Update on Laurie
Well, she was scheduled to get out today. BUT last night started having an allergic reaction to Meropenum, Spots all over and itchy. SO this means changing antibiotics and possibly more time in the hopital to get them fine tuned. She is on 4 antibiotics all together.
I have Princess Nemi. She is struggling a little with the confinement when I take her up to see Laurie. Luckily the fine nursing staff at the UMN, 7B have known her since she was a week old and love to see her smiling little face.
Laurie is struggling with only being able to see Nemi for a limited amount of time. I take her up every day, but man does parking an food get expensive. Hopefully the social worker can get me a parking permit. Meg will be back from vacation today and that always makes Laurie happy.
I sure hope that they get the antibiotic switched today and decide on how long they want her to make sure she does not react to this one. She is highly allergic to all Sulfa based drugs so she cannot take anything in that spectrum.
She could use some mental hugs from her friends here. She has her computer with her. Last night Marlin made 2 videos of Nemi and I posed them on my facebook page, Karen Harper. You might find them amusing rofl, Laurie about fell off the bed laughing. Nemi just wants me to set it to play over and over and over again on the screen. She may begin to like it better than Kung Fu Panda.
Thank you all for your love and support, at this minute I could use some hugs too. God I hate Cystic Fibrosis with a passion!!
Karen, Laurie and Princess Nemi
I have Princess Nemi. She is struggling a little with the confinement when I take her up to see Laurie. Luckily the fine nursing staff at the UMN, 7B have known her since she was a week old and love to see her smiling little face.
Laurie is struggling with only being able to see Nemi for a limited amount of time. I take her up every day, but man does parking an food get expensive. Hopefully the social worker can get me a parking permit. Meg will be back from vacation today and that always makes Laurie happy.
I sure hope that they get the antibiotic switched today and decide on how long they want her to make sure she does not react to this one. She is highly allergic to all Sulfa based drugs so she cannot take anything in that spectrum.
She could use some mental hugs from her friends here. She has her computer with her. Last night Marlin made 2 videos of Nemi and I posed them on my facebook page, Karen Harper. You might find them amusing rofl, Laurie about fell off the bed laughing. Nemi just wants me to set it to play over and over and over again on the screen. She may begin to like it better than Kung Fu Panda.
Thank you all for your love and support, at this minute I could use some hugs too. God I hate Cystic Fibrosis with a passion!!
Karen, Laurie and Princess Nemi
I hope things get better anf you are in my thoughts and prayers.............
Hey Marsha,
How are YOU doing??? I know it has been so rough for you. Hopefully as the days go by and the sun starts to shine more it will get easier.
Hanging in there is all we can do. I should be used to this ^$##%&*^%$% disease after all these years but it drives me batty. If I never had to go into the hospital to see her for this again.... but, they have to cure it first and she will always have the damage that has already been done.
OK, get my act together, Nemi be waking up soon and she needs me to give her love and kisses, clean clothes, food, busy things b4 we go up to see Mommy. I am so grateful that 7B staff love both my girls and don't complain when I bring Nemi to see Laurie.
Have a great day, thank you for the hugs, will have Laurie check the puter later.
Karen
How are YOU doing??? I know it has been so rough for you. Hopefully as the days go by and the sun starts to shine more it will get easier.
Hanging in there is all we can do. I should be used to this ^$##%&*^%$% disease after all these years but it drives me batty. If I never had to go into the hospital to see her for this again.... but, they have to cure it first and she will always have the damage that has already been done.
OK, get my act together, Nemi be waking up soon and she needs me to give her love and kisses, clean clothes, food, busy things b4 we go up to see Mommy. I am so grateful that 7B staff love both my girls and don't complain when I bring Nemi to see Laurie.
Have a great day, thank you for the hugs, will have Laurie check the puter later.
Karen
ONE 
session at a time is all I can do, multitasking is a fine art that I am still trying to master. 
session at a time is all I can do, multitasking is a fine art that I am still trying to master. 
Thanks Connie, Grandma's like us have a tough time. We love them so very much and it is to hard to see them unhappy and hurting.
Did Nic know a little boy named Eli? He had neuroblastoma but he was so very lucky to beat it. He is about 10 now, this was 3 years ago. I think he was at childrens.
Hope you have a great day.
Karen, Laurie and Nemi
Did Nic know a little boy named Eli? He had neuroblastoma but he was so very lucky to beat it. He is about 10 now, this was 3 years ago. I think he was at childrens.
Hope you have a great day.
Karen, Laurie and Nemi
ONE session at a time is all I can do, multitasking is a fine art that I am still trying to master.
session at a time is all I can do, multitasking is a fine art that I am still trying to master. Karen...is it Eli Horn? Yes, he and his family are good friends of Nic and the rest of the family. They had dinner at my daughter's(Nic's) home not too long ago.
I believe Eli is back into treatment once again. He has been in NY at Sloan Kettering Cancer Center. This is the same place Nic goes.
I can get you Eli's website if you would like it.
Hugs....connie d
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