tinalvn

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I have been on a very long sick journey.  Just to catch you up I am scheduled to have a revision to fix things not working properly on Nov 7th 2012.  Please message me with any advice or ideas.  I hardly eat due to massive pain for up to an hour after eating a VERY small meal.  Due to the pain I have lost appetite, and the fight I need to find new ways to treat without surgery.  I saw Dr. Higa a new surgeon, and he feels and sees in my testing I may have Candy Cane Syndrome, and me insides are not working.  I am again suffering from Malnutrition, and all that goes with that.  I cannot keep Potassium in my body, and have to get regular vitamin and Potassium IV infusions.  I am ready to live, and not be tired and sick anymore.  Everyone pray for a miracle for me.  I really wish for a partner nearby that I could support, and vice versa.  If you're out there shout out!!!!  Have a great day!

Hi,

I haven't posted in forever.  I had my surgery June 23, 2008, so I'm 1 1/2 years out.  At first I hated life beause I also have Rheumatoid Arthritis, Lupus, and Fibromyalgia.  My Doc rolls it up into one big package, called Mixed Connective Disease.  I had both knees replaced in my 30's, and I am 42 now.  So the surgery sent me into a huge flare-up, that is still not resolved.

I have a few small issues so here they are any advice or knowlege appreciated:  On my hands and forarms if I get just barely brushed by anything, or bump my skin it bleeds like crazy, and takes forever to heal.  Everyone one of my Docs don't know what it is.  Has it happened to anyone else? 

I also am having reoccuring thrush in my mouth.  I am taking Probiotics, but so far it will clear up with a bottle of Nystation, but as soon as I am finished, it comes back. 

I have tried and tried to post me a new pic but it won't let me, so I'll try again tomorrow.

Thanks in advance for reading this, and any ideas or experience you can share!

Tina