RobinNJ
My 2nd Surgiversary
Jan 06, 2008
I had a fabulous day in NYC yesterday. We had lunch at Bubba Gump's Shrimp restaurant and then saw 
Spamalot. The "we" is my mom, dh, kids and myself. The show is super funny, especially if you're into British sketch comedy.
My 2yr appt. with the surgeon is tomorrow at noon. I expect him to yell at me for gaining a few pounds
(7 to be exact), but 
I'm still looking for my new coping mechanisms, you know, to replace junk food. I'm still way smaller than I've ever been in my adult life. I have lost 75% of my excess body weight. 
My stats as of this morning are:
highest weight: 318 size 30
Surgery weight: 280 size 28
2 Yr. Post-Op: 164 size 12/14
Spamalot. The "we" is my mom, dh, kids and myself. The show is super funny, especially if you're into British sketch comedy. My 2yr appt. with the surgeon is tomorrow at noon. I expect him to yell at me for gaining a few pounds
(7 to be exact), but I'm still looking for my new coping mechanisms, you know, to replace junk food. I'm still way smaller than I've ever been in my adult life. I have lost 75% of my excess body weight. My stats as of this morning are:
highest weight: 318 size 30
Surgery weight: 280 size 28
2 Yr. Post-Op: 164 size 12/14
22 Month update
Oct 20, 2007
I saw the Hepatologist on Tuesday.
The good news is: this doctor is smart, well spoken and takes the time to really go over stuff.
The bad news is: I really do have Primary Biliary Cirrhosis.
While I'm disappointed at the answer, I was so hoping for a different one, I relieved to finally have an answer. We are treating me conservatively by just watching my liver enzymes, via blood tests, for now. When they stop trending down on their own (the enzymes) I'll have to begin medication.
The good news is: this doctor is smart, well spoken and takes the time to really go over stuff.
The bad news is: I really do have Primary Biliary Cirrhosis.
While I'm disappointed at the answer, I was so hoping for a different one, I relieved to finally have an answer. We are treating me conservatively by just watching my liver enzymes, via blood tests, for now. When they stop trending down on their own (the enzymes) I'll have to begin medication.
18 Month Update
Jul 14, 2007
Hello all,
I wanted to update you all on my life such as it is. I'm now 18 Months Post -op, and holding at around 165 #s.
I went back to the liver specialist last Monday. WHAT A WASTE OF TIME AND MONEY HE WAS!! I saw him back in late April, gave him my lab work to date then and chatted with him about PBC and why (or not) I might have it. He drew his own blood work and asked me to get my liver biopsy slided and MRI films for him. I had them to him before May first. I REPEAT, I GOT HIM THE SLIDES AND FILMS BY MAY FIRST. I made a follow-up appointment with him to get his impressions of the biopsy, his lab results and a definitive diagnosis. That was the appt. I had on Monday. WELL, HE NEVER LOOKED AT THE SLIDES OR FILMS!! THEY SAT ON HIS DESK FOR 2 MONTHS.
I asked him to look at them then and there (since I had made the hour trip to his office) and he refused. He said he had to do that with the hospital pathologist. I asked why he didn't do it in the last 8 weeks, he said he hadn't had the time. I asked what was the point of my going to see him for this visit. He said, "There is always a point in coming to see me." He is so lucky I didn't eviscerate him then and there. 
Instead I had him give me back my slides and films, copy my blood work results for me, and left.
I'm still very upset over that.
Well, My birthday is next week and I'm enjoying wearing size M or L depending on the cut. I'm thinner now than I was in High School, 30 years ago.
I wanted to update you all on my life such as it is. I'm now 18 Months Post -op, and holding at around 165 #s.
I went back to the liver specialist last Monday. WHAT A WASTE OF TIME AND MONEY HE WAS!! I saw him back in late April, gave him my lab work to date then and chatted with him about PBC and why (or not) I might have it. He drew his own blood work and asked me to get my liver biopsy slided and MRI films for him. I had them to him before May first. I REPEAT, I GOT HIM THE SLIDES AND FILMS BY MAY FIRST. I made a follow-up appointment with him to get his impressions of the biopsy, his lab results and a definitive diagnosis. That was the appt. I had on Monday. WELL, HE NEVER LOOKED AT THE SLIDES OR FILMS!! THEY SAT ON HIS DESK FOR 2 MONTHS.
I asked him to look at them then and there (since I had made the hour trip to his office) and he refused. He said he had to do that with the hospital pathologist. I asked why he didn't do it in the last 8 weeks, he said he hadn't had the time. I asked what was the point of my going to see him for this visit. He said, "There is always a point in coming to see me." He is so lucky I didn't eviscerate him then and there. Instead I had him give me back my slides and films, copy my blood work results for me, and left. I'm still very upset over that. Well, My birthday is next week and I'm enjoying wearing size M or L depending on the cut. I'm thinner now than I was in High School, 30 years ago.
10 Monthaversary
Nov 06, 2006
Hi all,
Yesterday was my 10 Month-aversary. I've lost 105 #s since surgery and a total of 145 #s since the journey began. I'm doing well physically, my BP and cholesterol are down and my excersize is up.
It's been a wild roller-coaster ride from which I'm still dizzy.
I don't know where to go from here. I'm not totally comfortable in this body yet, and am unsure if I want to change it any further.
Yesterday was my 10 Month-aversary. I've lost 105 #s since surgery and a total of 145 #s since the journey began. I'm doing well physically, my BP and cholesterol are down and my excersize is up.
It's been a wild roller-coaster ride from which I'm still dizzy.
I don't know where to go from here. I'm not totally comfortable in this body yet, and am unsure if I want to change it any further.
