My Journey

Feb 07, 2009

updated from the beginning, so here it goes.

June 2/08
Had surgery
Had no pain in my abdominal area
2 days later had a pain in my shoulder!
Worried I wasn't getting enough protein in.
Worried I wasn't getting enough water in.
I couldn't swallow a lot. Just sips.
I didn't walk  a lot.
I hated what I did to my body!
I had an infected incision.
Had bad azz acid reflux

July/08
I still had pain in my shoulder
Still taking to many Tylenol#3's for my liking
I got through the liquid stage
Doc diagnosed me with pancreitis
Enjoyed the /mushy soft stage
Went back to work
Was signed back off- Due to pain in shoulder
cortisone shot in shoulder
Doc diagnosed me with diverticulitis
Still not the happiest

Aug/08
Pain still in my shoulder
Emerge Doc says it was Gas
Eating solid foods
Doc diagnosed me with pneumonia
and you got it, still not that happy.

Sept/08
Pain in shoulder
Lung felt like it was getting stabbed
later diagnosed with pulmonary embolism, showed up on an Xray, I had a month prior Doc finally got me in to tell me.

Had been on three different antibiotics over this period...

Oct/08
MY PAIN IS GONE!!!
I LOVE MY SLEEVE!!!!
Down 80lbs
I got out for a walk

Hugzzzz to all, I got through it and enjoying my lifestyle change NOW!


October 13 was diagnosed with leak and three abscesses....more to follow!!!

I was admitted to the hospital almost 2 hours away from home! I had test after test done. I kinda wish I kept a journal, but, I didn't. When they went in sometime in October and drained the first two abscesses and left a drain in. I was on TPN until Nov,2nd then they weened me off. I went home with the tube feed and I was on 12 hr feeds daily. I was released from the hospital on Nov.4th, Well Nov 6th I was back in and admitted with another abscesses from the leak. Started back in the hospital my tube fell out, I was soooo darn careful too. It just started coming out of my nose and it wouldn't stop until it was out :(. Bonus was, I got too keep it out for the weekend..LOL! They went in and replaced the drain. and did two open surgeries in two days. A foot long scar on my belly from that. I had lots of leak test and always knew before it was over that it wasn't healed because , when they didn't lay the table down. They asked, "how do you know the leak isn't healed before we tell you.. I said " You don't tilt the table back." You kinda catch on to things after a dozen or so times.They let me go home on December 20th with a wound vac and drain for xmas...Yay! not!..I had the VON coming in until March to tend to my wounds and drain. When the drain came out in March, I got another bad infection. Thought that was it!. Here we are now in April and I feel something may be brewing.

Will keep ya'll updated!

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