Anyone heard of CIDP? I was dx 4 years after RNY. (Chronic Inflammotory Demylinating...

jeanbell
on 2/4/13 10:46 pm - Standish, MI

My condition isn't listed but I am seeing a ton of Auto-Immune diseases dx following the weight loss surgery... Just to let you all know, my condition was very difficult to dx. It began with a little tingling in my toes, weakness in legs and arms, for a while it felt like I was stepping on a stone when I walked. Then I felt like I was wearing a tight pair of knee highs but I wasn't. The nubness slowly creeped higher and higher...still no dx. I went to specialists, to University of Michigan Hospital. Was misdiagnosed. Then I started losing my balance, and falling. I was tipping from side to side, I was dropping things. Things would fly right out of my hands. I fell and fractured three ribs...finally dx with CIDP. It is a cousin to GBS. Well, I was paralyzed and hospitalized for over a month. I came home, only to end up back in the hospital with three blood clots in my left leg and multiple in each lung. I didn't think I would make it that time. But God wasn't ready for me yet.

I had to learn to walk again. Two years later, I was finally walking with braces and a cane. I broke my right foot and I still in braces and using a cane. I am 54 years old now... I feel a lot older now. I went to Mayo Clinic in MN to confirm my dx and to Cleveland Clinic. I am trying my best to be the best I can be. I am just so upset about my weight again.  I posted in Lupus because Lupus is also an auto-immune disease. I hope yous don't mind. If anyone is having tingling and numbness in their toes and fingers- please inform your docs about this very rare disease. If mine would have been dx sooner, I would not be crippled. 

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