Recent Posts
Topic: RE: A little Rant/Rave
Jenn - I just wanted to say - 3 kids with special needs and you havent jumped off a cliff yet? BLESS YOU! I have an Autistic son, now 23 yrs old, there were times I didn't think ONE of us would survive his childhood!
I'll put in a good word for you and your family in my prayers tonight!
Good luck on your upcoming surgery - getting to a healthy weight will make it easier to deal with all you have going on (although you already seem to be Superwoman!!!)
~Robin
Topic: A little Rant/Rave
Hi everyone!
Okay, how many of you have actually gone down the path of using ABA and felt like your child was "cured". I'm going to rant a little here...
Although I think its a good idea to expose your child to as many therapies to see what works best, I find it very interesting how many parents are set on ABA and if you child is not doing ABA that you aren't doing all you can to help him/her.
First of all, my son is 3 (diagnosed at 18 mos) and my twin girls (20 mos) have been getting therapy since 8 mos. My son and oldest daughter are getting lots of therapy -- OT, Speech, Self Help, and Music therapy. My son is also in Special Ed Preschool and my daughter has been getting lots of 1:1 therapy/floortime, etc at an excellent birth to 3 center. Also, my youngest twin is also getting therapy for communication delay. My husband and I as well as the teachers and therapists have seen great improvements in all of our children. I get so frustrated by judgement calls by other parents with children on the spectrum.
My husband and I are very dedicated parents!!! We work opposite shifts in order to make sure that one of us is with them throughout the day. I was able to work a split shift and work from home at night since I work in IT for a wireless co. I am blessed to have that luxury. I get home from work and am on the road getting this one and that one to all the therapies they need. Being 300+ pounds doesn't make it any easier. This is part of the reason I've decided to take this very big step in my life.
So WHY can't parents be open minded to what works for each family and each individual child?????????? I just wanna SCREAM sometimes not just from familial struggles of dealing with Autism/Special needs, but all the judgments that come along with that from others.
Okay thanks for letting me RANT & RAVE!!!!
Jenn
Still waiting on surgery date, looks like it might be late April 2006...YEAH!
Topic: RE: Adding Autism as Interest on Profile
Excellent idea!! I've been wanting to spruce my profile but never got around to doing it so I searched out the info you need to spruce your profile if you go to this link http://www.obesityhelp.com/morbidobesity/html_faqs.php
you should be able to find out everything you need to email them to spruce your profile. Sorry, but I'm stealing your idea of Autism Awareness theme, lol! Of course, Autism needs all the publicity it can get!
I have an 11 yr. old with Asperger's Syndrome, high functioning. He didn't appear to have any symptoms until kindergarten then the diagnosis was changed and changed until he grew old enough to get a clear picture of the problem. I knew OCD was not a good fit for his situation but it gave us something to work with for the school. He is in regular ed with pullouts for Gifted/Talented, PE with an OT and special ed for math. We also have a "typical" 14 yr. old son and both boys are active in the Boy Scouts, school band and are altar servers. My aspie son is getting better all the time, his personality is mellowing out wonderfully. We recently started him on Panacea Creams transdermal vitamins with lots of B vitamins, magnesium and zinc, don't know if that is why or he is just maturing but I'm loving it no matter what!!!
If you have any questions feel free to email me.
Anne
254/175/1??
Topic: RE: HAVE I FAILED THE TEST?????
Pam,
I don't think you can say you failed if you are doing everything to get your daughter the services she needs.
I have an 11 y/o aspie son who is high functioning. He is in regular classes with pullouts for services like Gifted/Talented, PE with an OT, etc. He is on Lexapro and we use Panacea Creams transdermal vitamins, plus he sees a child psychologist at least once a month. We have seen tremendous improvements in him.
As for as the bathing, brushing teeth...he does it but I would prefer him to spend more time at the tasks. Of course, most of the "normal" boys are pretty much the same way, being forced to bathe and then rebathe, so unsure about that part.
Are you involved with the Autism Society? We have a great Families Helping Families Chapter here and most of them are also in the Autism Society. Those Support Groups have been a lifesaver and a gold mine of information. Sometimes just knowing you aren't alone helps. If you aren't involved in a Support Group then I would highly recommend it. Feel free to email me anytime.
Anne
254/175/1??
Topic: RE: Transdermal Vitamins for Autism
Dr. Barbara Brierre is the inventor of the Panacea products transdermal vitamins. She was an Internal Medicine doctor but now does research. The transdermal vitamins are delivered via a metered dose pump and feel similar to any body cream product. It can be applied to the inner forearms or inner thighs. Some of the autistic children with sensory issues will take it on the inner thighs and then put their pants on to limit the sensory issues. It doesn't take long to be absorbed into the skin.
My son still takes Lexapro but we have noticed a measurable improvement in him. Of course, he is getting older and he is a high functioning Asperger's so we can't say conclusively that it is just the vitamins. On the other hand it can't hurt b/c it's only water soluable vitamins and the B vitamins, magnesium and zinc do seem to have a calming effect. I've seen less and less of his Aspie symptoms. In fact, he is more social, he went to the dentist (pediatric dentist) who is great with kids but he's always been very afraid. This time he stayed still for his cleaning and even took X-rays and SPOKE to the dentist. That was truly amazing b/c he used to have to be held to get his teeth cleaned and X-Rays were generally out of the question. I'm seeing definite differences in his personality.
If you have any questions feel free to email me at [email protected]
Anne
254/175/1??
Topic: RE: My Son Driving???
I the state of Indiana, ALL are turned down the first time or two.
Thank You.
Kim
Topic: Cool Forum
Hi,
I didn't know about this forum here. I am glad to have found it. I am 37 and was diagnosed with Asperger Syndrome at the age of 30. I had gastric bypass on 11/13/02. One bonus of having weight loss surgery was it gave me a chance to be involved finally in a social group, the WLS community and I have actually made some friends this way. So I feel blessed in this sense.
I have four children. My two sons (ages 15 and 13) both also have AS. My daughters do not.
~KD in WA
