Recent Posts

DeannaL
on 11/2/06 9:51 am - Lompoc, CA
Topic: Hi All, just checking in
I haven't posted in quite a while, and just wanted to stop by with an update. I hope you are all doing well, and my thoughts go out to those who are having troubling times, family related issues, and health issues. Trust me I completely understand. The past few months have been a roller coaster for me and my family. We moved to a smaller town, in Central Coast California, but my husband had to go in May and I stayed with the kids until mid-August in LA. During that time I had a perforated ulcer and ended up with Emergency surgery, missed my daughters graduation from High School too! I got better, we completed the move, and I absolutely love small town life. I kept having pains, different pains though - not ulcer pains. My 4 yr old broke her arm at school. My father in law passed away. Then I just got the news that I'm going to be having another surgery on Tuesday. The doctors at UCLA will be doing an exploratory surgery (possibly open) to see if they can find the problems. My Father In Law's funeral is Saturday, then I'll go to Los Angeles for the surgery, and my husband and children will stay at home, about 150 miles away. I'm a little freaked out, but also hopeful that I can finally get an answer to the pain, and get on with living a healthy and happy life. On a good note, I had a wonderful Halloween with my daughters, they were so adorable, and excited. I just soaked up the moments, the memories. They are so precious. Well, that is my update, in a nutshell. Wish me luck! Deanna
Kathy & Rich
on 11/2/06 8:17 am - Fairfax, VA
Topic: RE: Revision in my future???
Good luck with the iron infusion tomorrow. Glad the hematologist saw the urgency. Whew! Good man. Pffft, on that old doc. Distal is a further hook-up... and proximal is closer. More malabsorption with distal. I guarantee I'm proximal - not that I mind AT ALL. The "other" option is only that and more of a last resort. Don't worry too much about that for now. Just focus on the positives and working with your new docs. I'm so very happy you found good folks to work with. Smooches, K
Full of Life
on 11/2/06 8:11 am - Broken Arrow, OK
Topic: RE: Revision in my future???
Thanks Kathy - You're a doll!!!! Yes, I did see the hematologist. He said it's a good thing I didn't listen to my surgeon and got an apt. to see him. With my levels, and my physical symptoms I'm in the permanent damage danger zone. Hence, the iron infusion first thing tomorrow morning! I can do fruit pretty well. I've been eatting an apple and peanut butter just about every afternoon for a snack. My two protein drinks currently give me 60 grams of protein and about 400 calories per day. I can't do milk, I can't even make my oatmeal with it. I've tried some of the soys and whatnot - major GROSS !!!! I'll have to spend some time at the store this weekend looking for some different things to try. I don't know if I'm distal or proximal. I was under 300 so I think I should be the shorter one (I forget which is which). It is quiet overwhelming today. Tomorrow will be better, after I can process some of this more. I really CANT think about the "other" option at this point... it's too much!! I know you all will be there for me, you're there for everyone!!! That's why I LOVE the May board mostest!!!!!! Laurie
Bonnie M
on 11/2/06 7:44 am - Sioux Falls, SD
Topic: RE: I'm tired...
Drinking LOTS of water really does seem to help with my leg cramps. I take potassium twice a day now too. Hope you feel better soon.
Kathy & Rich
on 11/2/06 7:36 am - Fairfax, VA
Topic: RE: Revision in my future???
Hey, Laurie! Glad you liked the PA. Did you see the hematologist today too? As for Ensure, Slimfast, etc.... do you tolerate milk? What about Calorie Countdown (Hood)? Or Soymilk? If you do okay with one of them, you could add protein shakes made with one of these. That would boost each shake up by about 100 calories and the only added sugar would be the lactose since whey proteins do not usually have added sugar. Also, do you tolerate fruit sugars? Rich used to make a mongo shake with Calorie Countdown, protein powder, a banana, a few teaspoons of peanut butter and ice. It was too big for you but it is definitely calorie dense. If you made one half the size he had... it would be 500 cals. Scarey prospect, I know, but for your health - you can do it! One of the reasons that I do so much of the vitamins and protein shakes is that I do not want to trust my body to absorb anything from real food. I know I absorb some of it but I just don't want to count on that since I have no real clue how much of what I absorb. I'm not saying I get my day's worth of calories from shakes cuz I don't but I try to get the protein my body needs from shakes alone and I assume that the protein from food is a bonus. Since shakes are already predigested... I assume that I have a much, much better chance of absorbing the protein from that then from food. Another thing that I'm trying to avoid is hypertrophy. That is when the intestines grow because the body senses it isn't absorbing enough and it tries to adapt so that it can absorb more of what it needs. By feeding it adequate protein and fuel, that should minimize the hypertrophy. Why do I want that minimized? Because hypertrophing of the intestines means I'd absorb more calories of what I eat and more fat then I did at the beginning. Boy, I waxed on there about myself. Sorry about that. As for you, Missy, I hope that the doctors can get you straightened out with iron infusions, protein and calorie supplementations, and changes to your vitamins and supplements. I hope you can avoid the revision. But one has to do what one has to do for one's health. Do not try to look too far ahead. Work on what needs to be worked on and hopefully it will be enough. BTW, are you a distal RNY or proximal? Do you know? Hugs, hon! I can only imagine that this is overwhelming to you and is an information overload. We are all there for ya through this whatever comes. Hugs, K
Full of Life
on 11/2/06 7:04 am - Broken Arrow, OK
Topic: Revision in my future???
OK first of all, I love my new doctors office. The PA spent 1 1/2 hours with me today!!! Seriously, he earned him pay today. LOL He wanted to know EVERYTHING!!! He wanted to know any and all symptoms or possible problems. Here's the low down - 1. Got to get treatment for the iron. ASAP, this is "critical" . 2. Nutritional issues - need to eat more. easier said then done. He wants me to try Ensure, slim fast, WHATEVER to get more in and no more McDonalds. However after hearing my symptom he did say that more then likely the drinks wont work for me because of my low tollerance of sugar and carbs. UGH, but I'm to try over the next two weeks. 3. Vitamin issues - He said... I have some "tweeking" to do here to, but he's not holding out a lot of hope that they will come up. Basically, I'm malabsorbing more then I should and so I probably wont be able to eat enough and vits probably won't help.... but we're going to give it one more try! After that, he said my only option would be a surgical revision. This would be to unbypass some of the intestines to get more absorbtion. UGH, lots of mixed emotions on this!!!! Too many to write here today. But lets not worry about tomorrow today - right?!! Laurie
Kathy & Rich
on 11/2/06 6:55 am - Fairfax, VA
Topic: RE: Checking in...
Hey, hon! Thoughts are still with you, your family, your friend's family especially his daughter. I do hope that miracle comes. How many days til your plastics? Hows the anti-puffing ban going or shouldn't I ask? No smokes at lunch tomorrow, 'kay? LOL! Thinkin' of ya! K
Full of Life
on 11/1/06 8:57 pm - Broken Arrow, OK
Topic: RE: Checking in...
Becky - God is in the miracle business so keep praying and believing!!! Remember that you'll lose weight with ps too. I don't know how much they're planning on taking off but you can expect to lose a few extra pounds just in the recovery process. So, I see 140 in your near future. Becareful - although I don't know where underweight is for you, it's easy to find yourself there. It's sooooo weird to have these thoughts isn't it??? Who'da thought 2 years ago that you'd ever deal with being content with being at goal???? I sure never thought I'd get to goal!!!! It does do something in the mental department - I know. Hugs, laurie
Becky Sue
on 11/1/06 6:30 pm - Fort Wayne, IN
Topic: Checking in...
Hi all. First I want to thank everyone for their thoughts and prayers for Rick and his family. As of yesterday evening, his vitals had stabilized quite a bit, heart and BP much stronger, although he is still comatose. They took him out of sedation for a few hours to check automatic response - he does respond to pain, touch, so that's good, but they still have no idea how much, if any, real brain function he'll wind up with if he survives. They said chances of him being "normal" were pretty much miracle-grade, although they also said the fact that he survived his trip to the hospital, let alone this long, was a miracle, so you never know. They've asked the family to allow them to put in a trach and feeding tube in order to start doing some work on the bones in his face. They're obviously trepedatious, he has a living will and doesn't want to be prolonged in a vegetative state, but how do you know whether it's going to be temporary or permanent? On a personal front, things here are...ok... Counting down the days to my PS. Very busy at work and at home getting ready for the holidays. I'm still losting weight, have been for a couple of weeks now. I'm now down to 146. I have to be honest, I'm now a full 4 pounds under my surgeon's lowest goal and I should be concerned but I'm not. I'm struggling, mentally, with the high you get from seeing the scale go down. I know you all know what I mean. It's making it difficult for me, mentally, to try to maintain... I think I'm going to need to talk to someone about that... Otherwise, I'm hanging in there. Think of you all a lot and hope you're all doing well.
Kathy & Rich
on 11/1/06 12:23 pm - Fairfax, VA
Topic: RE: I'm tired...
I don't have those same feelings. Many think I'm not dumping but the doc said that's what it is and I tend to believe him. Smart guy. Don't think he'd steer me wrong. Anyway, been a heck of a night. Dumping then finally feeling better and then the leg cramp came. Get them once in a while. Not sure what I'm deficient in. But this was a doozie. Cried for about 45-60 sec as it hurt like hell. Poor Rich didn't know what to do. Took some potassium after it. Almost afraid to go back into bed. Tomorrow will surely be a better day... Thanks, hon! K
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