Long update, a lot of hospital stays, ugh

Oct 02, 2012

I have been pretty busy in and out of the hospital, in cleveland and at home :(
I was admitted to cleveland clinic on August 7th and discharged on August 25th.  I went to my appt with Dr. Kroh and then they sent me to see the nutritionist the next day and as soon as she saw me, and how much weight I had lost she said I needed to start J-tube feedings and it had to be in the hospital because it is dangerous to start j-tube feedings if your nutrition is compromised that badly, and she said it would only be a couple of days to get me stabilized, so my daughter and I had a hotel room, but there was no way I was sending a 16 year old to stay in a hotel room by herself and my hubby couldn't come up for a couple of days due to work, so they let her stay with me in my hospital room.  I had to go through the ER to be admitted, but I had the most fabulous nurse named Becky, I will never forget her, she was the best.  The nightmare started after that.  I can only guess that the tube feedings went so badly because my small intestine is not absorbing, but in a week they tried about 5 different formulas with disastrous results...uncontrollable vomiting, pain, and diarrhea...after that week I begged them to stop doing anymore tube feedings and try TPN, so on August 20th they placed a Hickman catheter (IV in the chest) and started TPN (IV nutrition/vitamins)...I spent 3 weeks in the hospital, got out on August 25th...it was way too long...more to come, laptop battery croaking...to be continued

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