patngin posted a discussion topic 6 years, 9 months ago

Wanted to let everyone know that has had the DS like me. As you know I have had a lot of problems..

Well they have found out that I have Barretts Esophagus which is sort of a pre Cancer in the esophagus where it meet the remainder of the stomac


patngin posted a discussion topic 7 years, 1 month ago

Is this possible? I am very seriously considering revision because of years of malabsoption. To the point of malnutrition. Lost my legs because of poor supervision. A doctor who saved my life at that point thinks I need a revision after 17 years. He sa


patngin posted a discussion topic 7 years, 1 month ago

I watched a YT video and it explained the difference in the newer DS and the one I had. It showed how my older one the digestive enzymes enter the intestine at 75cm the new one they enter at approx 3M right next to where I used to have a stomach that h


patngin posted a discussion topic 7 years, 1 month ago

Looking at having a revision in my BPD-DS because after 17 years I am not absorbing enough. He said what the revision surgery does is introduce the digestive enzymes further up the intestine so that my food will be better broken down so I will absorb m


patngin posted a discussion topic 7 years, 1 month ago

Found out you can click on my name and see the photo..


patngin posted a comment 7 years, 1 month ago
This is me from PatnGin

patngin uploaded a new photo 7 years, 1 month ago

patngin posted a discussion topic 7 years, 1 month ago

Some of you may remember me since I am probably the most severe problem case of the BPD-DS around. I am at 134 now. Can't gain but very slowly keep losing more. The doctor I spoke of before is going to do a revision. He said it is not a really difficul


patngin posted a discussion topic 7 years, 6 months ago

Well just to let you all know we are both still alive. We are both still anemic, I am still 140 my wife has gained a little to 143 from 130. She has had iron infusions I haven't she has developed osteoporosis, we both of course have low HGB, my legs ha


patngin posted a discussion topic 8 years, 5 months ago

Well we got my wifes op rept from 2001 2 months after mine. It is completely different. He told us he always removed the gall bladder. Mine he did hers there is no mention. My common limb is 75cm hers is 100. My ecentric limb is 325 hers is 200. She ha


patngin posted a discussion topic 8 years, 6 months ago

Her hemoglobin was low hematocrit was low


patngin posted a discussion topic 8 years, 6 months ago

Both of us are anemic and are starting on some iron. Her Iron Binding was down to 2% but another number was high. Our PCP wants her on 2 iron tabs a day but didn't specify. We were going to get the Tender Iron from Vita Lady but now we are wondering wh


patngin posted a discussion topic 8 years, 6 months ago

I am not trying to scare anyone if we had this done by a good surgeon with knowledge they have today things probably would have been different but in 2001 this was really new and our surgeon did not explain what we needed to do to keep ourselves health


patngin posted a discussion topic 8 years, 6 months ago

Well we haven't been here lately and don't know if any of you know our story. This has been the worst thing we have ever done in our lives. Both of us are getting older now and have severe health problems. I have had to have my legs amputated what got


patngin posted a discussion topic 9 years, 5 months ago
another question about creon - How did it work taking an extended release capsule and how much did you have to take. Trying to figure out what my insurance will cover. How many and what strength per  day.

patngin posted a discussion topic 9 years, 5 months ago
Creon - You guys have told me about creon and was wondering were any of you in a place like me as far as losing too much that have used creon, and did it work for you. How does it work?

patngin posted a discussion topic 9 years, 5 months ago
CT - Well had the CT and it didn't show anything where they saw something but it showed granulomatous disease on left lung an moderate to severe changes is centrilobular emphysema. So I...

patngin posted a discussion topic 9 years, 5 months ago
Update - Well thought I would let you know what is going on now. I managed to gain 5.5lbs but lost 2 of that this week. Still on the 200g of protein. Went to the VA and one of the tests the...

patngin posted a discussion topic 9 years, 5 months ago
Katy S - Has anyone heard from Katy S. Sounded to me like she was in pretty serious condition.

patngin posted a discussion topic 9 years, 6 months ago
Let me explain something - I have told my story on here and I am an extreme example of what can happen with this surgery if you go into it blindly and uninformed. I just want people to realize this is probab...

patngin posted a discussion topic 9 years, 6 months ago
Good News - Although I am not out of the woods yet, my diet seems to be working. I was able to put on 3.5 lbs. It's tough to comply with eating all this protein plus trying to get 50g of compl...

patngin posted a discussion topic 9 years, 6 months ago
Trying to turn it around - Well I am trying to turn this undesired weight loss around eating and drinking 200g of protein a day. Eating more good foods. I was told by one doctor I might need a pancreatic enz...

patngin posted a discussion topic 9 years, 6 months ago
Well Good News - I contacted the surgeon that saved my life in 2007 and also amputated my legs. He is a Bariatric surgeon but took a special interest to me. He moved his practice to S. Dakota but I...

patngin posted a discussion topic 9 years, 6 months ago
I think this surgery is finally going to kill me - I had a BPD-DS in 2000. I lost a lot of weight. My first problem was malnutrition in 2007. It ended up with me in a coma and both legs amputated. Now I have had to have Open Heart ...
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Nine Mile Falls, WA
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20.5
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Oct 04, 2014
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