Found "lumps" in my neck :(

kirmy
on 7/21/11 12:20 am - BF-Nowhere, United Kingdom
I tried posting a response at work last night but the ******g computer kept crashing!!

You don't have a tumor for God's sake!  If this happened post infusion you've got iron infusion lymphadenopathy. It happens to a small portion of recipients and causing the exact symptoms you describe.

BACK AWAY FROM GOOGLE NOW.....THAT'S IT BACK UP..........

Right now that you have another diagnosis aside from NHL go and see your GP and request a biopsy so that you can put the whole "I obviously have cancer "thing behind you,  I hope that I'm right and that you don't have to ever face the prospect of going through treatment for such a ****ty thing.

Best of luck.

xx
            

RIP Mickie aka Happychick.  You will be missed deeply.
Lisey
on 7/21/11 12:26 am - Milwaukee suburb, WI
Thanks, Kirmy :)  Your post made me smile.  I will get a biopsy!

HW / SW / CW / GW      299 / 287160 / 140     Feb '09 / Mar '09 / Dec '13 /Aug '10          

Appendicitis/Bowel Obstruction Surgery 8/21/10
Beat Hodgkin's Lymphoma!  7/15/2011 - 1/26/2012 


Ran Half-Marathon 10/14/2012

First Pregnancy, Due 8/12/14                             I LOVE MY DS!!!
 

no_more_rolls
on 7/21/11 1:11 am - Jackson, MI
Something I have not heard anyone mention is the possibility of thyroid nodules or thyroid goiter. Insist on getting a biopsy and ultrasound done.  Have your thyroid labs checked.  I've read somewhere about some other DS'ers developing thyroid issues post-op, so it's not impossible.

I've been through this scare as well and finally after multiple tests, ultrasounds, and biopsies I will be having surgery for a total thyroidectomy August 3rd.  I was diagnosed pre-DS with hashimotos thyroid disease.  The "lump" is so large in my neck you can see it just looking at me.  I have several nodules, but the most dominate one is 6cm in diameter.  I've lived with this for a long time.  The only reason why I am getting the thyroidectomy at this point is due to it's size.  

Good luck and do not worry yourself sic****il you have a reason and proper diagnosis.  
Lisey
on 7/21/11 1:37 am - Milwaukee suburb, WI
Thank you for your response.  I hope that your surgery goes off "without a hitch"!  There is actually one post where someone asked about my thyroid.  I have had the thyroid hormones/ markers checked and they're mostly normal, just methylmalonic is low.  There's a couple on the low end of normal, but most are solidly in the middle range.  I definitely will get a biopsy done & if it turns out negative, then an endocrinologist is the next stop!  Thanks again!

HW / SW / CW / GW      299 / 287160 / 140     Feb '09 / Mar '09 / Dec '13 /Aug '10          

Appendicitis/Bowel Obstruction Surgery 8/21/10
Beat Hodgkin's Lymphoma!  7/15/2011 - 1/26/2012 


Ran Half-Marathon 10/14/2012

First Pregnancy, Due 8/12/14                             I LOVE MY DS!!!
 

no_more_rolls
on 7/21/11 8:08 am - Jackson, MI
 You're most welcome...and thank you for the well wishes on my upcoming surgery 
 When I first noticed my "lump" my thyroid labs were normal, but within 2 months they were  abnormal, of course by that time my first ultrasound and biopsy was done.  My endocrinologist explained to me that even when people have thyroid goiters or nodules they will often have normal labs until you become hypo or hyper depending on the reason your body responded.  For example hashimotos or graves disease among many others.  

Best of luck to you I hope all goes well!
Winning isn't everything, but wanting to win is.  
DONT BE AFRAID TO FAIL......BE AFRAID NOT TO TRY! 
highest weight 313/ surgery 255 / current 185 / goal 135  Height 5'6"
       
Lisey
on 7/22/11 3:05 am - Milwaukee suburb, WI
Thanks :)

HW / SW / CW / GW      299 / 287160 / 140     Feb '09 / Mar '09 / Dec '13 /Aug '10          

Appendicitis/Bowel Obstruction Surgery 8/21/10
Beat Hodgkin's Lymphoma!  7/15/2011 - 1/26/2012 


Ran Half-Marathon 10/14/2012

First Pregnancy, Due 8/12/14                             I LOVE MY DS!!!
 

MarciRenee
on 7/22/11 2:01 am - IA

I got nothing but  and   for you.  Wish I could be more help, but I'm clueless about all this stuff.  I WILL send you quick dx, quick healing, and NO CANCER vibes and swing all the critter I can get my hot little hands on!

Marci       
Lisey
on 7/22/11 3:06 am - Milwaukee suburb, WI
Thanks, Marci!!!  Those are a couple of my favorite smiley face icons!

HW / SW / CW / GW      299 / 287160 / 140     Feb '09 / Mar '09 / Dec '13 /Aug '10          

Appendicitis/Bowel Obstruction Surgery 8/21/10
Beat Hodgkin's Lymphoma!  7/15/2011 - 1/26/2012 


Ran Half-Marathon 10/14/2012

First Pregnancy, Due 8/12/14                             I LOVE MY DS!!!
 

Julie R.
on 7/22/11 3:29 am - Ludington, MI
 Hi Lisey - I'm just now stumbling across this post - a day late and a dollar short, as they say - and I just wanted to give you my best good wishes and warm hugs.

Hope the outcome of all of this is as positive as your attitude!
Julie R - Ludington, Michigan
Duodenal Switch 08/09/06 - Dr. Paul Kemmeter, Grand Rapids, Michigan
HW: 282 - 5'4"
SW: 268
GW: 135
CW: 125

Lisey
on 7/22/11 3:42 am - Milwaukee suburb, WI
Thanks, Julie!

HW / SW / CW / GW      299 / 287160 / 140     Feb '09 / Mar '09 / Dec '13 /Aug '10          

Appendicitis/Bowel Obstruction Surgery 8/21/10
Beat Hodgkin's Lymphoma!  7/15/2011 - 1/26/2012 


Ran Half-Marathon 10/14/2012

First Pregnancy, Due 8/12/14                             I LOVE MY DS!!!
 

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