile and ignore the real realavent issues she'll be okay in no time. I don't try to be negative but I just can't be possitive all the time. If this condition is not caused by my WLS then what? I have been tested for MS cancer nerve damage blood tests lots of those. Dr.Washington said I my nerve muscle tests were abnormal but has no idea why this has happened and doesn't know what test to do next. My GP's nurse said he told her he doesn't need to see me again. Hello I can't walk! I think I need a new GP because he doesn't seem to be concerned that I can't walk. Like I said I feel so alone and confused. I just feel nobody wants or can handle the truth of how I truly feel about this whole thing. I would try to go see a counsler but I can't get there and can't afford it either. Anyways thanks for the lovely cards that cheer mee up and also your prayers. All is appreciated.

lodigirl63 11 years, 8 months ago

hi amber , i hope you are feeling better honey we all are here for each other so if you need anything just ask ok and we will all try are best to help out ok i wish you the best and i hope the doctors find out what went wrong ! and i hope you are losing your weight because this is why we did this for right and may god wacth over you and keep you safe and my prayers are with you always ok take care sweetie ! regina ortiz

lodigirl63 11 years, 8 months ago

hi amber , i hope you are feeling better honey we all are here for each other so if you need anything just ask ok and we will all try are best to help out ok i wish you the best and i hope the doctors find out what went wrong ! and i hope you are losing your weight because this is why we did this for right and may god wacth over you and keep you safe and my prayers are with you always ok take care sweetie ! regina ortiz

Rose125 11 years, 8 months ago

My very best thoughts are with you. Warmly, Rosemary @),'----

silverwolfct 11 years, 8 months ago

hi there amber i hope that you are doing much better. i am sending you much blessings and hopes that things go well for you from here on. take care of yourself and lots of hugs blessings pam

chacha3030 11 years, 8 months ago

From one Thornton to another, Amber I hope you are doing better now, I am praying for you!!

jenyree 11 years, 8 months ago

Amber, We hope all gets better for you soon and that this line of best wishes will help ease the pain! Best wishes always! Jen M.

jenyree 11 years, 8 months ago

Amber, We hope all gets better for you soon and that this line of best wishes will help ease the pain! Best wishes always! Jen M.
About Me
Kennewick, WA
Location
55.9
BMI
DS
Surgery
11/11/2005
Surgery Date
Nov 17, 2005
Member Since

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