Recent Posts
Topic: Undiagnosed Autism Spectrum Disorder
Hello all. Just wanted to post about my little guy. He will be 5 in March and we have been waiting since June to get his diagnosis. From all the people who have seen him they say it looks like he has PDD/NOS or high functioning autism. I always new there was something different about my son but he has great language (even before speech therapy) and I just thought he was a little behind.
I feel like I have failed him for not getting him help sooner. He is in a special needs pre-school now because of the speech delay but he only started in December. I feel so lost. I try to learn as much as I can but it's all so overwhelming.
Most days I love my son so much that I could just explode and feel so blessed that he is mine. Other days I wish he weren't mine. I know that's harsh but I am sure you all know what I mean. I am still dealing with a lot of grief and guilt.
Until he is officially diagnosed, there is not much available to me as far as parenting classes or respite care. I found a support group but I have to work when they meet.
I know my son has so much to learn and overcome. I also know that he has so much to teach me. He has made me see my glass as half full instead of half empty. God gave him to me for a reason. I hope I will do right by my son and get him all the help I can.
Thanks for listening. Any comments, advice or encouragement would be greatly appreciated.
God bless you all and your loved ones with special needs!!!
Topic: PDD/NOS
My 7 year old son is a 1st grader and was recently given this diagnosis. The doctor said has she seen him earlier she would have labeled him autistic. I've known all along that he fell somewhere in the spectrum. He started speech therapy at age 2. It was his speech therapist that noticed his sensory integration dysfunction. His only diagnosis until recently was communication disorder because that qualified him for the services he needed until now. He has made a lot of progress in therapy. Two months ago we started him on Zoloft 25 mg for his anxiety. He is just out of sync with his body. He still has great difficulty putting on his socks and with other fine motor skills. For the longest time I just did things for him because it was easier. It is so hard to see him struggle so much over things I take for granted! The medicine has helped a little with the anxiety.
My current frustration is with his school. I was so pleased that he did so well in preschool that they decided he could attend a "regular" kindergarten class. I could tell that he was starting to struggle half way through the year. The teacher assured me he was doing fine and only needed the speech therapy. So at the beginning of first grade this year I expressed my concern with his teacher. I told her that I wanted to let him try to stay in a regular classroom, but was afraid to wait too long because I know it can take forever to get back into special ed. And now that is exactly what has happened! He is falling further and further behind in school and is even having discipline problems. He has never been a discipline problem at school!!! In my state they have 60 days to evaluate him. I went in to sign the authorization for testing and was told there were 11 kids in front of him!
Does anyone have any suggestions for what I can do to help him until he is tested? He is having trouble with phonics and is a non reader. He does better with whole word recognition(sp?) He is also struggling with math.
My son has a half brother by his dad. He is 12 and has ADD/OCD/ and ODD. He was also tested as mildly mentally handicapped. For awhile I was hoping that my son was going to be better off because we got him help sooner and he was responding better with therapy, but now I am really worried. I am worried that my son could have the same difficulties that his brother has. His brother is a sweet kid and it breaks my heart to see him struggle.
Stephanie
Topic: RE: Transdermal Vitamins for Autism
BJ, The transdermal vitamins we're using is made by panacea creams, the Power formula which contains magnesium chloride, zinc chloride, B-6 (Pyridoxine HCL), and B-12 (Cyanocobalamin), and folic acid. So far, so good. I'm on the female version which is great not only for hormonal issues but with a gastric bypass vitamin absorption is so important. So, I think it's basically the same type of thing as you're doing -- can't wait for the great results!
Anne
Topic: RE: Transdermal Vitamins for Autism
We don't take vites transdermally, however, we are pursuing other biomedical interventions like chelation and methylcobalimin transdermally with great success. My son is 8, in 2nd grade, and has improved so dramatically that he has lost his educational diagnosis through the school system, and is on the verge of losing his medical diagnosis as well. (For the record, he was diagnosed at age 2-1/2 as moderate autism.)
I would LOVE to share stories with other autie-moms on what has and hasn't worked during this journey!
-BJ
Topic: RE: Transdermal Vitamins for Autism
First of all good luck to your son in earning Eagle! We've been active in Boy Scouts since my older son was a Tiger Cub and he is now 14 and active in Boy Scouts and ready to enter Venturer Scouts. My 11 yr old AS son is also in Boy Scouts and we have been blessed with leaders who want to learn about Autism and work with him. We were afraid about him going to Boy Scout summer camp for a week but my husband took the week off and went with him. He had a few minor meltdowns -- things that don't make sense frustrate him. My 11 yr. has a dual exceptionality in school - Special Ed & Gifted/Talented. He has been through testing through the school board with a child psychologist and he has his own child psychologist and they both agree that he is high functioning for AS. They used the Gilliam testing scale to determine the severity. Both parents and teachers filled out forms asking questions about his behavior, plus he has been with the child psychologist since he was 5 yrs old. The University should also have grad students and professors who would be interested in interviewing your family and son. We have a grad student in psychology who has interviewed many of the families along with her professor to get information. Families Helping Families and the Autism Society have been excellent sources of information for us. We have gone to trainings and the State Autism Conference in Louisiana with speakers such as Temple Grandin (Austistic author, excellent speaker) and Jerry Newport (AS, also a good speaker) which provided great amounts of information.
Is your son in SPED at school? My big problem with my son right now with school is that he just wants to read instead of staying on task at school. The Autism Society has tremendous amounts of information on adults with Autism who may not be able to be a part of the work force. They have all sorts of programs I think many are federal and not state, but not sure. I'm sure your local Autism Society chapter will have lots of information on that subject. I hope some of this has been helpful -- feel free to email me if you have any questions.
Anne
Topic: RE: Transdermal Vitamins for Autism
My son is going to be 18, May, 2, 2006 and I've not been able to get him to take any pills , if he starts , he'll take them for a day or two , then refuse. He is in high school , he is very smart , but does not test well, I can't see him holding a job. He is also in Boy Scouts and it looks like he could make Eagle , he is cuting it close. I just took him to see if he could work at BS Camp, this summer. Having him in Scouts for 12 years has made him a better person, he would not do anything in school. I've not had him in to see where he is on the AS scale how can I do that?
Indiana University is the school around here that is doing alot of study on this I got alot of info from them.
Kim
Topic: Transdermal Vitamins for Autism
Has anyone tried the transdermal vitamins with their autistic kids? We have just started the Panacea Products transdermal B-12 Power vitamins for our 11 year old Asperger's son. At our Autism Society meeting we had a presentation by a doctor about transdermal vitamins. Several people in the group raved about the effectiveness and since they are water-soluble vitamins we thought it can't hurt. Some parents were able to get their kids off some major drugs. Our son is on Lexapro and he hates taking it - doesn't swallow pills, so it's a flavored liquid. He sees an excellent child psychologist who has been a Godsend! Families Helping Families has also been a tremendous help.
I'd love to hear from other parents about what has been the most effective with AS. My son is high functioning on the AS scale but can be challenging. I'm wondering what adolescence will bring.
Scout Mom 14
Topic: RE: Playing in POOP HELP
Hi Kristen.
I have a 9-year old who is severe, on the low end of the spectrum, and has no language. His name is Sam.
Sam has done the poop thing off and on for years. However, I think these past few months we finally got through it. We strongly scold him when he poops outside the br and when he plays in it. Then, because he is so kinesthetic, we give him a cold shower to wash him off. He does NOT like cold--he is a comfort kid. While in the shower we talk to him constantly about appropriate behavior (because we KNOW he understands when he cares to listen).
He has gotten the message. He doesn't like those cold showers.
Brett
363/230/190
Topic: RE: Social Worker
Wow. Boy have we "been there. done that". My older son is 11 and has Asperger's. My younger son is 7 and has autism. A few years back we were having horrible mornings with our older son, dawdling, answering back, passive agressive behaviors ( putting clothes on backwards, even though he is perfectly capable). My husband lost his temper and threw his jeans at him. It was dumb luck that the button on the jeans caught my son on the lip and it swelled. Of course, my son over-reacts to everything, too, so social services was called, they did a full investigation, and the claim was founded. It would have cost us several hundred dollars to consult with an attourney to get it removed from my husband's record. This was after my husband went voluntarily to anger management classes, and we went to family therapy together. So now he can never coach a kids team, never be a Cub scout leader, never work with kids. We're lucky our church is letting him teach sunday School. It just makes me so angry, as I am a teacher of young kids. I see kids dirty, injured, both emotionally and physically, and yet those parents are allowed to get off scott free. I have one family who's main punishment method is to put the kids on the roof when they misbehave. Even without coats inthe winter. If course Social Services have been called, but it all depends on how busy their case load is and which worker you get. We had an over-zealous one with a light case load, so we're stuck.
Heather
lap RNY 6/13/05
Topic: RE: Social Worker
Thanks for all the support Jenna, you were right.
The worker called me back the next am after I left a message, and she said she knew after talking with my son that it was probably nothing at all. She went over to my toddler's preschool also to check on him. Luckily, I have a daycare provider who has a lot of special children, has 1 semester untill her PhD in child phsychology, and has worked with social services many times.
Today, my 10 year old pushed and hurt my toddler, so I sat him down and had a discussion with him about whether we should call social services, or if things like swats, picking up so that you make eye contact, or even loosing your temper with your little brother really happens in families, and whether or not families should learn to work these things out on their own. I think he got the point.
My husband knew within 1/2 hour after our argument how monumentally wrong he was for getting defensive, he was just hurt emotionally.
I know most of my child's AS symptoms come from him.
The social worker made it a point to let me know spanking is not considered illegal, but I told her, the funny part is, we rarely punish physically. Xbox, tv, timeouts-these always work so much better, and I've always been far more prone to give a little swat than a spank.
My toddler just started his tantrums about 2 weeks ago, and I just ride them out-I am adament that no punishment happen during those, I don't feel he's rational, so he's not going to get the point-I just keep telling him the same short explanation for "no" over and over til he calms, and it works.
THANKS, THANKS, THANKS......
