Ketosis Tongue or Thrush?

Seriously, as I sit and write this I am in tears. I simply am not physically nor mentally capable of handling one more issue, but here I am with one more thing that seemingly is going wrong. I'm at this point where I simply want to give up. And by give up I mean, stop feeding, stop drinking, stop taking my meds. I feel miserable all the time and I'm wishing that I never went and had a revision. I'll bet you don't hear that from many people, but I'm blunt and honest in that I'm sick of complications. I'm so depressed that even my all is bright and beautiful meds are not helping me at all. I had my operation on 8/10, I was back in the OR on 8/12. Then they discovered a leak. I've been NPO ever since. I was supposed to be released on 8/21, but my stomanch sprung a leak and my incision had to be opened up to allow for drainage. I was not released until 8/26. I came home for 3 days and was sent back to the hospital for an infected pic line and a DVT (Blood Clot) in my arm. I was in the hospital for that 4 or 5 days. Then I come home for another 4 days to have my husband discover that my open incision was spewing pus everywhere. Back to the hospital for another 5 days. I just got out Friday. I've been on antibiotics since 8/11 and have develoved a case of VRE thanks to being on Vancomycin and being in the hospital. Nothing to worry about really except that I could infect my family if I am not diligent about washing my hands, using alcohol hand cleaner and putting bleach in the tolie****er each time I pee or poo, oh and wiping down the seat with bleach wipes too.

My water intake is limited by what I can push in my J tube. Since I have a leak and an active infection I have to limit my drinking to 4 to 8 oz. a day of water a day. I am allowed water or ice chips. Nothing more. No tea, no coffee, no crystal lite, nothing. I've been NPO since Aug. 10. I'm pretty goddamned tired of having nothing to eat. As for eating, I'm on 1400 CC of Osmolite a night delivered directly into my intestines via my stupid J tube.

So today I have felt like I have fur on my tongue. I thought it was because I had not brushed my teeth. I took a look in the mirror and I am horrified at what I see. My entire tongue is covered in a white thick mucous like substance. Brushing my teeth and tongue did not make it go away either. It's still there. I looked up Thrush and it looks like if you have Thrush that there is significant pain involved, but I don't have any pain. I do feel like I have something stuck in the back of my throat though. I've heard other's talk about Ketosis tongue, but I'm not sure what that really is.

I know that you are not doctors, but I was wondering what your advice is as to what this could be. I have an appointment with my doctor tomorrow to check my blood levels and to adjust my coumadin and will show him this, but I'd like to get a little advice on what you think this might be.

I had thrush and there was no pain.  I tried the liquid stuff and the lozenges, they were nasty and made me sick to my stomach.  Finally one day I was speaking with my hematologist and told him about it and I remember very clearly he said "oh we can do better than that".  He gave me a prescription for diflucan and it was gone in something like two days!

It sounds like you have a bad case of thrush. 

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Is it something you swish with? I'm currently on diflucan via IV. I am not allowed to swallow anything.

Yes I think it is called nystatin. 

Eww, that is NOT any kind of ketosis tongue I"ve ever seen.

Sounds like thrush to me.  Call you rdoc and they should give you a mouth rinse that you swish around and then spit out no swallowing involved.  Hope things start to get better for you don't get discouraged.

Hugs and prayers all just for you ! 
does sound like thrush and the stuff you swish in your mouth will get rid of it fast. YOU are a STRONG and POWERFUL woman - this too will get better and you will look back on this time as realize just how strong and blessed you are !  Just hang n there and take one moment at time. HUGS !!

I wish that I felt strong and powerful. The truth is I feel weak, whiney, tired, depressed and sometimes *gasp* slightly suicidal. No, I'm not going to off myself, but I sometimes think that it might be easier then I wouldn't have to deal with any of this.

I'm calling the doctor today to get my warfarin levels checked and I'll have him check my mouth as well. I'm seriously considering asking him for something to help me with this depression because I don't know what else to do. I don't want to go onto antidepressants, but I just don't know what to do at this point. I'm crying nearly all the time and when I'm not crying I'm just angry and irritable. I have lost all my joy and happiness.

well you ARE strong and you ARE powerful ---- you just may not feel that way now - but you continue to go on day after day and that proves you are a SURVIVOR !  Just talk to the doc and tell him what you have told us about your emotions and feelings and he will give you something. It will not help immediately - but it will help. I went through very ruff time myself 7 years ago (emerg surgeries, ruptured colon, colon cancer, colostomy, chemo, 2nd surgery, MRSA- IV's therapy at home) --- all within 6 weeks - so yea YOU have NO CHOICE but to keep going - quitting is NOT an option. We are ALL SURVIVORS. YOU have EVERY right to feel what you are feeling and every right to get the help you need. If you want to talk by phone - PM and I will give you my numbers!  You are NEVER alone!  HUGS !!!!!!!!!

My husband has pretty bad ulcertive colitis, and a few years ago he was in the hospital on antibiotics and TPN and had to be NPO for 6 weeks.  He got oral thrush, whicih pretty much looked the way you're describing.  The good news is they had him gargle with something and it was gone within a day.

I'm sorry for everything that you're going through, and I truly hope the worst of it is behind you and you continue to get better.  I'm pretty new here, but enjoyed your posts and you're an inspiration for me.