Question:
Okay - The hair loss has started, but I was not expecting this...

I started lossing my hair and I was prepared for that. But my whole scalp hurts like I have parted my hair wrong. If I ever comb my hair it hurts. I have cowlicks popping up all over the place and even my eyebrows are growing every which way. I have a lot of hair so I can deal with the loss, but any ideas how to deal with everythine else.    — Kathy P. (posted on February 28, 2002)


February 28, 2002
Are you taking your vitamins? My surgeon stongly says to take your vitamins to prevent that. A lady in my support group had stopped taking her vitamin and expeirenced hair loss. When she began to take them it stop and hair regrowth started. My own expeirence was an eating disorder I had, (buleimia), caused a great deal of hair loss. When I stopped doing that my hair grew back. Check with yor doctor if it continues.
   — [Anonymous]

February 28, 2002
I lost a lot of hair about 2 years ago. It happened to my sister at the same age, so I assume this was just a genetic thing. (I was still pre-op.) When my hair was falling out, my scalp was hurting constantly. It burned. My hair wouldn't fall right because so much of the hair it used to fall on was missing. But my scalp showed no outward sign of irritation at all (not red or flaky or anything). It just hurt all the time! I don't know what causes the pain and burning and neither did the 4 doctors I went to about it!
   — [Anonymous]

February 28, 2002
I had a lot of hair loss post op from months 2-8. I also had extreme scalp pain whenever my hair moved or I would puxh it to one side.(the description of "parted my hair wrong" fits perfectly!! It felt like pins and needles. I posted about this back then and got no one who had experienced this. I, like anon., went to 4 doctors (surgeon, PCP, gyn, dermatologist) and I think the scalp pain really had them puzzled. It did eventually go away when the hair loss stopped. My hair is still thin at the ends, but I have millions of 3 inch "sprouts" all over. Fortunately I wear my hair in a simple style pulled back with a head band. It conceals those sprouts and has worked well for me. I am looking forward to a new style once those sprouts are long enough. I can't help you per se, but I wanted to comment because I thought I was alone back then. Shelley
   — Shelley.

February 28, 2002
P.S. I wanted to mention that I did EVERYTHING nutritionally to help with the hair loss/pain. Nothing made a difference. I had all of my protein, zinc, biotin,Vit.C, multivitamin, calcium, B12, EVERYTHING!! I am convinced that you will either lose your hair or not. (BTW- my surgeon feels the same). I did use the NIOXIN products (including the scalp treatment). While, it did zippo for my hair loss, I did like the way my hair felt and looked when I used their products. What I am saying is, don't feel like there is something you should be doing to help with this problem. Sometimes, you can not fix it and don't feel guilty about that. Shelley
   — Shelley.




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