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White Dove
on 3/16/20 11:43 am - Warren, OH
Topic: RE: Doc trying to talk me out of a DS

The was a young guy on here years ago who can his RNY converted to a DS. He died shortly after the surgery.

Real life begins where your comfort zone ends

PattyL
on 3/16/20 10:09 am
Topic: RE: Doc trying to talk me out of a DS

There are very few surgeons who do RNY to DS revisions. I am not sure if there IS a surgeon in Canada who does this surgery routinely. I haven't heard of one. I do believe there is a procedure in place to be allowed to go to the surgeon who does this procedure, even if you have to travel out of the country. Check on what's available in your province.

Janet P.
on 3/16/20 5:05 am
Topic: RE: Doc trying to talk me out of a DS

Grim, you make an excellent point. Revising from RNY to DS is a very complicated procedure and even many surgeons who do the DS will not do RNY-DS revisions.

I do know that my surgeon, Dr. Elariny, has done this type of revision.

Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175

Grim_Traveller
on 3/15/20 3:58 pm
RNY on 08/21/12
Topic: RE: Doc trying to talk me out of a DS

Docs that do a DS are hard to find, anywhere. It just isn't commonly done, at all. But you can find a DS surgeon if you look hard enough.

The real problem is, you are not trying to get a DS. You are trying to get a revision from RNY to DS. Finding a doc who is qualified to do one of those is incredibly rare. As in, you can count on one hand the surgeons who have any real experience doing it. I think, maybe, there is one such surgeon in all of Canada.

To revise an RNY requires dismantling the bypass and putting everything back together the way it began. THEN they do a sleeve, then the switch part.

Taking down an RNY and doing a DS is incredibly complex and risky, both for you AND the surgeon.

Be really careful who you go to for this kind of revision. It is very risky.

You may very well have to travel and self pay if this is the only avenue you are going to pursue.

6'3" tall, male.

Highest weight was 475. RNY on 08/21/12. Current weight: 198.

M1 -24; M2 -21; M3 -19; M4 -21; M5 -13; M6 -21; M7 -10; M8 -16; M9 -10; M10 -8; M11 -6; M12 -5.

H.A.L.A B.
on 3/15/20 11:46 am
Topic: RE: Doc trying to talk me out of a DS

I get you are upset. And full of very negative emotions and attitude. Being heavy and hurting, and having diabetes and being sick from that is not fun.

Calling your doc a Quack is still little to hard IMO.

You don't mentioned your current diet. Or exercise routine, or things you do to relieve pain.

I have arthritis and deal with pain every day. And I am either at goal or below goal. Losing weight doesn't mean reducing or eliminating pain. Getting DS doesn't mean curing diabetes you have. If you have Type 1, or type 1.5 - DS and losing weight may not get ot in remission. There are people with type 2, at goal, that are still diabetics and need to be on medication or insulin. There are people who had DS who after first few years started gaining weight and need to be on a specific diet to maintain good weight.

You had RNY in Canads, and BOB in Canada. Because of the systyou guys have. A lot of people in USA can't get insurance to pay for that, even if they need it, the surgery is medically necessary.

If you fee5so strongly about DS, you can try to self pay for that. I get it is expensive, but there are many people who needed WLS and paid for it cash.

It can be expensive, but instead of thinking you can't afford it, put your energy into getting, saving, borrowing, enough money to pay for it.

There are a lot of diabetics in USA who can't afford insulin. Their copays are very expensive.

Some of them decided to use their diet to limit how much insulin they use a month. Some, in the group I am member of, were able to reduce their A1C from 10+, to normal A1C around and below 5.5.

At one time post op RNY I had severe hypoglycemia and reactive hypoglycemia (RH). I was, I am insulin resistant. Before RNY my body used to make too much insulin as response to carbs and lean proteins. Even after I got to goal, I was still insulin resistant. And i am probably like that still. To limit insulin my body makes, I needed to reduce overall carbs, all carbs, not net carbs.

I also needed to increase fat I was eating. My menu used to be fat plus proteins, and maybe a few naturally occurring carbs. Reading dr Bernstein diabetes solutions book helped me to understand what is going on. And I went on a very strict diet.

Slowly I started having less and less RH episodes, and afaik while my body got adapted to burning fats not sugars and I lost 15-18 lbs I regained because I had to chase my BS over and over.

I can't tell you it was easy, because it wasn't. But being determined, hard headed, and persistent, I know what and how much 8 need to eat to maintain or lose weight.

It may be a long time before you can see a DS surgeon. So why not try to what is best for you and your body.

Hala. RNY 5/14/2008; Happy At Goal =HAG

"I can eat or do anything I want to - as long as I am willing to deal with the consequences"

"Failure is not falling down, It is not getting up once you fell... So pick yourself up, dust yourself off, and start all over again...."

Janet P.
on 3/15/20 4:30 am
Topic: RE: Revision from RNY to DS...gaining and NOT losing

That's a start. Since you lost your restriction, what are you eating? Are you tracking what you eat? Are you following a low carb, full fat, high protein diet? Are you grazing or trying to eat three meals a day? Do you snack? Are you drinking enough water?

Give us a one-day example. Then maybe we can give you some suggestions.

Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175

sheree
on 3/13/20 7:06 pm - arlington, TX
Topic: RE: Revision from RNY to DS...gaining and NOT losing

I had the DS on 12/3. It was a true switch. My pouch was changed to a sleeve. And I no longer have the restriction I had with the pouch.

sheree
on 3/13/20 6:58 pm, edited 3/13/20 11:59 am - arlington, TX
Topic: RE: Revision from RNY to DS...gaining and NOT losing

Thank you! That helps. I usually eat maybe a boiled egg and fruit for breakfast. For lunch I eat maybe soup and salad. Or chicken wings and salad. I have to refocus on more protein than carbs. My weakness are carbs. I don't drink sugary drinks.

cattipat
on 3/13/20 5:01 pm - Etobicoke, Canada
Topic: Doc trying to talk me out of a DS

I had a gastric bypass back in 2005 and it's been failing since 2012. I have spent the years since 2012 fighting with one quack after another trying to get a revision surgery.

To make a long story short, I finally had a consult with a surgeon today. I knew going in that he isn't the doctor who can do a DS. I am in Ontario Canada and we have to jump through a series of bureaucratic hoops to get any kind of health care. For bariatric surgery they waste your time making you go to the closest hospital to your home, even if they don't do the surgery you need. That's where I was today. Their surgeon only does sleeves and RNY.

I expected to be turned away "we don't do your kind of surgery" but not to have to fight again to be referred to a surgeon who does. The surgeon at Toronto Western spent at least half an hour trying to convince me that the DS surgery is a bad idea, calling it "nutritionally catastrophic" among other things, and saying that if he was advising a friend or relative he'd tell them not to get the surgery. He tried to tell me that "nobody does this surgery, even in the US" and "it's never done as a revision for a RNY" which I know is pure bull. I stuck by my guns and told him that I know what the surgery entails but it's a lot better than dying young with diabetes, heart problems, fatty liver, needing a machine to breathe at night and suffering from painful joints from carrying an extra 200 lb around. I already use a walker, I was hoping to lose the weight so I wouldn't have to keep using it.

Then he started in about how I don't "need" another surgery. I weighed over 200 lb 3 months ago when I was first referred to their program - only 90 lb less than my max weight. My diabetes is back, so is my sleep apnea, and my blood pressure is going up again. I have a bad back and bad hips and knees. They weighed me and I'd lost 20 lb in less than two months - not healthy weight loss, I'd been through a major stress (my landlord harassing and threatening me) and when I'm upset I don't eat. But Dr Quack insisted that this meant that I'm "doing well" and if I need to lose weight I can do it on my own. Too bad I won't keep it off! And even at 180 I'm still well into plus sizes and most of my clothes don't fit me.

I dug my heels in and told him "I'm not making this decision until I see a doctor who can do the surgery I need!" and "If you think I'm going to sit back after 2 years of fighting to get here, and let myself die young with diabetes and all the other illnesses I had when I was fat - think again!" I told him having diabetes and weight going up and down means I'm NOT doing well. He even tried telling me "you look so thin in those jeans, you're the thinnest patient I've had all day!" Talk about grasping at straws!

So I demanded to be referred to the one surgeon in my province who does the Duodenal Switch. I wonder if anyone else has had to go through the quackery and attempts to talk them out of this surgery? Or is this just another symptom of Canada's woefully dysfunctional "public" health care system?

hollykim
on 3/13/20 2:07 pm - Nashville, TN
Revision on 03/18/15
Topic: RE: Revision from RNY to DS...gaining and NOT losing
On March 13, 2020 at 3:44 AM Pacific Time, sheree wrote:

It varies

the DS diet is high protein, low carb and minimal non carbs vegetables while losing.
we absorb carbs 100% though we malabsorb all the other food groups. Fruit is pure sugar which is a carb and is absorbed at 100%.
mid you are eating oatmeal, potatoes, sweet potatoes any kind of bread,wrap, or tortilla,any flour products or if you are drinking lots of calories, that could be why you are coining and not losing.

 


          

 

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