Question:
Dismotility and upper left quaderent pain
I am 4 years out now and the specilaists found out I am suffering from dismotility and had to have an illiostomy perfomed and I am still suffering with upper left quad pain..very painful to ingest anything even water and crackers which I have been living on for the past 3 months. All the tests show nothing and they don't know what is going on. They think its in my head. I have now decided to stop eating again, I have told my therapist and she said to keep telling the doctors to keep looking I have even begged they to take a look insde to see if they see anything. Both specialist keep telling me its from the surgery Roux and Y. I was wondering if any one else out there was having the same problem. The pain is so bad at times I go to ER and be given pain meds and sent home thats all she can do for me. Please if any one else has the same problem please let me know what to do. Thank you for your time. — Shinny (posted on May 29, 2006)
May 29, 2006
Lisa, this is your body, find more specialists, run more tests. There is
no reason you need to live in pain, ever. I went 6 months with an
'unidentified' pain and the docs told me anything they could to get me out
of their office. I pestered and pestered until the problem was found.
Don't give up and don't quit eating. ~~Rebecca
— RebeccaP
May 29, 2006
I am 3 years out and also have problems with pain in my upper left quad.
It is really bad when I am having a bowel movement. I am thinking about
having a colonoscopy. Have you had one of these tests performed? I stay
constipated, no matter what I do. It does get to a point where I cannot
eat because of the pain and I get nauseated. I think it is because I am
totally backed up. I am hoping that someone will shed some light on this
situation. Sounds like we could have something similar going on. Hope you
can get some relief and answers.
Kim
— txswtthang
May 30, 2006
Hi Lisa, my response is more on the encouraging side and to let you know
not to give up with the doctors. I told my doctors that I was in pain,
sever pain and I kept going back. Each test showed nothing and I continued
to lose weight and my labs continued to downward spiral. I was referred
out to a gastric bypass specialist and as you know they hardly ever decide
to reverse this surgery. Well, because of my contant pain they made the
decision to go in and reverse it. Well, guess what, when they opened me up
they found massive erosion from where my pouch had leaked onto five major
organs. They had to do six hours of repair. I am telling you this because
they could not see this damage through all of the test I had. Thank God, I
didn't give up, keep telling them I was in pain and NO IT IS NOT IN YOUR
HEAD. Please, do not give in to your head, keep going back, keep having
test. You know your body better than anyone and you have to live with the
pain, not anyone else. I have been on pain medication for almost three
years. So tired of the constant pain. Unfortunately, I am still in pain,
but I will not give up until I am finally well. Good Luck Lisa, you have
my support.
— lindabaptiste619
May 30, 2006
I had RNY 9/03 and have been unable to have a bowel movement since. Very
severe pain upper left quad pain, it hurts to eat and drink. I have gone
from doctor to doctor and am not really getting any help. I'm on some meds
now that "help" but can eat very little. At the 6th GI clinic, I
don't know how many ER visits (they refuse to let me see a doctor now at
the ER) they have concluded "I need to seek psych help". This
diagnois is following me everywhere I go, I can't get away from it. I have
to do daily enemas to get some relief from the pressure and pain, sometimes
they don't help.
One doc told me I have Crohns but didn't offer any treatment, a colon
specialist has told me I have Pundenal Neuropathy (that's the nerve that
controls the rectum), I have IBD, it's all panic attacks, muscle spasms,
gastritis, ulcers, Gerd, esophagual spasms, hypertensive esophagual, on
and on. Last endoscopy I had a stricture but the doctor didn't feel
nothing needed to be done about it????? But I still have no relief. I
don't know where to go or do now. I will pray you find answers to help
yourself. I told my counsler last week I am going to stop eating all the
crackers I've been living on. My CBC's are within normal limits so they
say there is NO REASON to do any further bloodwork. I live on pain and
anti-spasmodic meds. I wish I had some answers for you and I am soooooo
sorry you are having to live like this. I
— Nut Picker
May 30, 2006
Dear Lisa, I can certainly feel your plight...in 2001 I had RNY Gastric
Bypass and shortly after that, my colon became completely dysfunctional and
was diagnosed as "colonic dysmotility". So, in 2003 my colon was
removed and I too had an ileostomy. With so many GI surgeries, we get alot
of adhesions. It is very rare that this happens to bypass patients but
when it does, it is quite a feat to deal with. You should have someone do
complete UGI and small bowel follow through studies to rule out any
anatomical abnormalities. If you have a great deal of adhesions, they can
be repaired/removed but remember, that can only lead to more. Make sure
you see a very good surgeon. If you had a good relationship with your
bypass surgeon or your colo-rectal surgeon - check with them. For any
ostomy related issues - please visit this site:
http://st80.startlogic.com/~ostomate/cgi-bin/yabb2/YaBB.pl. It is called
"Shaz's Ostomy Board". Now you have two references for any
questions that you may have. If you would like, please feel free to email
me (find "Sherry" from "MD"). Good luck and I hope I
can be of more support for you. Sherry
— sstrohm
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