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on 8/18/10 9:18 am
hope this helps
A couple of theories are protein losing enteropathy, lymphedema of the intestine, even a side not of possibel TB of intestine which can be cause but rare as it does not attack lungs like TB normally does and can also up negative for TB with TB tine test.
also seeing endocrinologist, rheumatologist, gastroenterologist with speacial tests in the next months, like using pediatric endoscope and doing through look with modified ercp and checking the roux limb with biopsies taken everywhere from end of small intestine out, camera endoscopy, stool tests ect
talk of possible genetist being consulted to see if genetic disorder but niot sure.
CT with and without contrast done thursday last week came back unremarkable no change but that was a given because of all the results in past.
i am not sure if you saw the post on how IBS actually shows brain differences compared to women that do not have. the difference was in women who had pain as its primary complaint with IBS. It is under roux en Y i believe. if can not find it let me know and i can get it to you. i even emailed the researchers to see if the same process could be for those after gastric bypass as well. this just shows the brain gut hypothesis are correct and there is deffinately a change after symptoms so no longer a stress thing and no longer can be said nothing wrong
For the past two years or so (I am 3 years post-op RNY) I have been suffering from attacks that are very debilitating. It started out as hot flashes, dizziness, and hunger. When Id eat something, Id feel better. But they started getting worse as time went on. I started getting blurry vision, sweating profusely, dizziness, inability to stand or walk, confusion. It started to scare me... After some research I found the symptoms were that of Hypoglycemia. So I mentioned something to my gastric surgeon..and he confirmed that was what I had. He told me that if it got worse, that Id need to see a Dr and be treated for it. And also, to get a meter and start checking my blood sugar. So I did. The attacks were much more intense..but for a while, became scarce and random. So I stopped checking my blood and just let things be. They started back up again in full force after a period of time. I tried to figure out why..what I had been doing with my diet that may have caused this. But I hadnt changed a thing. I started having 4-6 attacks a day. This went on for almost 2 months. Over that time, I noticed they were happening more after I wouldnt eat (not when I wasnt eating...which makes more sense seeing that your sugar level drops if you dont eat to keep it up)..so I was confused. I would eat a meal. And within an hour, Id have a sugar attack. Sometimes I would dump first...then have one. But this would happen all day...Eat, Dump,Sugar attack, (eat sugar to stop the attack) then dump from it, then have another sugar attack. It was pure hell!! So after weeks and weeks of this..I decided to stop eating. I went on a liquid diet. And then they stopped almost completely! Again...this confused me. my sugar HAD to be low from not eating...so why did things get better then??? I slowly started eating again..and things evened out. Id have an attack at random. Not every day... maybe 3 times a month.
Well...now (again) they have started up again. But they have gotten even more scary and severe. I have all the same symptoms from before...but now I come close to passing out, my mouth, lips, tongue, and fingers go completely numb, and I am unable to think straight.
I had blood work done last week...all levels were normal. The doctors here are confused. But after a LOT of research, I am not. This is not normal Hypoglycemia. Its specific to Gastric Bypass...and will not respond to the typical treatments. (Here are some links to read about it)
http://www.medpagetoday.com/Gastroenterology/PancreaticDisea ses/1399
http://www.ncbi.nlm.nih.gov/pubmed/18438618
http://www.news-medical.net/news/2005/10/12/13727.aspx
So after finding all of this, now I must figure out what to do. I dont even know where to start. I need to find a doctor that can help. Has anyone been through this or know of a doctor that can help me (in PA).... Im just at a loss...
This happened to me in the car yesterday. It came on very fast. I was forced to pull the car over and eat a bunch of glucose tabs. They however didnt stop the attack. So I had to risk my (and others) safety and continue to drive until I got to a gas station where I got some fruit juice and candy to stop it. VERY SCARY :(

on 8/17/10 6:06 pm
on 8/17/10 2:22 pm
Shrinking Violet , i empathize with you. i have had almost all of the same problems, testing and surgeries as you. mym diagnostic lap showed intussusception(where your intestines telescope into themselves) a mesenteric defect and adhesions. i still have pain and nausea, now throwing up and have a low grade fever now and then(the fever came after my egd with ballon assist). i feel like my doctors are blowing me off, my surgeon told me i need a psych consult. i'm not crazy and neither are you or anyone else on this board suffering from abdominal pain, nausea or any complications. i've been told numerous times by different doctors that "you are high risk" well do something, don't just sit on my symptoms!
please keep us updated, message me, there's alot more i'm sure we can chat about.
ill be sending you a friend request with my personal email so you can email me.
i'll keep you in my prayers
mother1991,
thank you for the kind words, i'd like to keeep in touch with you and you can let me know how things are going with you and vice versa. thankfully i have been doing good the past 2 days, no vomiting, just nausea and abd pain. i am glad i posted, i was hesitant. i don't feel alone in this. i feel like my surgery was/is sucessful, but are these problems related to gastric bypass or is this something i had before? i had stomach problems before, GERD. still take nexium for that. my gi diagnosed me with ibs a few years before my GB, but he was grasping, not really sure what was wrong with me. i'm looking into a second opinion, i'll give my surgeon and gi dr's this week to get results of the HIDA scan(the tech told me today during the test that i had a lot of reflux from my small intestine) but he could be wrong, have to wait for the official report. i'll keep you posted and in my prayers.
Do what you think is right for yourself, listen to you, because only you know really know yourself no one else.
It is difficult when doctors think it all in your head and seem demissive. Letg them know you do not like the demissive tone and that it makes you feel insignificant. Basically stating you do not like tone used and appreciate that it be used.
After having gallbladder removed the liver continuously makes bile that is secreted into small intestine and stomach which is extremely irritating causing many digestive issues from nausea, pain, gas, bloating ect. And yes gallstones can still be formed after the gallbladder is removed.
If the HIDA scan is inconclusive there is always the possibilityy of using a pediatric endoscope and do a modified ERCP and the pediatric endoscope can go further into small intestine and into roux limb so biopsoies can be taken from areas not done before.
Other idea camera endoscopy, even look at issues that may have been preexisting before surgery that manifested worse afterwards.
I will keep you in my thoughts of wellness and hope answers found soon.
GL changes after surgery are rapid there are many things going on hormonally, chemistry in brain changed ect.