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Okay heres the story I had gastric bypass surgery in December 2008. I have had a lot of complications including two scar tissue removal surgeries.Now I'm having sever abdomenal cramps like I have to go to the bathroom but I cant no matter how hard I push. My nurse told me to take Milk of Magnesia...did that didn't help. So I called my regular doctor and they gave me prescription strength colace. Still not working. Even if I have to urinate I have to push to do so. I'm having trouble passing gas and I falt out feel sick. Last time scar tissue was pulling my liver outta place. Could it be pulling on my bladder or bowels. Whats going on here!? I live in Mount Clemens Mi about 50 miles from Detroit where my surgeon works. And the hospital near me doesnt do baratrics and knows nothing about it.
BTW: How do you change your ticker I now weigh 199lbs. So it's not right
I'm no doctor, but I have spent my time in the trenches with diabetes, with a husband and MIL with type 1, and I can tell you that diabetes is a vascular disease. That's why almost all diabetics have high blood pressure, and the vascular component is the cause of diabetic retinopathy ... and stroke.
That thing you can't put your finger on, is it survivor guilt?
It is NO WONDER that your focus is shot. Please consider seeing a grief counselor ... and accept my sympathy for the loss of your dear friend.
Please and thanks.
Hope this helps. This may NOT be your problem but I am just offering an avenue to check. Your chemistry may be as sensitve to the poison as mine. Please let me know how you go.
Wishing you all the best.
Straw Walker
http://www.mayoclinic.com/health/gastroparesis/DS00612/DSECTION=causes
Additional workup of the cause of my pain and nausea included an Abdominal Ultrasound, which showed sludge in my gallbladder, and a HIDA scan, which revealed an ejection fraction of 8% meaning the gallbladder was not functioning adequately. Therefore, I had a Laparoscopic Cholecystectomy in March 2010. A week later, I again developed fluctuating epigastric abdominal pain (lower and gradually stronger than before, which worsened with exercise), nausea and abdominal distention. An abdominal/pelvic CT in April 2010 only showed copious amount of stool in the colon consistent with constipation. I used numerous laxatives to clear up the constipation, but it did not effect the pain, nausea or distention.
My surgeon referred me to a Gastroenterologist, *****commended an Enteroscopy with Balloon assist past the Jejunojejunal anastomosis to look for problems lower than the pouch, as well as an Ultrasound and biopsy of the Esophageal nodule, which was done in June 2010. A small, superficial jejunal ulcer was found there, but no specific treatment recommended as they apparently are not very responsive to medication. A repeat abdominal CT again only showed constipation. Again, the use of Miralax did not improve the symptoms, although it affected the constipation. These symptoms worsen with eating and drinking, and I have seriously reduced the consistency and types of food I eat - mainly soupy/very soft and mostly the same thing every day. I struggle to take in 625-725 cals. a day (and I'm 9 months out!)
A Diagnostic Laparoscopy was done August 3, 2010 to determine if there was any anatomical reason not picked up on previous tests for my symptoms. My surgeon found and repaired 2 small defects in the adhesions between the large and small intestines that "could" be places where the small intestines could get herniated and cause an intermittent partial obstruction, but he is not convinced this was the problem. He also released excess air in the remnant stomach, which he believe was iatrogenic from too exuberant inhalation by the anesthesiologist. There were very few adhesions present, and the area where the jejunal ulcer was looked fine from the outside.
If the pain and nausea continue despite the repair in the defects, Dr. Kligman is recommending addressing the issue as a pain management one and going for a Celiac Axis Block. Given the lack of findings on these many procedures he does not think there is likely to be a significant yield looking further. I am concerned that just blocking the pain ignores a possible treatable or serious condition. I just talked to my Gastro, who stated that he did not have anything else to offer in his differential diagnosis at this time, but that I certainly could reconsult him should symptoms change or become more specific. He recommends following my surgeon's recommendations for treatment via pain management should my pain and nausea continue after the healing period from the Diagnostic Laparoscopy. I'll see my surgeon in about 2 1/2 weeks for follow-up. I would appreciate other opinions.
Next step, I am in the works to see a doctor in Mississippi to see if I am a candidate for a gastric pacemaker. I do not have full-on gastroparesis, but I do have a severe case of delayed gastric emptying, so we will see what happens. According to my GI at CCF, the doc in Mississippi is THE guy for gastric pacemakers, and one of the few that actually has a test to see if it works for you.
My PICC failed, and I am secretly pleased for all the wrong reasons, I just hated living that way, made me feel like a freak, of course I don't feel that way about anyone else who has one, just me...why are we so hard on ourselves? I am looking at a 1-2 day trial of an NG feeding tube that runs to my small intestine to make sure I can tolerate the J-tube feedings before the surgeon will schedule the surgery to put in a Roux En Y Jejunostomy feeding tube, it will take the place of the PICC, and it is more liveable than a PICC, less risk of systemic infection, I can swim, etc... I really just wish I could live without all of this stuff, but after going to CCF I have come to the harsh reality that this is all permanent. They have told me that at this point, we just need to try and control the symptoms, the damage to my vagus nerve is permanent, it cannot be repaired.
I'm trying to keep my spirits up, I have re-enrolled in paramedic class, I will only know if I try.
As always, I am here for anyone who is struggling like me, although I wish there weren't anyone else. If it takes me a while to get back to your emails, I apologize, I am not on here as much as I used to because of all my trips back and forth to Cleveland. I think I will be home for a while this time, I have to have my stitches removed in 10 days, but they said my local pain management doc can take them out, which is good, I am not up for an 8 hour one way car ride at this point.
Good health to all!
Jules