Fistula??
Well I'm home from AMC.... I have an ulcer, hiatial hernia(which I knew, but is bigger)dilated stoma, and a fistula! So much for the Dr. in Saranac Lake saying " I don't know what to tell you!" If he had done any kind of tests like Dr. Singh did, he would have found all of this !!! Now have to wait for scheduling for ANOTHER Upper GI and then Dr. Singh will tell me what he can do! At least I have an answer.
did they tell you what type of fistula? A fistula is a abnormal connection usually between 2 organs - most common between the bladder and colon, vagina and colon, vagina and bladder but it can be anywhere. At one point they thought I had one either between my colon and bladder or intestines and stomach.
A minor one can heal on its own without treatment and usually cause no symptoms but a severe one needs to be repaired in surgery - sometimes - emergency.
I just went back and read your history and you have really been through a lot. It sounds to me like you have a fistula between your pouch and your remnant. This will have to be repaired in order to stop your symptoms and problems over the past number of months. I am suprised they didnt find it during the exploratory of the remnant.
You mentioned a nuclear test for reflux - did anyone do a 24 hour PH Probe? This is the best test there is to test for reflux - not all Gastro doctors do this but it is like a holter monitor, they put a tube down your nose into your esophagus into your stomach and measure your acid levels to determine if you are having reflux or not.
I wish you the best