Is DS dangerous??

Why are you wasting your time at this "support group?" And have you read real research and real scientific results about the DS? Those are two sides of the same question, namely: Do you REALLY know what you're getting into? (As much as is possiblie at the moment?) REALLY?

If you KNOW that you are educated with current, up to date info, and if you KNOW that understand what will be done in the DS proceudre and how to live thereafter, then there is no reason to "defend" yourself to anyone. You must be confident where you are.

Emily is not wasting any time with this support group.  She lives some distance from the meeting location and we've only seen her at the meeting twice.  Her "attendance" is via email.

And I posted a reply to Major Mom that I hope you'll read.  I also posted another comment with someone else here (sorry I can't remember her name) but the bottom line is I want to make sure Emily knows all the ins and outs of the surgery before she gets on the plane.

I'd like to think that nobody who attends our meetings thinks they're wasting their time.  Of course, if they thought that, I guess they wouldn't come back.  I have people who have been with our group for almost every single meeting since we formed 4 years ago.  So it can't be too bad. 

I did do my homework on the DS.  It wasn't for me but one rule of the support group is "no talking down a surgery you didn't have and no talking down a surgeon you didn't choose".  What's right for me may not be right for you.  You don't talk down about me and my surgery and I don't talk down about you and your surgery. The conversation I had with Emily was a private one and I never talked down about the surgery.  I just wanted to make sure she was going about this with her eyes open.

LaWanda

She will be wasting her time if this is the kind of information that is discussed at your meetings.  Your "concern and information" obviously upset the OP and I can certainly see why.  If you have questions about the DS then you should address them to people who can answer them.  Your surgeon does not do the DS and does not know the DS.  If you were really concerned you would have done your own research.  You could have done a search at pubmed, or read the information at DSfacts or duodenalswitch.com, but you did neither.  Instead you just spout off with myths and half truths.  Is this what the OH support group leader training taught you? 

Oh and by the way -- there has not been a DS surgeon in Miami for about a year now.  There are no experienced DS surgeons in the state of Florida that I would recommend.  There is one surgeon who claims to do the DS but he left another state under a shadow and I would not recommend him.

This information was not discussed at my support group.  It was a private call between me and Emily. 

I asked my surgeon and then came here to do my research.  And I'd read and read and read and am still learning.  And I did read the DSfacts and the doudenalswitch.com and it is all very valuable information.  I learned a lot. 

I didn't spout off myths, just concerns.  And OH training tells us to inform all those who approach us that all surgery is risky and to point out all the good and all the bad. 

Thanks for letting me know the doctor is no longer in Miami.  See, I'm still learning. 

But do you not see? Your "concerns" are based on MYTHS. That makes the concerns into prolumgating myths. Do you not get that? It's simple logic.

You are not improving your reputation with these posts. Just butt out and go away. You are not her mommy or her doctor and you clearly know diddly **** about the DS. So buzz off. We'll help Emily navigate her way through ACCURATE information and care, which you cannot provide.

Butt. out.

You have no idea what Emily and I have been thru together.  She and I have worked thru this journey for a few years now. 

I know there are hateful people on all these boards and I have heard from more than one person that the people on the DS board are the worse and you're helping prove that.

I'm not the right support group leader for everybody and offer those who contact me a list of all the local groups and encourage them to try them all and pick the one that's right for them.

You can bet your life that I won't ever post on the DS board again and will encourage Emily to find the right group for her.  As one other poster mentioned, she can get support here on the board 24/7/265.  And like I said in another post, Emily has gotten most of her support from our group via email.  She's only attended two meetings as she lives a good distance from us and we're NOT the closest group to her.

Now we see the violence inherent in the system! Help, help! I'm being repressed!

(So where'd ya get them coconuts?)

The swallows.