In 2010 I shared My Story in support of The Lymphedema Treatment Act. The bill did not make it through the congressional process at that time and must be re-introduced. I am committed to using my newly acquired advocacy skills to help make this act a LAW.
WHY THIS LEGISLATION IS NEEDED:
WHAT THIS LEGISLATION WILL DO:
Although this legislation relates specifically to a change in Medicare law, it would set a precedent for Medicaid and private insurers to follow.
Specific goals of the Act are:
I must say I couldn't agree more! Thank the heavens for people like you that stand up and fight against this disease. Lymphedema has taken me to a dark place I never thought in a million years I'd be and when the doctors say " sorry, nothing we can do", it hits like a ton of bricks. I've never heard of someone with a disease that the medical community expects the patient to do all repair work. Would they ever suggest a heart attack victim read his own results and and figure out a plan of recovery or how about a person with burns? Would they expect them to change all their own bandages , of course after they run to the store and buy wraps that cost hundreds of dollars a pair? This would cause so much disturbance and yet anyone with lymphedema is expected to evaluate, treat, and massage their swollen arms or legs and most of them shortly after battling cancer! It's an outrage at best and I just thank The Lord for people like you that are fighting for our rights!! Please know that we all support you in everything you do.... Thanks again, Tonya