Recent Posts

mother1991
on 10/4/10 7:50 pm - Atascadero, CA
Topic: RE: Major Complications Almost 6 years-Chronic Nausea, vomiting, pain, severe deficiencies-less than 1%
Today is the appointment at UCLA with the dermatology department.  I am seing Dr Modlin whom also has a good understanding on Vitamin D so will be good with all the problems with many vitamin deficiencies and maybe some clear consensus on swelling color changes in right arm.

I saw saw the Physical Therapist yesterday and there is a huge difference in the strength in left hand which was 48 pounds for the grip and my right was 20 pounds a very bid difference which is not good.

Keep posted when I know more.
Renfairewench
on 10/4/10 12:25 pm
Topic: RE: burning?????
When I had my RNY I developed a marginal ulcer. My symtoms were much like yours. Eventually I ended up throwing up blood and having to go to the hospital. I was scoped and they found ulcers along the pouch staple line. It's very common with RNYer apparently.

You should go to your RNY doctor. He'll probably recognize what is going on with you. I was put on a PPI (like Nexium). Unfortunately, I've been on it for nine years. I've tried to get off of it several times, but every time my symptoms would return.

Maddie
 

                   HW (pre RNY) 430 HW (pre DS) 302 / SW 288 /
                          Lowest weight 157 / CW 161
GW 150
                "I'm just one stomach flu away from my goal weight"
                                       
Renfairewench
on 10/4/10 12:14 pm
Topic: RE: Infection!
I had a revision from RNY to DS. I had some post op complications. One of them was that the day I was supposed to be discharged my incision decided to leak serosanquenous fluid (it's an orangey fluid). My incision was red and swollen. A couple weeks later I got a gastric leak. The leakage came out through my open incision.  For the last 14 months I have been dealing with a chronic gastric leak and fistula. I just had a fistula plug procedure that I think is working. It's still too early to tell, but I'm still around thank goodness.

It sounds though to me like her incision may be infected. If it hasn't already happened she should go to the ER ASAP.
 

                   HW (pre RNY) 430 HW (pre DS) 302 / SW 288 /
                          Lowest weight 157 / CW 161
GW 150
                "I'm just one stomach flu away from my goal weight"
                                       
Renfairewench
on 10/4/10 12:04 pm
Topic: RE: Re-Sleeve or DS? Need Help!
Chris,
You might want to post this on the DS and the VSG board. I had a revision, but it was from RNY to DS. I had a lot of post op complications.

I'm curious, is Dr. Greenbaum your husbands surgeon? 
 

                   HW (pre RNY) 430 HW (pre DS) 302 / SW 288 /
                          Lowest weight 157 / CW 161
GW 150
                "I'm just one stomach flu away from my goal weight"
                                       
mother1991
on 10/3/10 7:06 am - Atascadero, CA
Topic: RE: Major Complications Almost 6 years-Chronic Nausea, vomiting, pain, severe deficiencies-less than 1%
Hi More Updates
Had the appointment with the rheumatologist on Wed Sept 29.  He has ordered 3 more tests to check for autoimmune responses  and also got referral to a dermatologist and genetics department.  I always knew I had very flexable buit have diagnosis of hypermolitity syndrome.  There are some connective tissue disorders that hypermobility is part of the equation, also with genetic referral there may also be other things that can have malabsorbtion as part of it too. 

I have the appointment with the dermatologist on Tuesday Oct 5 and the genetic department on November 29 but if opening before this date will get in then.

The followup with endocrinologist on Thurs Sept 30 was a good one too.  Now my calcium levels are low sespite uptake on calcium supplement and D levels are down in the dumps at 20 when in may it was 33.

Endocrinologist did state this is hungry bone syndrome.  My calcitriol has been upped from 0.5 mcg twice daly to 1 mcg twice daily.  hopefully labs will improve.

On Mon Oct 4 i have an appointment for a physical therapy evaluation to see where strengthening can be done to help limit injury to tendons, ligaments, and joints.  The farrow wraps for the lymphedema is in i get them monday too my appointment with lymphedema therapist is at same place as PT back to back appointments.

Follow Up with Gastro is end of oct.

Keep posted with more
briansgirlj
on 10/2/10 8:54 pm - IL
Topic: RE: Major Complications Almost 6 years-Chronic Nausea, vomiting, pain, severe deficiencies-less than 1%
I could have wrote this over the course of the past 3 yrs. I didn't get scurvy instead I got ricketts. I did however, have the reversal and so far my #'s are up by a lot. I had my reversal 8/24 of this year. I had my reversal after being in the hospital for about 6 wks and having transfusions, infusions, and being on TPN. I got down to 98 lbs, developed ulcers, and a stricture (that was not there until may of this year I guess) that would not stay dialated. They cut out the ulcers & strictured area, reconnected my stomach (from the good part left of my stomach) and let down my intestines. I am now absorbing everything that I need to absorb but, my #'s are not completely better yet, they said that will take time. I am still very swollen in my belly but, hopefully that will go away soon.
briansgirlj
on 10/2/10 8:45 pm - IL
Topic: RE: burning?????
That is what my stomach did when I developed my ulcers. I would see your surgeon or a gastro and see if they will scope you.
briansgirlj
on 10/2/10 8:42 pm - IL
Topic: RE: Intestinal Spasms! Help pls
I had this before my reversal and still have it ( a little over a month since reversal) and was rx'd and still take Bentyl (dyclomine) for it. It does help a little bit but, not much. I think between it and a hot bath or heating pad on my belly works the best. I hope that you find some relief soon!
rbb825
on 10/1/10 2:48 pm - Suffern, NY
Topic: RE: intussusception 7 years after rny

You should post this on the RNY and main boards, this board doesnt' get much traffic. Sorry, I dont' know anything about this subject.  I do know that at about 3 months post op, I started out having terrible abdominal pains and burning pains. Actually thought I had an ulcer. I had an endoscopy and every other possibly test in the book and everything was  normal over the next 3 months.  I went for  my 6month follow up and my Nurse practitioner was blowing off my pain and I finally insisted on seeing the surgeon. I saw him the following week.  He said I needed exploratory surgery to see what was going on inside and sure enough, I had 4 sets of adhesions, 1 causing my intestines to be all twisted, 2 were at the connection sites of the where the stomach and intestines were joined and where the intestines were rerouted - both places were adhered to my abdominal wall and dont know where the 4th one was.  I also had a 1 inch hole in my intestines.  Everything was repaired and I was pain free in the recovery room.  Unfortunately the complications we get don't show up on tests and the only way to diagnose us it to operate.  I wish you luck with finding out what is wrong with you

 

lovelyladi
on 9/30/10 11:52 pm - CA
Topic: intussusception 7 years after rny
I have been on this board b4 but not for several yers and could not remember my login or password.

I had lap rny 7 years ago, reasonably successful...did not loose all the weight but lost over 100lbs.  No complications, take all vitamins and supplements.  I lost one close friend to a sudden bowel obtruction 3 years ago (watched her die in emergency room) and almost lost another close friend to an intussusception 2 years ago...35 days in intensive care.  These are supposed to be very rare.  I am beginning to think the statistics are wrong and these are much more common then we are lead to believe.

Now I almost died Saturday night from an intussception. Most horrible pain, 11 on a scale of 1 to 10.  I truely thought i would die that night. Amazingly mine resolved itself...otherwise I would be dead because the emergency room refused to let me see a surgeon and had internal medicine fuss around guessing my problem despite my pleas for a surgical consult. 

Now I will carry a letter from a Kaiser Bariatic surgeon stating I am see a surgeon immediately if I present with severe stomach pain.  The surgeon is following me  now, Lots of tests, cat scans,  MRI etc.

Has anyone else had this problem...especially this far out?  I am terrified and depressed.  wondering when it may happen again.

Most Active
×