HELP Ugent info needed ~ How many/MOST Years Out!?

I Chick, I'd be interested in more info re your nesidioblastosis.  I'm having surgery at Mayo next week for a distal pancreatectomy for this .  The tail of my pancreas is secreting 5 times it's base line in insulin when stimulated.  Makes life interesting.  I never know what food will or won't drop me like a rock.  Do you by any chance have PCOS/insulin resistance?  I'm wondering if that isn't the trigger in why some people don't have any problems and some do. Lyn 3 years out

I'm confused which isn't unusual!  LOL  I tried to read your profile and got this message:        

We're sorry, but we could not find a profile at /member/pb41/ or the owner of the profile has made it private. Take a look to see if the one you are looking for is listed below. *shrugs*

i UNDERSTAND WHAT YOU ARE SAYING.  I HAVE HAD NUMB FEET SINCE 3 MONTH S AFTER SURGERY.  NO-ONE CARES.  MY BARRIATRIC SURGEON,  THE TWO NEUROLOGISTS I HAVE SEEN  AND I MEAN NO-ONE.  I HAVE LIVED IN MISERY.  I CAN'T WORK OUT, I HAVE NO STRENGTH AND THE NEUROLOGIST TELL ME I NEED TO SEE A NEUROPSYCHOLOGIST.  I ORDERED THIAMINE INJECTIONS FROM CANADA AND STARTED THEM YESTERDAY.  I HAVE BEEN DEALING WITH THIS SINCE 2005 DECEMBER.  I FEEL LIKE I AM DYING SOME DAYS.  ANY SUGGESTIONS?

had my surgery in 2001. doing relatively fine, no major complications. no minor ones either. i am not perfect have re-gained. but look at this.....I had surgery....with all the risks....two days ago an 18 year old boy from my daughters school who played football died of a heart attack.  risks are everywhere....women die giving birth....was your husband concerned about that? do you drive a sherman tank to work? do you live in a bubble? you have to do your research and know as much as possible. follow rules...... who are you having the surgery for? yourself? your husband? kids? I think it is for you to live a healthier life. but this is my opinion good luck tammy

I am trying to find out if any of you know how to make pouch smaler.I am 3 yr. after GBP and I gaind 18 lb. If you have any information please email to me. Thanks EK

http://groups.yahoo.com/group/Graduate-OSSG

ok, b4 i forgot, posted the link for the group of way oldies. cannot speak til you are 1 yr out, but you can lurk, and ask me or some folks from here to post questions.

that said, i was done 10/5/94, redone 1/20/2000. mine was done the old fashioned way, so needed a repair. very few docs still do it that way now.

if you read my post yesterday, sbject: well! , you'll see one comploication that cannot be fixed, but can be prevented, but i only know of 2 programs that i consider adequate for preventionb of the very expectable problems:
iron
b1 (thiamin)
b12
calcium
a
d
e
zinc
protein

however, July 20 weekend, many of the grads from around the country will gather for what is much like a giant slumber party at night, but days are hanging out with one group or another. Hike? Swim? Shop? nothing formal, but that Grad list started 7/99, so anyone who joined then was at least 1 yr out.

I know I'm 100 mi away, but itr might be worth it to make that trip. I'm in Puyallup

We have a support group July 10-11, 7pm. Then the gang descends the next week.

states represented:
FL
GA
NJ
MN
CA
NE
WA
MT maybe
DC
VA
TX

and so on, many are 5 yrs or more. there is another who's 3 months ahead of me, my dh is 1995.

OK, while pre-grads cannot speak on the list, EVERYONE IS WELCOME TO ATTEND any part that is of interest. we do a potluck on sat, the only time all of us are together in one spot. then pick places for dinner fri & sun. fri is usually jimmy mac's roadhouse in renton, because we are making trips to the airport. i have 7 or 8 staying with me, some coming earlier in the week.

anyway, that's way too much to type with one hand, but i'm saying if you step outside your comfort zone just a but, you can gave a crash lesson on longer term post op life.

sadly, the symptoms of the nesidioblastosis are pretty universal, with or without the proper diagnosis.

i still weigh around 115, not sure because broken arm literally added 5 #to me! it's huge! lol. dh is still around 180.

I will be 8 years out in December. I will be happy to answer any questions. I am complication free.

My mother had RNY is 1986. She's 71 now, and very healthy. She had open surgery, the only kind they did then. No complications and she's only 16 pounds over her lowest loss. I think I read that most people live an average of 30 years after RNY. The average age of those having RNY in that study was around 45.

I am 16 months post-op so not a real vetran yet. I have had complications but according to surgeon they are not totally from the RNY. One complication to consider is adhesions, espesially if you are considering open surgery. The reason I am having difficulty is because I already had two previous open sugeries. They were decades before my bypass. I had apendectomy in '77 and colecystectomy in '88. So I had a head start on adhesions. My RNY was open and I also had a hernia repaired at the same time.  For information on my complications you are welcome to visit my profile.  My twin sister had open RNY 9 months before me. She has not had a single complication. My uncle John had Laproscopic RNY and no complications and he is now almost 3 years post op. My aunt Donna had open RNY not quite a year ago and she has done great.  It is good that you are researching and asking these questions. Had I researched a bit more I would likely have opted for the laproscopic procedure because of my history with previous surgeries. This may have reduced the amount of adhesions and complications from them.  Ditto the expressions on risk...risks are everywhere. But it does little good to poopoo loving concern. Your husbands concerns are legitamate. With or without surgery, lap or open you are facing life threatening risks and ultimately the decision as to what risks and quality of life you want to experience when you only get one shot is soley yours.  Maybe someday you will be here with us as a "graduate" and sharing your success with others contemplating what you have successfully accomplished.

I'm over 6 years out and in my support group and at my doc's office I'm one of the "newbies." My surgeon regularly hires his patients as staff and nursing employees so I see them regularly. His surgical nurse is 18 year out and still small and petite and doing fine. In my group many are in the 10-12 year out range. One woman is 15 years post op. All are doing well with their health - some have had regains or other things they are dealing with. (skin issues, head issues, stress eating or being non-compliant with the rules.). All are open RNY patients, my surgeon only performs the RNY that way. I personally know a woman, who had my surgeon over 27 years ago. She's in her early 70's now. Has had a little bounce back after this long, because she's not able to move like she once did. But she's happy, healthy and able to be with her 8 kids and 30 grandkids, and she knows without the surgery she wouldn't have been here to see all of them grow up. You always hear about the ones that have had complications. For every patient who has had something go wrong, there are 5 or 10 more successful post ops who haven't had one bit of trouble. If you follow the rules, do what we're supposed to do post op, see your doctor regularly and have faith in your surgeon to begin with, you shouldn't have any problems. Take hubby to support group meetings, let him see successful post ops and let him learn how great life is going to be for you once you have this done.