Pitty Party, table for one? LOL
I just don't know how much more I can handle. I have been bawling (like the someone died cry) for days now.
Some of you know I have 2 y/o twins that are Developmentally delayed and require weekly therapies. Ok, so this week my 4 y/o son tested positive for ADHD. Something I have been saying all along, but people would just give me the look and say "oh he's just a boy" Dh and I are against meds unless, it's a last resort. So is my pedi which is great that we are on the same page and he's not trying to drug my kid. So we will start behavioral therapy. I just pray this works.
THEN, I get a call from my surgeons office telling me that I have a clotting disorder. Having a prior PE, having this surgery was my biggest fear. We thought, I had my PE b/c of being on bedrest from the twins. I suddenly feel like I am a ticking time bomb. (any words of wisdom Lora?)
I started my liquid diet 4 days ago and have been starving. Which is weird b/c I am the type of person who can go all day and not eat. Well, them last night....TOM. Ah, it all makes sense now.
Ok, I'm off to cry in my protein shake b/c that's all I have b/c my son ate all my SF popcicles and jello. LOL
**SHELLY** HW: 316 SW: 256 GW: 125 CW: 118
You have a great deal to deal with all at once. Let me tell you as a mother of two boys with ADHD and as a special education teacher, this diagnosis is not the end of the world and with involved parents all will turn out ok. You are very lucky that you learned this while he was young. You and your husband now need to educate yourself on ADHD. Go buy more SF pops-they got me through this stage. Good Luck!
Well, no wonder you're overwhelmed.
Good grief, two year old twins would overwhelm most people, even without the developmental delays.
Then add in a four year old with ADHD - I'd be crying too. Then the pre-op diet - OK, that makes people cry all by itself.
Let yourself have a good cry.
Get yourself lots of support because parenting kids with special needs, whatever the needs, is hard. Really, parenting any kids is hard. But kids with special needs? I raised my nephew with special needs for a few months before he had to be removed from my home because we could not meet his needs. So please, take my word for it, while you're busy getting your kids all the services they need, remember to get yourself support too. It can be exhausting and overwhelming.
I used to work with kids with special needs, though, professionally, I mean. Most of the time, ADHD is really treatable if the parents learn about it and provide the kind of structure kids with the condition need and then make sure the school does the same thing when the kids start school. Sometimes kids need meds, but I've seen many do quite well with the behavior therapy and environmental support. I think you'll know if he needs meds when the time comes - it'll be obvious if you're doing everything else and that's not working, and in those cases, I've seen meds work wonders. But I agree with you, meds are not the starting place.
Now. Send hubby out to get more popsicles for you.
Good grief, two year old twins would overwhelm most people, even without the developmental delays.
Then add in a four year old with ADHD - I'd be crying too. Then the pre-op diet - OK, that makes people cry all by itself.
Let yourself have a good cry.
Get yourself lots of support because parenting kids with special needs, whatever the needs, is hard. Really, parenting any kids is hard. But kids with special needs? I raised my nephew with special needs for a few months before he had to be removed from my home because we could not meet his needs. So please, take my word for it, while you're busy getting your kids all the services they need, remember to get yourself support too. It can be exhausting and overwhelming.
I used to work with kids with special needs, though, professionally, I mean. Most of the time, ADHD is really treatable if the parents learn about it and provide the kind of structure kids with the condition need and then make sure the school does the same thing when the kids start school. Sometimes kids need meds, but I've seen many do quite well with the behavior therapy and environmental support. I think you'll know if he needs meds when the time comes - it'll be obvious if you're doing everything else and that's not working, and in those cases, I've seen meds work wonders. But I agree with you, meds are not the starting place.
Now. Send hubby out to get more popsicles for you.
Kelly
Please note: I AM NOT A DOCTOR. If you want medical advice, talk to your doctor. Whatever I post, there is probably some surgeon or other health care provider somewhere that disagrees with me. If you want to know what your surgeon thinks, then ask him or her. Check out my blog.
I am sorry you are going thru so much. Being a mom is hard even on a good day. My son just got diagnosed with ADHD and anxiety and I cried like crazy. He was put on meds tho since he also has epilepsy and can not control the adhd with just therapy.
I pray for you and all your babies. If you ever need to chat I am always around.
I pray for you and all your babies. If you ever need to chat I am always around.
Come visit me on my blog: http://apeekintomytreehouse.com/
Start weight 282, Surgery weight 265, Current weight 131, Goal weight 140
Start weight 282, Surgery weight 265, Current weight 131, Goal weight 140
A woman is like a tea bag - you can't tell how strong she is until you put her in hot water. Eleanor Roosevelt
HW 304, SW 291, GW 160, CW 140 H-5'9.5"
Yes, you have a LOT on your plate right now... so maybe a few good crying jags is exactly what you need.
As far as the clotting issue, do you already have an IVC filter (sorry, I can't keep track of who does and doesn't!)? If not, has anyone mentioned having one put in before surgery? If not, ASK about it. WIth a previous PE you may also want to ask about whetehr you should consider havign it permanently placed rather than removed a few weeks after surgery. I did not have mine put in before my RNY but had it put in before my plastic surgeries because the panniculectomy and mons lift were going to require cutting through some collateral veins that were very distended and potentially had small clots in them. Because I have a history of multiple DVTs, the vascular surgeon said he was inclined to put in a permanent one, but that ultimately it would be my decision. Even though it kind of creeps me out that I have this thing in my vein, I feel safer with it in there (the long-term risks of IVC filters are VERY minimal). A filter does not guarantee that no clots would get past it, but it guarantees that no clots of any significant size are going to get through, so at least it would provide you with a certain measure of reassurance.
There are also a number of things they can do at the time of surgery and right after to minimize the danger of clots (in terms of giving you additional Lovenox or starting you on a heparin drip as soon as it is safe to do so after surgery while you are still in the hospital). They already have the more or less "standard" procedure of putting SCDs on the lower legs while you are in bed at the hospital. If they know about your history, and your surgeon issues the order in advance, they can sometimes use an SCD that goes all the way up your legs (I have one of those here at home). Since they know what the specific clotting disorder is, there may also be other medications they can give you to minimize risk of clot formation. Just be sure to ask a lot of questions about what then plan is. There are SO many prophylactic things they can do, that I wouldn't worry too much about it. You need your emotional energy for the kids, LOL!
Lora
As far as the clotting issue, do you already have an IVC filter (sorry, I can't keep track of who does and doesn't!)? If not, has anyone mentioned having one put in before surgery? If not, ASK about it. WIth a previous PE you may also want to ask about whetehr you should consider havign it permanently placed rather than removed a few weeks after surgery. I did not have mine put in before my RNY but had it put in before my plastic surgeries because the panniculectomy and mons lift were going to require cutting through some collateral veins that were very distended and potentially had small clots in them. Because I have a history of multiple DVTs, the vascular surgeon said he was inclined to put in a permanent one, but that ultimately it would be my decision. Even though it kind of creeps me out that I have this thing in my vein, I feel safer with it in there (the long-term risks of IVC filters are VERY minimal). A filter does not guarantee that no clots would get past it, but it guarantees that no clots of any significant size are going to get through, so at least it would provide you with a certain measure of reassurance.
There are also a number of things they can do at the time of surgery and right after to minimize the danger of clots (in terms of giving you additional Lovenox or starting you on a heparin drip as soon as it is safe to do so after surgery while you are still in the hospital). They already have the more or less "standard" procedure of putting SCDs on the lower legs while you are in bed at the hospital. If they know about your history, and your surgeon issues the order in advance, they can sometimes use an SCD that goes all the way up your legs (I have one of those here at home). Since they know what the specific clotting disorder is, there may also be other medications they can give you to minimize risk of clot formation. Just be sure to ask a lot of questions about what then plan is. There are SO many prophylactic things they can do, that I wouldn't worry too much about it. You need your emotional energy for the kids, LOL!
Lora
14 years out; 190 pounds lost, 165 pound loss maintained
You don't drown by falling in the water. You drown by staying there.
On June 18, 2011 at 11:26 AM Pacific Time, ****rogirl wrote:
Yes, you have a LOT on your plate right now... so maybe a few good crying jags is exactly what you need. As far as the clotting issue, do you already have an IVC filter (sorry, I can't keep track of who does and doesn't!)? If not, has anyone mentioned having one put in before surgery? If not, ASK about it. WIth a previous PE you may also want to ask about whetehr you should consider havign it permanently placed rather than removed a few weeks after surgery. I did not have mine put in before my RNY but had it put in before my plastic surgeries because the panniculectomy and mons lift were going to require cutting through some collateral veins that were very distended and potentially had small clots in them. Because I have a history of multiple DVTs, the vascular surgeon said he was inclined to put in a permanent one, but that ultimately it would be my decision. Even though it kind of creeps me out that I have this thing in my vein, I feel safer with it in there (the long-term risks of IVC filters are VERY minimal). A filter does not guarantee that no clots would get past it, but it guarantees that no clots of any significant size are going to get through, so at least it would provide you with a certain measure of reassurance.
There are also a number of things they can do at the time of surgery and right after to minimize the danger of clots (in terms of giving you additional Lovenox or starting you on a heparin drip as soon as it is safe to do so after surgery while you are still in the hospital). They already have the more or less "standard" procedure of putting SCDs on the lower legs while you are in bed at the hospital. If they know about your history, and your surgeon issues the order in advance, they can sometimes use an SCD that goes all the way up your legs (I have one of those here at home). Since they know what the specific clotting disorder is, there may also be other medications they can give you to minimize risk of clot formation. Just be sure to ask a lot of questions about what then plan is. There are SO many prophylactic things they can do, that I wouldn't worry too much about it. You need your emotional energy for the kids, LOL!
Lora
**SHELLY** HW: 316 SW: 256 GW: 125 CW: 118
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