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babyface1
on 8/18/10 9:18 am
Topic: RE: SEVERE Hypoglycemia
Ok firstly, eat every two to three hours have your scheduled normal meals and incorporate snacks, always have equal amounts of fat,carbs and protein in all your meals and snacks that should keep your blood sugars steady without giving you a dip into hypo also dont leave the house without some sort of snack with you. stay away from sugars and refined carbs as they will put you into hypos also just stick to the complex carbs.

hope this helps
mother1991
on 8/18/10 4:50 am - Atascadero, CA
Topic: RE: Major Complications Almost 6 years-Chronic Nausea, vomiting, pain, severe deficiencies-less than 1%
has been checked in past and with some recent tests.  i do not have it plus i have gained 150 pounds in 2 years with not much cange in diet that much.  nutritionist was concerned said eating correctly on correct supplements ect.  if the bariatric doctor even suspected that i saw would have said so but he does not know.

A couple of theories are protein losing enteropathy, lymphedema of the intestine, even a side not of possibel TB of intestine which can be cause but rare as it does not attack lungs like TB normally does and can also up negative for TB with TB tine test.

also seeing endocrinologist, rheumatologist, gastroenterologist with speacial tests in the next months, like using pediatric endoscope and doing through look with modified ercp and checking the roux limb with biopsies taken everywhere from end of small intestine out, camera endoscopy, stool tests ect

talk of possible genetist being consulted to see if genetic disorder but niot sure.

CT with and without contrast done thursday last week came back unremarkable no change but that was a given because of all the results in past.
mother1991
on 8/18/10 4:38 am - Atascadero, CA
Topic: RE: Severe abdominal pain
that would be great i added you as friend.

i am not sure if you saw the post on how IBS actually shows brain differences compared to women that do not have.  the difference was in women who had pain as its primary complaint with IBS.  It is under roux en Y i believe.  if can not find it let me know and i can get it to you.  i even emailed the researchers to see if the same process could be for those after gastric bypass as well.  this just shows the brain gut hypothesis are correct and there is deffinately a change after symptoms so no longer a stress thing and no longer can be said nothing wrong
Sarah G.
on 8/18/10 2:12 am - PA
Topic: SEVERE Hypoglycemia
I have never posted here before (probly because up until today, I didnt know this forum existed)..but I am desperate for help, answers, suggestions. Anything.
For the past two years or so (I am 3 years post-op RNY) I have been suffering from attacks that are very debilitating. It started out as hot flashes, dizziness, and hunger. When Id eat something, Id feel better. But they started getting worse as time went on. I started getting blurry vision, sweating profusely, dizziness, inability to stand or walk, confusion. It started to scare me... After some research I found the symptoms were that of Hypoglycemia. So I mentioned something to my gastric surgeon..and he confirmed that was what I had. He told me that if it got worse, that Id need to see a Dr and be treated for it. And also, to get a meter and start checking my blood sugar. So I did. The attacks were much more intense..but for a while, became scarce and random. So I stopped checking my blood and just let things be. They started back up again in full force after a period of time. I tried to figure out why..what I had been doing with my diet that may have caused this. But I hadnt changed a thing. I started having 4-6 attacks a day. This went on for almost 2 months. Over that time, I noticed they were happening more after I wouldnt eat (not when I wasnt eating...which makes more sense seeing that your sugar level drops if you dont eat to keep it up)..so I was confused. I would eat a meal. And within an hour, Id have a sugar attack. Sometimes I would dump first...then have one. But this would happen all day...Eat, Dump,Sugar attack, (eat sugar to stop the attack) then dump from it, then have another sugar attack. It was pure hell!! So after weeks and weeks of this..I decided to stop eating. I went on a liquid diet. And then they stopped almost completely! Again...this confused me. my sugar HAD to be low from not eating...so why did things get better then??? I slowly started eating again..and things evened out. Id have an attack at random. Not every day... maybe 3 times a month.
Well...now (again) they have started up again. But they have gotten even more scary and severe. I have all the same symptoms from before...but now I come close to passing out, my mouth, lips, tongue, and fingers go completely numb, and I am unable to think straight.
I had blood work done last week...all levels were normal. The doctors here are confused. But after a LOT of research, I am not. This is not normal Hypoglycemia. Its specific to Gastric Bypass...and will not respond to the typical treatments. (Here are some links to read about it)

http://www.medpagetoday.com/Gastroenterology/PancreaticDisea ses/1399
http://www.ncbi.nlm.nih.gov/pubmed/18438618
http://www.news-medical.net/news/2005/10/12/13727.aspx

So after finding all of this, now I must figure out what to do. I dont even know where to start. I need to find a doctor that can help. Has anyone been through this or know of a doctor that can help me (in PA).... Im just at a loss...
This happened to me in the car yesterday. It came on very fast. I was forced to pull the car over and eat a bunch of glucose tabs. They however didnt stop the attack. So I had to risk my (and others) safety and continue to drive until I got to a gas station where I got some fruit juice and candy to stop it. VERY SCARY :(
babyface1
on 8/17/10 6:06 pm
Topic: RE: Iron Overload? Anemia?
I also have a high ferritin it's sitting at 465 and has not moved for over a year what does it mean when it's hat high my gp and surgeon do not seem concerned over it
babyface1
on 8/17/10 2:22 pm
Topic: RE: Major Complications Almost 6 years-Chronic Nausea, vomiting, pain, severe deficiencies-less than 1%
Get them to check you for gastroparesis the symptems are nausia, feeling full,bloating and weightloss with malabsorbtion due to not absorbing both the food and vitamins.
pennydd
on 8/17/10 12:04 pm
Topic: RE: Severe chronic abdominal pain (X-Post)

Shrinking Violet , i empathize with you.  i have had almost all of the same problems, testing and surgeries as you.  mym diagnostic lap showed intussusception(where your intestines telescope into themselves) a mesenteric defect and adhesions.  i still have pain and nausea, now throwing up and have a low grade fever now and then(the fever came after my egd with ballon assist).  i feel like my doctors are blowing me off, my surgeon told me i need a psych consult.  i'm not crazy and neither are you or anyone else on this board suffering from abdominal pain, nausea or any complications.  i've been told numerous times by different doctors that "you are high risk" well do something, don't just sit on my symptoms!

please keep us updated, message me, there's alot more i'm sure we can chat about.

ill be sending you a friend request with my personal email so you can email me.

i'll keep you in my prayers

pennydd
on 8/17/10 11:49 am
Topic: RE: Severe abdominal pain

mother1991,

thank you for the kind words, i'd like to keeep in touch with you and you can let me know how things are going with you and vice versa.  thankfully i have been doing good the past 2 days, no vomiting, just nausea and abd pain.  i am glad i posted, i was hesitant.  i don't feel alone in this. i feel like my surgery was/is sucessful, but are these problems related to gastric bypass or is this something i had before?  i had stomach problems before, GERD.  still take nexium for that.  my gi diagnosed me with ibs a few years before my GB, but he was grasping, not really sure what was wrong with me.  i'm looking into a second opinion, i'll give my surgeon and gi dr's this week to get results of the HIDA scan(the tech told me today during the test that i had a lot of reflux from my small intestine) but he could be wrong, have to wait for the official report.  i'll keep you posted and in my prayers.

mother1991
on 8/17/10 9:27 am - Atascadero, CA
Topic: RE: Severe abdominal pain
GL with HIDA scan, if for some reason you are really bad off it will not hurt to goto ER.  In mean time start looking for physicians in your area that you can see for second opinion and make sure they are in network for insurance.  By doing some investigation now, and knowing which ones may be viable sources for second opinion will be helpful.  This way you have the info and give to primary care physician with name address phone fax and contact person in office.

Do what you think is right for yourself, listen to you, because only you know really know yourself no one else.

It is difficult when doctors think it all in your head and seem demissive. Letg them know you do not like the demissive tone and that it makes you feel insignificant.  Basically stating you do not like tone used and appreciate that it be used. 

After having gallbladder removed the liver continuously makes bile that is secreted into small intestine and stomach which is extremely irritating causing many digestive issues from nausea, pain, gas, bloating ect.  And yes gallstones can still be formed after the gallbladder is removed.

If the HIDA scan is inconclusive there is always the possibilityy of using a pediatric endoscope and do a modified ERCP and the pediatric endoscope can go further into small intestine and into roux limb so biopsoies can be taken from areas not done before.

Other idea camera endoscopy, even look at issues that may have been preexisting before surgery that manifested worse afterwards.

I will keep you in my thoughts of wellness and hope answers found soon.
mother1991
on 8/17/10 7:34 am - Atascadero, CA
Topic: RE: Is anyone elso going through this?
Could be from hormonal changes and the body reacting to them or it could be post traumatic stress dissorder, this can occur even with invasive surgery.  Yes see doctor let him/her know what you are going through and can help from there, if need be may not hurt to see a trusted professional to talk about feelings giving a support structure from a non judgmental perspective and someone that you can talk to about these feelings than friends ort family if not feel comfortable sharing with them.  just try surround yourself with support, take one day at a time. 

GL changes after surgery are rapid there are many things going on hormonally, chemistry in brain changed ect.
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