Oh i forgot to tell you guys....

Ah, Girlie, you certainly was put through the ringer at such a tender age.  I can totally relate though our stories are quite different.  I'm just so happy to know that your EF is at 60%...that's very near to normal & quite the success story. I was relatively young as well...34...when I was diagnosed.  Practically overnight I went from being a dancer (since the age of 6), avid racquetball player, & all around active busy gal to suddenly not able to fluff the pillows on my bed or push a broom around the kitchen.  I was suddenly plunged into a medical realm unknown to me at the time.  My husband was on active duty in the Army so I had to deal with military doctors.  I was medivac'd from our base to a military hospital in El Paso, TX...what an experience THAT was.  After a borrage of tests, my team of docs came in, told me what I had & announced that I would need a transplant within 5 years!  Both Mike & I were astounded & terrified.  My kids were still young, like yours, & all I could think about was who was gonna raise my kids better than me?  I was too young to die.  I still had so many things to do yet.  How could this be?  As if this all weren't enough for us to deal with, Mike was going to be deployed to Saudi!  My poor guy was so torn between his loyalty & concern for me & his duty to his troops & what he'd been training for so many years.  Thankfully my doctor stepped in without Mike's knowledge & changed his orders so that he did not have to deploy.  I felt so guilty for keeping him from his duty, but also so thankful.  So began a major life change for us all.  My young son had to learn CPR at the age of 11, I was scared to do ANYTHING, not knowing what activity might end my life.  I walked around on egg shells for about 6 months.  Then one day I watched the movie, "Beaches" with Bette Middler.  Her character's best friend had the same disease I had.  When I saw how that character just sat back & waited to die, I decided right then & there that that was NOT how I was gonna live my life.  I decided the only way I was going out would be kicking & screaming all the way.  And so I live my life that way now.  My story doesn't get the happy ending that yours did...sucks to be me...but I'm not dead woman walking either.  I push the limits all the time but have learned long ago when to push & when to pull back.  I am a true believer that spirit, mind, & positive energy are what keeps us alive...even people in MY position.  This new defib will be my 4th device since 1994.  I hate having to have it, but I hate more the alternative.  My latest echo showing that I only have 20% EF scared the daylights outta me cuz the last I'd heard that meant it was time to go on the transplant list.  I had a long talk with my cardio doc & he assured me that even though that is a bad %, the fact that I am still as active as I am & that I've managed to hold off CHF (congestive heart failure) is a very good sign.  So for now I'm managing with losing this weight, eating healty, remaining active both mentally & physicaly, & help from medications.  How long do I have?  No idea.  But that's why I ALWAYS say I know it's gonna be a good day when I wake up & discover I'm still breathing!  Kinda puts things in perspective for me cuz I sure as heck ain't ready for the alternative.

Good pm, Keep plugging along and focus on the big picture. Its a little setback but once everything is set into place with all the testing and such approval may be right around the corner. Have faith & chin up!

Could this letter have overlapped the new things you have been doing and be incorrect?  Good luck working with your office to get all this straightened out and re-submit!

Don't let it get you down, they have to respond to auth request in a certain amount of time based on the timeliness standards of your insurance company. Once you complete the requirements just have all the paperwork resubmitted.