Those who have had an iron infusion...

gtrdyfor50
on 6/17/14 8:53 am
RNY on 10/08/13
What was your Ferritin when you had your infusion? How long after the infusion did they test again and what level was it?

I have a history of low Ferritin, as low as a 3 years ago. There has been no cause other than the fact that I have autoimmune issues. I had my RNY in Oct of last year and in January my Ferritin was 11. I started taking 200-300 mg of carbonyl iron a day after that. I was tested again about three weeks ago and it is now down to a 7. I remember how awful I felt at a 3 and I am starting to feel some of the issues while at a 7. I did not get an infusion in the past, but I feel like I want to this time and get this addressed.

    

     

                                                
Citizen Kim
on 6/17/14 8:58 am, edited 6/17/14 8:58 am - Castle Rock, CO

Get an infusion - stat!  No haematologist worth his salt would allow you to exist with those ferritin numbers - you are under the care of a haematologist, aren't you because those numbers are NOT the realm of a PCP or Bariatric surgeon - they require a specialist!

My worst was < 2 (undetectable by lab) and I felt like I wanted to die ...    I had two infusions 18 months apart - the last one was 3 years ago and I was hovering around 30 last summer - now I'm no longer having periods and I take pro-ferrin 2 x per day I seem to be doing well.  I am due to be tested this month but I feel perfectly fine!

Proud Feminist, Atheist, LGBT friend, and Democratic Socialist

gtrdyfor50
on 6/17/14 9:02 am, edited 6/17/14 9:03 am
RNY on 10/08/13
I agree, I was not happy with that Dr., the past hemotologist. I am going to call my surgeon's office tomorrow and get a rec from him for a hemotologist that he uses.

    

     

                                                
Citizen Kim
on 6/17/14 9:43 am - Castle Rock, CO

   Let us know how you get on - you won't believe how different you will feel after a good infusion ...

Proud Feminist, Atheist, LGBT friend, and Democratic Socialist

rocky513
on 6/17/14 1:30 pm - WI

My Ferritin was 10 when I had my first infusion.  My hematologist re-tested me 1 month later and I was at 115.  Six months later I was back down to 30.  My doctor would not let me go any lower and scheduled infusion number two.  I had that last August.  In November my Ferritin was over 300.  I'm due to be tested  again.  The Hematologist told me that I should not let my Ferritin go below 50.  He's VERY proactive and I'm pretty happy that he is!

Get the infusion ASAP...you will feel so much better.

HW 270 SW 236 GW 160 CW 145 (15 pounds below goal!)

VBG Aug. 7, 1986, Revised to RNY Nov. 18, 2010

amanda D.
on 6/17/14 1:52 pm - Stayton, OR

Well this has me worried now lol. My Ferritin is 16. I have surgery on July 2, revision from sleeve to bypass. I'm currently taking Ferrous Sulfate 3x per day, all I know is I'm dragging ass. It doesn't matter how much sleep I get, I'm exhausted. Not to mention it's the middle of summer and I am forever wearing a sweater or long sleeves.

                                            
QoftheU
on 6/17/14 6:35 pm - Bay Area/Silicon Valley, CA
Revision on 12/18/13

I've just been referred to a hemo for the same thing... and I agree - no matter how much sleep I get it's never enough. 

 

      

Leslie - Band Revision to RNY - best thing ever!   HW: 234   SW: 222  CW: Ticker  GW: 130

bbearsmama
on 6/17/14 11:52 pm
RNY on 02/28/13

I get about 3-4 infusions per year. My low iron was discovered right before my RNY.  My hematologist says it is because I have heavy periods.  Anyway-I agree with the others. You will feel much better once you have one! My hematologist checks my levels every 3 months to see if I need one or not.

Pam :)

"B" bears' mama from Texas
Follow my journey on youtube: "bbearsmama" 

SW: 210 CW: 123.6

    
browneyes65
on 6/22/14 3:03 pm - IN

If I want to ask my Dr to check mine should I say I want to check my iron or say Ferritin level checked ?

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