Anyone ever feel forgotten?

I am taking my journey through the Ottawa clinic, and made a call today, and now I feel as though time has passed by and I was forgotten. I realize that I'm not the only patient by far, but feel a bit sad that if I hadn't made the call who knows how much longer I'd have waited. I'm not upset with anger by any means, just a bit disappointed. There I've said it out loud, now happy Tuesday!

its so easy to get lost in the shuffle with the amount of people these centers see... to be honest in Ontario we are pretty lucky.  In other provinces the waits are so much worse...having said that...ya it sucks if you happen to be the person whos file falls through the cracks.

My husband had to resend his referral 6 times and 9 months later FINALLY TWH has his referral....so I get it... Be your own advocate..call, call, call. 

Juls

Hi Robin,

You're not the only one that feels forgotten.  When I went through, they were changing processes, so it took me longer, at one point, my file went missing.  They figured it was on the surgeon's pile of files. I made it in before they had a large influx of people coming in, but because of the process change I ended up having to wait for the new process.  Then it wasn't who waited the longest, it was who got to the admin window first.  But I got there, and I'm 1 year 10 months out and am glad I went through the process.  May have taken a bit longer, but I got there.

Cathy

Me too. I started my journey at the Ottawa clinic in 2009. I went for orientation in 2011 and I am going for my dietitian appt next month. sigh. But the surgery is free!!! Happy Tuesday.

Yes, I kind of feel that way. I'm not sure it's valid for me.... I might just be impatient. I've been waiting a week and a half for my surgery date. Partly the problem is that when the visit to meet the surgeon was booked I was told that day I would get my surgery date. Later I attended a support group where several of the women got their date within 2 days of meeting the surgeon. So now that it's been a week and a half....

I did start a thread about this roughly a week ago, where I learned of more people for whom the wait between surgeon visit and getting a surgery date for Ottawa was not super quick. My fingers are crossed, though, that by the end of the week (since it will be a new month) I get a call telling me my date is in June.

I think we all know how it feels Robin. The wait seems eternal, and it feels like everyone else is making that "got my date" post.

Then, all of a sudden it's you. Surprised the heck out of me.

It will come, and, no matter how long you wait, it will scare the $#@&* outta you, it will see like it's coming way too fast, and it will be totally worth it.

Thanks for all your words. I'm probably not patient enough but waiting kills me!! Lol. Onward I go!!!

Both my fiancé and I went through Ottawa and it was 18-19 months. I just had surgery in January. It's a process and the time allows you to learn about what will happen, what changes you need to make and start making them.

I feel forgotten - yes. I saw the surgeon on April 4. It's terrible whenI've called L twice and am hesitant to call a third time when I've been politely told twice that if there was a date for me I would have been called already.

I would be okay waiting if I could understand why there is such variation in time between next seeing the surgeon and getting a date. Their scheduling makes no sense from my perspective. It ranges to getting a call the next day to waiting a month or more. On May 2 it will be 4 weeks

My boss asked me if I have a date yet so she can plan for my replacement and I have to say I don't know.

I feel the exact same way as you do Robin, and guess what?  We are both out of the Ottawa clinic.

I have done all my required appointments, tests etccc.

Haven't heard from anyone at the clinic since February.

I have called and left a message 1 week ago and still as of today no one has called me back.

We just keep keeping on, and sit with baited breath for the phone to ring.